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PEG question
This may sound dumb but do you keep a dressing on your PEG? The Jevity people always send tape and gauze pads with the jevity supply but it is aggrevating to deal with the tape on a hairy chest.
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Do mouth sores return ?
Do mouth sores return (post radiation) after they had dissapeared? or could it be a mouth reacting to food again thing? Thought we were done with them! sorry in and out quick question. Clear B.
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Pegs or Nasogastro
just being lazy mentioned a lot on here were tubed i seem to recall Naso Gastric but wife who is an RN (Reg Nurse)is saying they would be PEGS and i am too lazy to read all the reports also it takes a long time to move around on this site. Ray ( The underdog LOL) PS No I am not as everyone says , lucky to be married to a…
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First CT scan results tomorrow...
My husband had his first scheduled CT (not PET for some reason) scan yesterday post chemo/rads. They could not do the dye because his "number" was too high. We meet with the docs tomorrow afternoon. Of course, we are nervous. Anyway, here we go...reading hawk711's post with great news certainly gives us encouragement,…
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Guess I wasn't meant to have a big tube
I was bragging not long ago about being able to select my big (26mm) feeding tube to replace the original. Well at 2:00 this morning I felt a bit of pain at the tube entry point and lo and behold the damned thing just fell out. Made a trip to the hospital to get a new one and they gave me a very short and limp 24 mm tube.…
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News from a happy man
I hesitated to post this good news as so many here are hurting. But, I thought that maybe some good news is what we all need. I just had my 16 month post treatment PET scan and it came back normal. Just call me Ned !! This is my second normal scan in 8 months.. I was so happy for the good reading at this time. I felt…
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Checking In
Hi all: Made it thru mine and Charlie's birthday which was the 27th (remember we had the same birthday) It was rough at times but all in all was a good day. Went to bible study and they sang to me; then went to Build-A-Bear at the mall and made a Sammy dog (dachshund) and the girl there was talking to me and I asked if…
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1 Year PET Next Week
Hi Folks, Have my 1 year PET/CT scan coming up next Monday on the 8th. Actually my 1 Year 'anniversary' was yesterday and really, it seems much longer than 1 year now. The scan was scheduled for this week, but we have our annual golf tournament this weekend which is one of those things I had to skip last year and don't…
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Squamous Cell Carcinoma on the tongue
Wondering if there is anyone else out there in this situation. Family member had kidney transplant 15+ years ago. First cancer diagnosis was 3 years ago PTLD-post transplant lymphoprolifrative disorder. Cancer was on the gums. All immunosurpressent drugs were stopped, no kidney rejection. 2nd cancer diagnosis recently,…
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Erbitox
Saw the oncologist today. He wants to do three infusions of Erbitox one week apart because Jim could not withstand the third chemo. Has anyone taken this drug and what side effects did you experience. He gave us a drug facts sheet that has some scary side effects listed but said most people only get the rash. Any help on…
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My appointment today.
Well, I went to my doctor today. I was a little irritated because he does not, in fact, 'do ears' any more and he was told I requested HIM specifically to see me. I told him that was not the case. That I was adamant that SOMEONE from ENT see me, because the first time I called I was told to go back to my PCP, and then when…
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Very Bad News on PET
I can't believe that I am actually typing this as everything seems so surreal right now. I just got a call from my ENT about my Saturday PET/CT scan. It seems that the parotid cancer has spread to a lung and in the cervical vertibrae as well as still being present in my right cheek area. I am being referred to local cancer…
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RapidArc
Has anyone here had the RapidArc radiation treatment, my onco's web site has a short video on it, it appears to shorten the radiation treatment times. Thanks, Linda
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Onco visit
I have an appointment today with my onco, to go over the PET scan results from last week, this visit will also be where she tells me what my course of treatment will be, my nerves are on edge and I have to remind myself to take deep breaths. I've got my "35 questions" printed to take with me. A good friend is going along,…
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I read something interesting
Yesterday in the paper there was a story on the guy who developed the hpv injection. It seems that in 12 months he will have a vaccine for skin cancer. His studies have shown that cancer is caused by a virus and he believes all cancer is caused by hpv. Really interesting that maybe one day it will be a common vaccine to…
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afraid of being fired
Since the CT scan and first appointment with my ENT and getting the initial "I think its cancer" from him, I have been a mess at work. I have since had my biopsy and confirmed. I have been in constant communications with my boss, who was recently promoted to that position as the prior manager took another position in the…
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weight loss is it as bad as they are telling me
All my health pros are telling me to put weight on and are pleased at what i have put on but i had a band put in 18 months ago and lost about 50 kilo. I have had it emptied and put on 20 kilo and feel terrible my gut is interfering with my bike riding and everything. I want to pull back. Do you really loose a lot during…
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hello to all or should i say G'Day from dingo land LOL
had malignant tongue and throat removed as much as they could. Mask has been made and on the 16th I start the IMRT (3D) radiotherapy am looking forward to seeing everyone's reactions and treatments as these sort of sites are lots more helpful than Oncologists no offence to them. Ray PS please feel free to say hello
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Where in the World Are You ~ Double Bumped
Thought I'd double bump this as there have been many new members the last few months that have not been added or might like to go on the map; Where in the World Are You Best, John
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thank you all
I dont know if anyone remembers me from several months ago. I am about ten weeks out of rads and had my first pet scan show the cancer is gone. I just wanted you all to know that i have stalked this sight throughout my treatment and have come here time and time again to reread your posts for encouragment. I dont think i…
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Facial and neck lymphedema
Hello Everyone I am really learning a lot on this terrific website. In late January of this year I found out I had cancer. Primary is the base of tongue Stage 2. Metastisized to lymph nodes. I found a lump the size of a walnut at the top of my neck near my jawbone. That was found to be cancer, but not lymphoma. A PET scan…
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Hi, I'm back and with 13 rads to go!
Sorry I haven't checked in lately, after getting my gtube in I was hospitalized for about 5days......I am back home now..... really tired and mostly getting all my nutrition/hydration through the tube. This Tuesday I have 13 rounds left....... Praying for everyone!