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Nausea with radiation
Did anyone else get nauseous during radiation??? I've been super nauseous lately. It's gross -_-. I looked in the symptoms part of the superthread, but didn't see nausea listed.
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Feeding tube vs. eating
Hi, Long time lurker, reading about others going through the same thing as me has helped a lot. Thanks everyone :) I've got a few questions about eating and the feeding tube, but first a little info about my current eating situation: Most or all posts I read about feeding tubes here, people have the PEG tube. I'm not…
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Teeth a-poppin!
Hi all! I made it through surgery with flying colors! Thank you all for your praters & posts! Feeling better today, and going back tomorrow to remove the packing from my nose. I hope to find out about the biopsy in a few days. Question- I am having dental problems due to the radiation. I had a wisdom tooth pulled, and went…
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Just done treatment today......
I had SCC on the left side of my neck in 2006....Dignosed with SCCT4 last Jan.-got 3 rounds of Cisplatin over 9 weeks(last Chemo 10 days ago)and 35 Radiations which ended today.....I am feeding exclusively off the PEG and have lost my voice, essentially my ability to swallow and of course my sense of taste! SO, considering…
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I KNOW
Excuse my rambling today, I know something I did not invite has entered my body, I know it has no good intentions, I know I will have to ask it to leave. I know it will not go quietly, I know it will not apologize for being where it is not wanted. I know it will demand I fight the battle of my life if I dare think it will…
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Unkown Survivors!
Hello, I am coming up on 1 year and 10 months post treatment and have my scheduled scope next week; as usual I tend to get a little cranky and down at this time; especially today for some reason? Fortunately though, I recently came across an unexpected surprise that is helping me get through this emotional day. I am a…
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New to CSN...hello! Tongue biopsy question
I had a tongue biopsy today and it hurt like heck, so I started searching the 'net for info on how long the pain will last. I came across this site, and was reading all the posts and felt since I haven't been diagnosed yet then I wasn't really a qualified member. Then it hit me like a ton of bricks. I AM a cancer survivor,…
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Scary midweek
Wednesday evening, had finished dinner and went to the computer to do some stuff I am working on, all of a sudden it felt like my heart was jumping out of my heart, in 2008 had an emergency quadruple bypass and a minor stroke. Have been doing so well with the cancer and told my doc I feel better now than at any time since…
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anyone else have allergic reactions to erbitux?
I have stage 4 advanced tonsil cancer and had my first chemotreatment ("front loaded"--400mg per square meter body mass) of erbitux (or cetuximab) on Friday. I had pretty serious chills, my blood pressure went way up, and because my temperature spiked (101.9) I went to ER (lots of laughs for 5 1/2 hours). My oncologist…
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Depression
Haven't been on the board for awhile since filling in for a pastor has become more involved than planned. Anyway I wanted to bring upt he subject of depression. Jim has not recovered energy since his treatment ended in August 2011.Yeshe had a shunt put in his brain January which set him back a bit but three months later…
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Ear wax cement or just poor phone service?
I ran into a friend yesterday who had rads to head and neck. She ended up with ears plugged with wax, that had to be removed by the doctor. Anyone else with this issue.. I have been having a hard time hearing with my right ear when I am on the phone, I had been blaming ATT, but it may be ear wax... PS... In general I like…
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Happy Easter with treatment finished
Hi I have not written in a while. I finished by radiation 2 weeks ago. The first week after radiation was bad. This week has been better. I seem to be getting more mouth sores. When do the mouth sores go away? I am off pain pills and my throat is hurting. How long does the throat hurt after radiation? I am grateful to have…
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Happy Easter!
In the spirit of the holiday, believe in renewal and healing. I have been blessed in so many ways, as I have go through this journey of adjusting to the new me. I wish all here on CSN, strength, wisdom, and courage to continue the fight, and NOT give in to the beast. I have become a better, stronger, compassionate,…
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The Plan for me.....
I saw the Oncologist today...my appointment was at 9:30, and he was with me unitl almost 1:00...longest Dr. appointment I've ever had in my life....and the most thorough exam I've ever had in my life. I like him, too!!! The plan will be as follows...35 rads.....3 doeses of Cisplatin, three weeks apart...then another 3…
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Happy Easter.
From myself and my Family we would like to wish everyone A Happy Easter. Take time out this weekend to thank the Man upstairs For getting us through this, and giving us light at the end of the tunnel. And pigging out on a few Easter eggs won't hurt either. (If I coud taste them) God Bless, Tonsi Dad. Dad.
