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Dogs, Cats, Goats, and Pets.....
Since we haven't done this for awhile, and I see a few newbies with Pet Family in their avatars. I thought it might be a good time to show your Pet Family Caregivers.... Jazzy is my honored sweetheart...she is one of two Chocolate Lab sisters we have, Jasmine (Jazzy) and Kali. They both gave me tons of love and support…
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NED
2 years March 6th... saw hemo and rad ongologist... NED IS STILL IN THE HOUSE!!! spring is on the way here in the midwest... and life is good!.. My wish for you ALL is health and happiness. Wife
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LUNG METS
i HAVE BEEN READING POST FOR AWHILE, JUST JOINED TODAY. MY HUSBAND HAD STAGE 4 BACE OF TONGUE CANCER THAT WAS TREATED WITH CHEMO AND RADIATION. SIX MONTHS LATER IT RETURNED TO LUNGS. LIKE TO HEAR FROM OTHERS WHO HAVE HAD CANCER RETURN.
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ADD
More testing on my hubby, we thought he was suffering from short term memory loss, come to find out he has ADD. Doctor said something like radiaiton posioning. I dont know, anymore. The one thing I know, is that the treatments jacked my husband up. But, he is alive. On the depressed side trying to figure out if he can…
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New here...hi everybody
Just got the bad news yesterday that I have cancer in my head/neck somewhere...I won't know precisely until I have a PET scan next week. I am scared to death of course, but have been reading a lot of upbeat posts here...thank you all for that!! My mother had a laryngetomy in 2002, so I do have some idea of what I'm about…
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Husband's Surgery - Ugh.... UPDATE
I think it's official - I've lost my mind. I came on to give an update on Bob, my husband's surgery on a post I would have sworn I made earlier in the week. I can't find it anywhere. Weird. So I suppose I will start over. He had his surgery Monday morning. It went about 6 hours and they found more cancer than they…
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They've Started
I said I would keep you all uptodate, well here goes. I've finished only my 6th Rad session and now I have no taste buds whatsoever, none or very little saliva And an earache . I new there would be side effects but I thought they would come Later in treatment. But the good news is my Onc examined me yesterday and looked At…
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13 radiology treatments completed and now the dreaded mucous
I've completed 13 of the 35 radiologic treatments and 2 of 7 chemo. My throat is so sore that swallowing is extremely painful. Doctor prescribed Vis lidocaine/diphen/Maalox and this helps to some degree for a quick meal but it lasts about 15 minutes at the most. I have just about given up trying to eat by mouth and use the…
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ANYONE HEARD FROM KIMBA??
After reading about Jim, I have also wondered why KIMBA has not given us a status report on Mark. Anyone hear from her? Mike
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My Sister Husband
It’s been a hard week, my Sister who has Parkinson Disease very bad lost her Husband last week. He was just 48 and in very good health, he went finishing by his self and they found the boat capsized and his body floating. It is believed that he had a Heart attack and fell overboard. It is not just Cancer that kills; she is…
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what do I do when Cobra runs out?
hello survivors and caregivers, I have survived the cancer but the healthcare system is killing me! I was too sick to work during treatment, and I was discharged from my job after the FMLA ran out. I am on SSD (social security disability) payroll since January of this year. It barely enough to cover my COBRA premium and…
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NED
Just wanted to share with you all. 9 months post treatment and ENT doc gave me the thumbs up (metaphorically speaking). Still have PET in 3 weeks but he was confident it would also be clear. If I could light a cigar I would!
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Videostrobe
had my six month videostrobe today at Penn State Hershey, God I hate that thing and all the gagging, but it was successful, ENT guy said "the throat looks great" It is fascinating to watch the vocal cords dance to the variety of sounds you make. next September I have a pet scan and another strobe, until then, plan for the…
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Fallen Warrior ~ Jim in Delaware
With a very heavy heart, I'm making this post.... MarineE5, sent me a message today that he had found out that Jim had passed away on February 25th. Below is the link to his obituary..... Jim in Delaware In reading the obituary, I can't help but to think that Jim (knowing his dry humor), entirely or definitely had a hand…
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Tooth Decay
I know this has been discussed before but I can't find exactly what I am looking for and wonder if you guys can help. I have had two teeth pulled as a result of decay caused by the radiation therapy. Now, in an effort to save my other teeth I need to have two root canals and two crowns which are very expensive. My question…
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What do you do?
