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Head and Neck Cancer

Archives for June 2012

Nerve Pain?
Good Morning all, I have returned! Quick background/update: My dad was diagnosed with stage 4 tonsil cancer with spread to lymphnodes on one side in February 2011. A little over a year later he's been NED and sees his doctor's every 3 months. Yesterday he went to his general practitioner for a checkup (no cancer docs) and…
Numbness, Tingling...when will it end?
Hi All, My father finished treatment (35 rads & 3 rounds of cisplatin chemo - 7 weeks period) for laryngeal cancer on the 7th of Feb (Stage 3) his Pet scan came back clear and he has recovered well very so far. However in the past 2 months the tingling, pins & needles in his feet & legs has become an issue and some…
Staging-- what do the letters and numbers mean
I am trying to help Barefoot Bob figure out what the TxNxMx means in the staging of our tumors. I seem to remember someone had posted an explanation on here at one time (ratface, skiffin ?). I cannot remember myself and don't want to give bob the wrong info.
Its been 21 days so
it must be chemo day tommorrow, yes how time flies when you are having fun. The Dittos will be celabrating our 17th Anniversary tommorrow why I do one more Cistoplan (spell check aisle 1) then in about 3 weeks Erbitux and then Rads. I have just about gotten bored with the MASK since I have been thinking about it for so…
New Puppy Picture and Checking In
Hi all: Hope this comes thru of Chargee! He's quite a cutie isn't he? Certainly is keeping me busy and he and Sammy are now bff's! Will now be home for quite a while I suspect. Unemployment has run out and I am now going thru the process of possibly becoming a 911 operator. I applied on Jan. 20 and have the interview…
Pharmacy Carry Prescription Fluoride Gel
Has anyone had trouble getting prescriptions for prescription fluoride gel filled? Through mail-order pharmacy (Medco). I'm always surprised by what my local pharmacy doesn't have, so this seems like an odd thing to get. I actually found some on Amazon (even though it requires a prescription) but I want to be "legit" about…
AMIFOSTINE
Did you have it and if so, how effective do you feel it was and how were the side effects?
1st MEETING WITH CHEMO DOC. Any advice?
Having my first meeting with chemo doc today. Any advice on questions to ask?
recieve prognosis this afternoon - update
We heard from the oncologist Thursday evening that the biopsy was definately cancer and the nodules are numerous and in both lungs. We have an appointment with the oncologist at 4 this afternoon. I do not know why, since he already said there was no surgery or chemo to be done. I guess to give us the prognosis on life…
Numbing the Throat
We all use the Magic Mouthwash and it's my understanding they all differ to some degree. Mine had Lidocaine and about seven other ingredients mixed in. One was an anti-fungal I suppose was there for weird growths. There is only one I use that has a better numbing effect than the mouthwash. It is Lidocaine Viscous 2%. My…
Cataracts and corticosteriods--anyone know about this?
Blurred vision is a temporary side effect from hyperbaric oxygen treatments, so when my eyesight didn't get back to normal after a few months I went to see an eye specialist. He says this is not from the hyperbarics, but could likely be from the corticosteroids I was given during rads to control swelling in my neck. "This"…
Where in the World Are You ~
Here's a link that I have posted over the years and update occasionally. It's a Google Map showing where we live. Where in the World Are You I originally started it as a means of support and sharing. A way to find those close to you and to offer support for those that might want to participate. I have met a few survivors…
Looking for anyone that may live by me...
I was told I should ask if anyone on here may live by or in Phoenix, Az and has gone through or going through SCC on the tongue or neck disection. I am looking for some support from some people :) Thanks!
CT / PET results back
The findings of the CT: There is a soft tissue density lesion of slightly higher attenuation than normal tongue tissue, measuring apprx. 4.8 x 1 x 5.3 cm and involves the left lateral tongue as well as crossing midline at the tip of the tongue and extends to the floor of the mouth. This lesion does not appear to invade the…
Excessive mucus
