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Head and Neck Cancer

Archives for February 2012

My little farewell
Had my checkup again today. All good two years out. In the beginning I didn't think I would be on here saying that. Really makes me realise you just have to live. Simple. Yes I know we have side effects. Just channel that to believing that's how it's always been. Reason why I say that is cause the doc said how's your…
New and Glad to Be Here (Considering:)
Hello everyone. I came here for ESH, finally! I was first dx Dec 2008 with partial glosectomy (lt) and had a recurrence in 2 lymph nodes followed with partial neck resection in Feb 2010. This was followed with cisplatin and radiation (37 txs). I am So Thankful to be Alive!!! I became violently ill during treatment, keeping…
One prob with being so careful in Australia on pharmacology drugs
Cannot get Pilocarpine in tablet form and this ordering on line is so hard. Should not compain really if only major prob is dry mouth.One day I will be able to say and spell its real name XEROSTOMIA phew LOL
oral mets lung
We were hoping this mess was over until a ct showed cancer in both of my husbands lungs. We are praying for a miracle. Has anyone else had any experience with anything like this? He is 32 so the Drs have no answers because of how agressive this cancer has been. This is the 4th time in less than a year he has had it.
recurrence??
Hi all, I used to come here everyday but got away from it after the first year, no reason, just didn't come. Oh, my cancer was of the lynax and I had 35 rad trmnts in Oct. 2009. I still suffer with the dry mouth and things still gettng stuck in my thorat. My question is: I got a scan back that said HIGHLY SUSPITIOUS FOR…
Excercise
I know there are some real excerise buffs on this forum. How much to you folks believe this has helped you in not only fighting cancer but helping with your recovery from treatment. Personally speaking I think cardio workouts are benefical although there was a period of a month or so where all I could do is take a short…
Diagnosed 10/05/11
Hey Everyone! I have been a ghost on this board since the first day of treatment and you all have helped me so much. I have been meaning to post, but I had some complications with treatment and then I got to the point I didn't even feel like being on the computer- I'm sure you understand. I had a diagnosis of Squamous Cell…
Fear
Hello there people, I have a general question. When you are cancer free, does the FEAR of the cancer coming back go away with time? Or is it always in the back of your mind.....not too far? Sue
Swelling
My husband finished treatment in Oct for throat cancer. In January he was given the NEC. However, he is still on a feeding tube. They did a swallow study and determined that the swelling was such that it would probably be at least 3 months before he could swallow. He chokes almost every time he even has liquids. Has anyone…
It hurts when I masticate
Out of the gutter again... Just checking to see if anyone has/had the same as I am in a very paranoid phase at the moment: When I eat I have started having pain in my jaw, just by the bottom of my ear on the left side (where my main radiation was situated). The more I eat the more painful it becomes, like a tiring muscle.…
Need to vent
So ive been in the hospital going on two weeks, came in for a trachostomy and ended up with a good case of pnemonia, today i got the pathology reports back, all show cancer squimish cell. This is my third time down the cancer road and i don't know if i have it in me. In the begining iwas a healthy 280 now i can verly…
newly diagnosed Base of Tongue with lymph node involvement
Hello, My husband Robert was diagnosed on 1/13/12 with BOT cancer at 48 years of age, he is Stage IVA - T1-N2b-M0. He is scheduled for treatment with the Lehigh Valley Health Network in PA and it will be 7 weeks of cysplatin and radiation. We went to Sloan Kettering in Manhattan yesterday for a second opinion and are…
starting week 3 of 7. Chemo again this week
Hello all, Well I've had a rough go of it last few weeks. Cisplatin kicked me in the pants. I have absolutely no appetite. My veins are shot from the Cisplatin, but thank god for great ONC Nurses, they seem to always get an IV site on me. I've gone in for lots of iv fluids, also I broke a rib vomiting. I decided to get the…
Tonsil cancer- just diagnosed
My father was recently diagnosed with cancer not sure what stage yet. They found it in both of his tonsils they were two small blooms that are scheduled to be removed on Monday. Can anyone help give us some ideas of what to expect, when we start radiation/chemo (we are not sure which will be the treatment). We are trying…