I have no idea if this has been covered or if anyone even cares but I find myself frequently wondering what people do or did for a living. When I first meet someone in person that subject usually comes up very early on in the conversation because people want to find a common ground. Obviously those of us on this forum…
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More Very Bad News
I have been having intense pain in my right ankle and right thigh for a few days now. My personal Doc talked to me this morning and after hearing my description of the pain and looking at the latest CT scan, he thinks there is a strong possibility that the cancer has spread to my bones. He immediately scheduled me for a…
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Decorations Down!
Good Morning: Just thought I'd let y'all know that I have finally packed away the Christmas decorations and the tree is down and put away! I'll put some St. Patty's stuff out and then the Easter and then it's pretty tame until fall. My gosh, I didn't think about this when I listed my hobbies on Skiffin's post about that…
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FOR THOSE WHO ARE NEW AND ABOUT TO START RADIATION. Some threads to read that can be helpful.
Seems like we never have any shortage of new people joining. For those just starting radiation and are nervous, there is lots of good info on these threads. TIPS FOR HANDLING THE MASK: ----------------------------------------------- SURVIVING THE MASK RADIATION MASK ADVICE FIRST DAY OF RADIATION TIPS You can find more…
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Essential Items For Head And Neck Cancer Patients. These are things we've needed and that have help
This was an idea and thread started by adventurebob a couple of years ago. These are all items we compiled as things we found we really needed to help us get through treatment. Obviously, no one needs everything, but I know I used a lot of stuff off this list. So perhaps if you are just starting treatment, or know some one…
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Accidental Overdose
Well my last post was a heavy one. This one will be again. My last chemo is tomorrow and I don't want it (kicks and pounds fist on ground like a 4 year old throwing a tantrum) All joking aside. I don't know if I can do it. I am just starting to feel better, then they hit you again. If is like some f*##ing cruel joke. It…
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Hobbies and Other Interests
In reading Tonsil Dad's post and learning he is a framer of artwork and photos. I decided to start a post on hobbies and other interests. I know myself (other than fishing, LOL), one of my hobbies and first loves has always been art. I mainly like to do wildlife art, and portraits, usually always in acrylic or prismacolor…
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damage to ears from radiation
I am 9 yrs post radiation for adenocarcinoma of a minor salivary gland. In July of last year i was found to have holes in my external ear canals with visible bone showing. My ENT did cleaning and gentian violet and monthly checks until november without improvement. In November I started Hyperbaric therapy and completed 40…
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Follow-up on Cyberknife
I wanted to do a quick post about my experience--so far--with Cyberknife since it appears that not a lot of people have had experience with it and there's a surprising lack of information online about HNC and Cyberknife. To step back, I have HPV+ tongue cancer. I've had three tongue surgeries since May to remove very small…
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Is it Just Me or..(off topic)
Are the rest of you experiencing difficulty with pages loading on this website from time to time? Several times I've gotten so frustrated I just left the site. Couldn't even log off. My assumption is that this site gets too much traffic for the server to handle. That says a lot about how many people depend on this site for…
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Foamy mouth and heartburn from chemo
Any one get a foamy mouth or heartburn from chemo? I'm on my third, 3-week cycle of cisplatin, taxotere and then a week with a fanny pack of 5FU. When I get the pack removed (yesterday), I get terrible chest pain and took a Prilosec, which helped. Doc wasn't concerned. Almost worse is the foamy mouth I get with chemo. I…
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Suggestions for inability to tolerate "metallic" taste?
My husband just finished his third week of radiation for cancer at the base of his tongue. He has a very very low pain threshold and has been in pain for two years. MRI in Dec. finally detected the cancer and so he's on the tough part of treatment now. I'm trying anything I can think of to get him to eat. He's getting…
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Olfactory Neuroblastoma
Hello, my name is Heidi. While I myself do not have cancer, my father was recently diagnosed with having an olfactory neuroblastoma last week. I would like to talk with anyone who either is a survivor or knows someone who has been diagnosed with this cancer. I'm daddy's little girl, and this diagnosis has been really…
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Home for A While
Hi all: Got back Monday afternoon from NC. All was well there. In-laws doing pretty good. Father-in-law had 88th birthday while I was there. The boys did let me back in the house and were so overjoyed to see Mama of course. Believe it or not, am finally taking down Chritmas decorations! I leave them up thru Feb.! I love…
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surgery completed-not so good results
Hi, so my mom is fighting recurrance for the third time within not even 2 years, had her surgury today, right neck dissection and part of left side of her tongue removed. Unfortunately doctor had to remove the jagular vain which will leave her arm limited for the rest of her life. Any suggestions on that? does the…