-
Scan Type and Frequency
I know this subject has been brought up before but I couldn't find the answer in previous posts. I would like to know what frequency scans are done post-treatment. Buzz has had scans every three months. Out of 5 scans, 3 have been PET scans which have shown increased activity in several areas. September's scan showed a…
-
post rad dental care
Does anyone go to dentist for professional flouride treatment? My girlfriend who is 3 months out of radiation therapy. She has been using flouride tray daily but I've read it is also recommended to do professional flouride treatment at the dental office 2 to 4 times a year. The problem is her dentist doesnt believe she…
-
ACS Facebook users, old friends finding you?
I have some old friends from high school who I haven't spoken to for ages and finding me on facebook recently, requesting confirmation. I do not know whether to initiate contact. I believe most of my fb friends now are aware of what I'm going through and I am not sure whether I want to spread the news to old friends I do…
-
Too much saliva
When I had radiation in 2010, I started the fluoride soak and carried water everywhere. Now I have a trach, and had the lower right side of my mouth rebuilt and am on chemo. Swallowing because of the last surgery is tough. One of my biggest problems is too much saliva. I have a home suction machine that I stay close to.…
-
Adenoid Cystic Carcinoma
Hello, I am new to this site and decided today to join. I found out in 2009 I had Adenoid Cystic Carcinoma, a very rare cancer that usually begins in the salivary gland. After having had surgery at Ohio State, and completed 35 radiation treatments in my hometown, all was well. Until June of 2011 when I found out it has now…
-
What is your favorite (or least awful, whichever is appropriate) flouride rinse?
Any thoughts...I need to get better at doing this. Thanks Stacey
-
Eating Habits
I have always been a carnivore but I think I am losing my appetite for meat. Not only does it taste dry due to the lack of saliva but it just isn't appealing. I wonder if I am a closet vegan. I have always liked most veggies but I don't think I could eat them and only them. Come to think of it I occasionally like fish and…
-
Mixed IMRT and PT for Ethesioneuroblastoma
I had surgery to remove ethesioneuroblastoma in my sphenoid sinus. I'm going to have a mixed radiation therapy of IMRT and PT (proton therapy). Anyone had experience with this kind of mixed threapy? Thanks, olivia
-
Happy Day After New Year Everybody
Hi all: Posted a new picture of Charlie that was taken several years ago. That's the first Sheltie we had (Smokey) getting a treat out of his pocket! Hope everyone had a Merry Christmas and Happy New Year. I went to Charlie's folks for Christmas. Mother-in-law got out of the hospital on Christmas Eve Day and doing pretty…
-
Lonley and Scared
Hi everyone I am so sorry about us all being here on this site however happy for having found it, I too need friends and am new to this site
-
January 2, 2009
Well this last three years has been an adventure to say the least. I was Dx on Janaury 2, 2009....the first time that I heard the words, "you have throat cancer".... Happy to say that I'm still here and doing well. I have developed many great friendships while on this forum. It has given me a lot, and hopefully I have…
-
Altered taste buds
I am trying to get off the peg tube. March 3, 2011 was my first radiation/chemo treatment. At first things were way too sweet or too salty. Now I have no problem with sweets, can eat vegetables and dairy fairly well. However, it some foods seem to be really hot to the tip of my tongue and it doesn't have to be a spicy…
-
My fathers PET SCAN
Well so far my father has had 2 PET SCANS since his radiation and chemo ended back in August, and they both have been NED. I am soo elated I, i, I just am soo HAPPY! However, something still reminds me that this nasty disease still has the chance to come back... several years down the road.... He has another PET SCAN in 2…
-
I'm a new member looking for friends
Hi Everyone, I'm new here...just stopping by to say hello.