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NED at 3!
I just got back from my lead oncologist's office, who gave me and my wife the great news that my CT scan showed NED! That puts me somewhere around 3 years in remission, and my next scan won't be for another whole year. That good news gets dampened a bit by the reality that I have a debridement of my left mandible in less…
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brachytherapy boost
Hello fellow survivors, yesterday I went for my third opinion and they had a surprise for me. They proposed to do radiation to mouth and neck but, instead of adding chemo to enhance the effects of radiation, they suggested a boost of radiation to the tongue through High Dose Radiation (HDR) brachytherapy (an extra ~20 Gy)…
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Decision made....oh what a relief
it is. Today was decision day, since my decision was going to be on how I felt about the radonc here. I am staying home for treatment! I took both my sisters with me, in case my decision making process might be bogged down by emotion...but all three of us walked out of the conference feeling confident in this guy...so…
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Paranoia strikes at night...
Tonight I think I found another node swelling in my neck. I know where the two are that the Dr. knows about, one is obvious to see, the other easily felt...but now a third? I see the radiologist today, but now am worrying that my PET scan is already outdated. Do I show it to him? I don't want to get two nodes nuked when it…
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Hydrocodone
So today was my doc appt after rads with my rad onc. It was also a day I missed work due to a very painful swollen throat and ear and subsequent stomach ache from too much ibuprofen trying to bring the swelling down. Two weeks ago she prescribed the hydrocodone and I carried around the script for a while then finally took…
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Hydrocodone
So today was my doc appt after rads with my rad onc. It was also a day I missed work due to a very painful swollen throat and ear and subsequent stomach ache from too much ibuprofen trying to bring the swelling down. Two weeks ago she prescribed the hydrocodone and I carried around the script for a while then finally took…
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Thoughts of suicide?
Just wondered if any of you thought about doing yourself in when first diagnosed? I was reading an article online today that some when first told they had cancer (especially younger people commit suicide). It got me to remembering that first week after I knew I was in bad shape. I have to admit the thought flickered thru…
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NPC - PET Scan
Hi Just want to share with my PET scan result. It's turned out NED. This is the first time scan after treatment. My treatment finished at 15th Dec 2011. Needlessly to say ... Thanks you very much for all your support, sharing and caring. But will have to deal with New Normal side effects. cheers, Neo
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A vent...and a rescue!
Yesterday MD Anderson sent me a list of all that I would need to send them...it included pathology slides, PET scan CD Rom, all the paperwork the ENT had, etc etc. I called the ENT's office and told them I was running up there to give them a release form and copies of my Insurance card and Driver's license. When I got…
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Finally I can talk again
To all my friends out there, I thought I would post a health update for you. My recent surgery last week was a success, I can now talk again & I can't tell you what a relief that is after not being able to communicate with out my trusted Pad & Pen since my TOTAL LARAGECTOMY on Jan 5th. I went in for surgery for what my…
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Exercise
After feeling a bit low yesterday, I did my first 5k run on the treadmill since diagnosis a week ago today and I feel like I can take the world on again now! What do people with H&N do for exercise? Seems that these days research suggests it is really good to keep exercising, even (if possible) some light exercise through…
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NPC with bone met
I found out that I got NPC and started treatment last Sept. Three months after the treatments, I did a PET scan and found that the cancer had went to my bones!!!! I had search on the internet and saw that when it gets to your bone, it is pretty bad and the chance of cure is low!! I am going back into treatment in 3 days! I…
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HPV Vaccine & Recurrences of Cervical Cancer
Here's an interesting article that was just posted to the New York Times. I had wondered if there was any point in going for the HPV vaccine and our doctors pretty much said that there was no percentage in closing the barn door now. This makes me wonder. In fact, it makes me think, what the hell. Nick finished treatment…
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Results of dad's CT scan
Dad's scan was clear today. His doctor told him he had three choices. 1. He could stop chemo completly and wait for another occurance 2. He could have started again with no break on a lower dose of the same chemo 3. He could take a two month break, then rescan and go from there. Dad and the doctor felt the best option for…
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Has anyone tried steroid injections?
Hello to all, I've been doing some research and wonder if anyone can shed some light on the idea of throat dilitation as well as steroid infections into the scar tissue to reduce inflammation, in hopes of less dilitations in the future. My dad was dx 8-8-11 with tonsil and lymph stage 4a hpv. Finished chemo and rad end of…