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Head and Neck Cancer

Archives for January 2012

Just When I thought
Just when I thought ok, chemo over, rads over, follow-up PET scheduled for end of March, I can concentrate on getting on with my life one day at a time...I had an appointment today with my internist for a non-cancer issue, I wake up this morning with red blister blotches on my left side going around to almost the middle of…
Nasopharyngeal Cancer
Looking for some fellow fighters/survivors. I was diagnosed with NPC last May at the age of 39. I completed treatment in late October and am now just trying to recover from the harshness of the treatment. I have never talked with anyone else who has been diagnosed with this rare disease and would love to know that I am not…
Chef Daddy Mike Son
I just got off the phone with Mike and his Son is not doing so well, he is having problems with enlarged heart and swelling. Please keep him in your prayers. Hondo
Any experience with Oil Pulling Therapy?
I'm going to start radiation therapy soon. Just wonder if anyone has experience with OPT to ease any dry mouth issues. Thanks, olivia
Pascotty
Hi did you get my Message earlier about our sojourn down your way in March
on a serious note tongue is still easily split and is very sesitive
Had tongue op 08June 11 finished Radiation 27Oct 11 (wow that's not so long ago)Ok am puzzled am still on pain med more so for side effects of rad so I can sleep , But side if tongue and gums ( had wisdom teeth removed ) are still sensitive and easily hurt E.G. brushing teeth, and the throat opening is weird I can eat what…
Please send prayers for strength and wisdom
Andy had his ct scan on Friday and we get the results on Monday. If there is no disease progression, he continues the clinical trial protocol. If there is progression, he is out of the trial and we go back to the toolbox. Intense time here. Meanwhile, he has a blood clot in his lung which can be caused by chemo. He has to…
Bigfuzzydoug aw come on talk to me
Hi there obviously you are big into cycling. Have not read your story so excuse my ignorance. I am not long out of Radiation just ride for the freedom as i used to run bought knees got so bad had to be replaced last christmas was told I could not ride the bike again (not enough bend) huh March I did the 60KM Just over 37…
Phase Two
Next Wednesday I am on board to have a radical/modified neck dissection. My surgeon will also move my left salivary gland to the center of my mouth so I don't lose it during radiation. It will be an overnight because of the 5:30pm time slot. More if needed. There is a dilemma in my case though. I went and met with my new…
Massive tongue swelling just when all was feeling better
Hi all, I finished tomotherapy for my late stage 3 tongue cancer on 11/11/2011, and my last erbitux infusion 11/30/2011. I missed out on thanksgiving of course, but had started eating small portions of solid food just before Christmas. I was determined to have some Chinese food Christmas eve, and I was actually able to…
Surgery only?
I'm new to the boards, but just from reading the posts it's easy to see what a great group this is! My Dad had a neck dissection with a free flap in early October for a T3N0M0 SCC of the hypopharynx. He's doing great and the docs call him their "rock star" patient. His surgeons are nationally rated, and we're very pleased…
roll call
How do you post to roll call--maybe I've had to much Chemo--can't think to well
pain during swallowing almost 1 year post treatment
Hello, it's now been over 1 year since my mom's first surgury on 11/15/10 for tonsil cancer and radiation which was completed on 2/17/11, second surgury for small tongue cancer was on 10/6/11. Yesterday we went to her ENT and we spoke about my mom's problem. She is having slight pain during swallowing in the same spot as…
On The Road Again
Hi all: In just a few hours I'll be on the road again. Headed to G'burg with friends for a week! I have to leave my babies here though and I hate that! Hope everyone's first week of new year has been good. Have a prayer request. My sister's best friends are two people she went to high school with and she's known Martha…
ENT Monday for ear and mouth problem
As I posted a while ago, am having trouble with ear pain and a sore inside of mouth, it comes and goes and has only been there since I had my teeth removed and dentures made. Go to the Ent on Monday so he can take a look.
Neck abcess post radiation, chemo and neck dissection
Hello everyone, I finished treatment (chemo/rads/neck dissection) on August 2 2011. Life has slowly gotten back to a new normal for my wife and I. I have been exercising again and then BAM! .......in a matter of a few days I ways in the hospital in critical care. I was out of town for the New Year's holidays and got sick,…