I have mucus dripping out of what looks like my uvula constantly from the time I wake in the morning 24/7 that has the most awful foul/sweet taste. This is whether I eat anything or not. I have been to several ENT and gastro doctors both locally and get the same answer when they say they cannot find anything - late…
Time does fly
Today, June 2,2012 marks 7 months since the De Vinci robot and my wonderful surgeon and his team, removed the cancerous mass from my epiglottis...I'm feeling great, some minor complaints, but all in all, wonderful. It took 4 months for my taste buds to recover, limited on foods I can eat because of the epiglottis removal,…
Surgery has been scheduled and I am freaking out!
So I am scheduled to have my surgery June 19th to have about 1/4in deep and about the legnth of two quarters taken off the left side of my tongue and to have a partial neck disection. I am glad to have it scheduled and know it will finally be taken out of my mouth. However I am really scared they are going to say they…
HYPERTHERMIA???
Has anyone on here done this? If so, how long ago and what are your thoughts?
Done with treatments!
As of this morning, I'm officially done with treatments! I celebrated by sleeping the whole day, LOL! I've been feeling really dizzy and tired today, probably because I was up all night throwing up again, but regardless, I'm glad to be past this milestone. I'm looking forward to healing! To everyone on the bus behind me:…
Do You Ever Get Your Taste Buds Back - How Long Does It Take?
My 77-year-old Dad was diagnosed with stage 2 squamous base of tongue cancer last summer and had 7 weeks of daily radiation which ending the second week of October 2011. He was in oustanding shape before the radiation. He tolerated the radiation well and did not need a feeding tube. He lost some weight but still kept…
Losing Weight in Recovery
This is not a big problem, mostly just a minor concern. I finished my RT on April 3,2012. On my last weigh-in they had me down at 164lbs. Three weeks later at my Onc consult I weighed in at 161. No need for explanation there as I was still eating fairly light food. But now it is almost two months out and I am down to 158.…
Facial Hair Follies
Over the last year, I feel like I've had 10 different facial hair patterns. During the first radiation, I lost my beard (which I'd had for 15 years). I was left with a moustache and goatee combination, with hair on my sideburns but not enough for a beard. After the second radiation (Cyberknife) I lost the moustache and…
DPNS
Deep Pharyngeal Neuromuscular Stimulation Just wondering has anyone heard or tied DPNS. It is very interesting to me and anyone who may have been affected by C treatment and can’t swallow. DPNS If the link don't work go to http://dysphagia.com/maillist/1997-January/msg00113.html Thanks Hondo
my little son tumor
my little son who has 2.5 years old struggle with a enhancing mass at right parietal lobe, doctors just order for take mri and reviw the growth of the tumor please help me how i can fase with the matter, everyday i have just wating for some trowble will be happen
MY FIRST APPOINTMENT WITH RAD. ONC. DOC
We really like the doctor today. I was originally going to get a second consult at Mayo but now I don't know if I should even bother. Loved the doc and the staff, the facility is convenient and, quite honestly, from being on here I knew what to expect as far as treatment protocol. SInce I am dealing with something that…
just sharing last couple weeks npc
my last couple weeks of rad n chemo treatments were the hardest time. saliva becoming thickenning that make you gag. even going to my rad treatment becoming hassle feeling am gonna choke on my own thick saliva. I ask my oncology to cut out the mouth part of my mask and suction all the gunk out prior treatment, and numb my…
done w/ chemo and rad is recovery time!!
What to do for quick and painless recovery??
You still out there and riding Bigfuzzydoug
I have had to start all over again feel like a **** but I am not giving up can only manage 30 min at the moment.
I will be starting Monday Radiation and Wednesday Chemo
Hi everybody the time has finally come to get the treatment started and get this behind me they told me Monday i will start radiation and Wednesday will start my chemo if you have any words of advice please let me know i got all my nausea meds for the chemo i also got a nurse that dropped off IV fluids for after treatment…

Head and Neck Cancer

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