hold on - They said my husband has Ataxia and Neuropathy.
I was wondering if anyone else has the same diagnosis. Is this a progressice disease?
hold on - They said my husband has Ataxia and Neuropathy.
I was wondering if anyone else has the same diagnosis. Is this a progressice disease?
Never a dull moment.....
Hi Everyone.... It's been a while since I posted (I'm a caregiver) however I try to keep up and read posts by others. My partner Mike had Stage 4a tonsil cancer on the LEFT. Had left neck dissection, chemo (3 cycles Cisplat) concurrent w/RT. He completed treatment on 17Jun2010. He's had 3 clean PET scans: Sep10, Feb11? and…
Starting RT Soon
Hi All, I am healing well from my neck dissection and I must applaud my surgeon for leaving such a minor incision. He used dissolving sutures and Super Glue, which I keep picking off daily as it heals. Last Thursday I was fitted for my head mask. That was a weird one, with the hot soft plastic covering your head. Had to…
My pain meds and pain ?
I take 2 30 mgs of Morphine 2 times a day and up to 6 hydrocodones 10 mgs for pain. All that does is make it almost bearable. My jaw is trashed from radiation. I have a cyst in my jaw bone now and bone deteriation in my jaw. Im only 46 and as time goes by i keep hurting worse. Along with that it seems all my bones are…
Sweetblood
Are you doing ok and still posting?
I will be checking back in
Thanks so very much for all of your thoughtful messages! I just had to right down my thoughts of the past 2 weeks since he has been gone. Every day I say " I love you" don't know if he hears, but don't care. My sister just left, she spent a few hours with me. Was a nice quite visit. When she left she said "It's just you…
When do you "STOP" eating because of Radiation?
Sorry it has been a while since posting. My Dad has had his ups and downs. Certain health issues have come to light, and are being address as long with the SCCHN. Turns out that he has had several serious infections (the doctors think that he has had the infections longer than the cancer). He is being treated for…
everything changes
Hello everyone, hope everyone is doing the best they could at a very sad time. I have been in your shoes, not the person with the cancer, my husband died 2 weeks from supragottic cancer of the throat. That was 15 months ago with the dx. That was the hardest 15 months of our lives! He got so sick form the cemo and rad…
just wanted to say thanks
This is my first post and I just wanted to say thanks for all the support and help getting me through this Tough time… I was diagnosis with throat cancer back in June 2011, SSC right tonsil stage 4 several lymph nodes involved HPV+, a few weeks later I had my tonsils removed and all my teeth pulled to get ready for…
NPC treatment longterm side effects
Hello gentle folks, It's been a while since I posted on the forum. I have checked it out only a couple of times lately. Hope all of you are doing fine. It's been 2.5 years since my treatment ended for T2-N0-M0 NPC. I am happy to report that I am still in remission. However, I have been experiencing some side effects of the…
Parotid gland cancer
It will 2 years Feb 5th that I was operated on for parotid gland cancer then I had 33 Rad. treatments then in 2011 the cancer came back only this time it was in my right shoulder blade so I had 14 more Rad. treatments and have had chemo and am still getting small dose of chemo once a month. I am still here today because of…
another neck dissection on opposite side 14 months later
Hello everyone. I need your help and advise,here is my mom's story: 10/30/2010-diognossed with stage 3 tonsil SCC with one lymph node 11/15/10-surgury to remove tonsil and neck dissection, during surgury another small cancer approx. 0.3 cm found on hard palate also removed. 2/17/11-finished radiation, no chemio was…
50/50... the true stat to live by, an excerpt by Brian Hill, OCF Founder
Well said, thank you Brian... "I deal with lots of doctors as part of my work at OCF. Treatment people from all disciplines and researchers both. I work with the SEER database numbers routinely as we are looking towards the future by reviewing the newly obtained data from the past. Of all these people, one good friend at…
GLIOBLASTOMA
SEEKING INFORMATION ABOUT GBM OR GLIOBLASTOMA
Chemo question.
I've been on chemo for 6 weeks. After a CT, I found out that 2 lymph nodes shrank, but the tumor on the base of my tongue enlarged. My docs have offered to add Taxotere to my regimen. They'll take away Erbitux and keep Flourouracil and Carboplatin. Anyone have experience with the new combo? How about with Taxotere? Thanks!

Head and Neck Cancer

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