Need you guys thoughts about a issue that I am having
Hi Guys Currently me and my wife is having a issue about affording doctors future doctors apt's so my question is should I call up all my doctors and tell them we need to cancel all doctors apt's because we cant afford them anymore or what should I do? We do have insurance but it seems like my wife insurance isnt paying…
Funny what you forget between surgeries
This is my third surgery on my tongue. Two last May and another last week. What surprises me is how much I've forgotten since the last surgeries. My tongue is swollen from the surgery and it's harder to swallow and my speech seems more messed up. But I could be all wrong. It's only be a week. I've started eating soft food…
Thank you
Thank you everyone for your kind words. Sharon, I think my depression (and only admit it here) came from the fact that I was the center of attention. Then suddenly it stops. I don't exactly mean that how it sounds. All of you can relate that once they say you are cancer free it does not really end physically or…
SSD and unemployment
Anyone here collect both SSD and UE? If we can't collect both then why SSD since there is more money from UE?
Update
I am still having problems with no saliva not able to eat very much I am 13 mounts after treatment. I have got very weak and tired I have a bad sinus head congestion my Doctor gave me 2 rounds of antibioses which has caused yeast infection in my throat. I had blood work last week and the Doctor said my red blood cells were…
How many of our Cancers were caused by alcohol and cigarettes
Hi I was wondering whether all our Cancers were caused from cigarettes and or alcohol or are we just unlucky as because I smoked and drank beer my family is blaming me for getting the Cancer saying it is my own fault
Back
Hello everyone and happy new year. I am coming up on 2 years cancer free. During my cancer I was constantly on here and there are a few members that I am enternally grateful too. Not only for their advice but their humanity. These people (and I still see they are here helping others) I hope I can help others in even the…
don't know if this is the right place
First I have to tell you that my husband is stage 1v breast cancer, however he has mets to all the bones. Back in 2009 he had mets at the base of the skull, had radiation etc. I am posting here because we recently discovered a tumor or knot the size of a quarter in his neck area...kind of close to the base of neck, but not…
1st scope since treatment ended
Just got back from the first scope since treatment ended on 10-19-11 and dr said it looks good no mass on the tonsil, still inflamed though He scheduled a ct scan and said he will compare that from the first one and if all looks well he will see him in 4 months. I tried to say in not so many words are we ok and the dr said…
From Stage IV to Center Stage ~ Denise DeSimone
For those that like to read and such, LOL.... I haven't personally read this book, but it is of a topic that we all share in common; From Stage IV to Center Stage I saw it on Daytime this morning... Best, John
Prayers did the job
Just got back from dad's appointment and everything looks great. His tumors have reduced by over 80%. The only thing that showed on the scan was two spots in his lympe nodes. Everything else was clean. The doctor plans on doing 9 more rounds of the same and see what happens. The nurses seem to have their own treatment paln…
Liquid Recipes
Can anyone give me a list of...or a resource for recipes of decent tasting, high protein/calorie food. We have a commercial grade blender coming this week and my wife is so tired of Ensure Plus and Boost Plus. It is supposed to have a recipe book with it but I fear that it is more geared towards smoothies, etc. I have been…
ROLL CALL 2012 - CLOSED. NEW THREAD STARTED
In year 2011, we had 89 folks who registered or checked back in. You now will have the opportunity to report/enroll for calendar year 2012. Please give a brief update of your status. If enrolling for the first time, please list your state, date diagnosed, type of cancer, treatment and your status. Adamson 091654, state…
Need some prayers
Dad will get the results of his first CT scan since starting chemo up again for a reoccurance of tongue cancer. His docotor is pretty sure it will show the chemo has really worked well. Dad is feeling better and acting more like his old self. Just wanted to have a few extra paryers. Kathy

Head and Neck Cancer

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