-
First Day of Chemo/Rads today!
Today is my husband's first day of treatment. Rads first then chemo after. They said 5-6 hours for the chemo. I'm a little nervous but hoping for the best. He wanted a cherry pie for dinner last night so I ordered one for him...I thought why not? He is determined to try and not use the PEG at all, but we'll see how it…
-
I have missed cold cereal
Not the most pressing subject but just thought I would throw out this question. I love cold cereal. Tried eating it not long after treatment ended (Dec. of 2010) and I had trouble swallowing it and the taste wasn't quite right. Now I find myself eating almost everything. Wondered if any of you had this same issue and if so…
-
HNC Superthread. Links that provide answers to FAQ. EXCELLENT FOR PEOPLE NEW TO CSN. please do not b
**THIS THREAD IS UPDATED AT LEAST EVERY SUNDAY. I WILL ALWAYS KEEP IT ON THE FIRST PAGE. THANK YOU FOR NOT POSTING TO IT** HNC Superthread. A COLLECTION OF HELPFUL LINKS ONLY. (please post only informative links here) Help for some FAQ. Head and Neck Superthread. ***PLEASE ADD ONLY INFORMATION IN THE FORM OF LINKS ON THIS…
-
advice on tonsil cancer
hi im new to this and not sure if im even posting in the right place, my father has been diagnosed with cancer in his left tonsil, he is due to start treatment of radio and chemo in the next couple of weeks. we are aware this is gonna be a very unpleasant time and he hes not going to feel well at all, im just wondering if…
-
MRI came out great!
MRI came out great! I guess it's called NED! Yes I did the happy dance at work. Haven't checked in for a while, felt I was too negative to contribute anything positive. So better to not say anything at all! Feeling better now that it came back with good results. I check in with my doctor every two months for the first…
-
Chefdaddy Update
My dear friends, Thank you all for your kind words and prayers. A few days ago my sons team of doctors came into his room in the morning after another repeated night of severe pain. They asked me how the night went though the night nurse had already had told them that he maybe had two hours of sleep due to the pain. This…
-
re: info for erbitox
I had 5 weeks of erbitox (mine was called cetuximab)because of the danger of losing my hearing with the regular chemo. I feel grateful to have been given this instead of cistoplatin or anything else because the side effects were relatively few. You definitely get an acne like rash, although I would just call it bad acne.…
-
Smart Bomb
I visited my chemo Oncologist yesterday and he says the cancer in my cheek, lungs, back is very rare since it started out as salivary gland cancer. So, he says he does not have a good idea on what chemo cocktail to start me on. He is going to get me a biopsy and then a local (very highly rated) cancer research facility is…
-
Miss you guys
I am sorry I have not been posting anything the last 2 weeks. I hope every one is doing okay and all scans come back clean for those who are waiting. I am sending prayers and hugs to all of those who need them. Please say a few for me. My mom was in the hospitol with a blood clot in her leg and one in her lung. She is home…
-
This just seems so trivial..However......
I was at Mayo yesterday for my second opinion. The difference between Mayo and my Onc Surgeon are night and day...The doctors at Mayo were thorough and very informative…They didn’t sugar coat any of the struggles which I am about to undergo, or tell me “don’t worry”. I have chosen them as my partners in helping me defeat…
-
Necrosis - what fresh hell is this?
I have been reading these boards for months and found so much useful information and at times my only source of inspiration. My husband was SCC stg 4 and he is 4 months post treatment and dealing well with the usual nasty side effects of RAD+chemo. We were so hopeful that each month would be an improvement over the last.…
-
When is it time to give in and get the peg?
I am very concerned for my hubby. He is 3 weeks into his rads and chemo and his appetite is way down and he can get very little food in him. He is not working right now, but is staying pretty active and is fighting with everything in him. The shakes even hurt him, he doubled over while trying a banana the other day.…
-
Pop goes the jaw bone
A funny thing happened to me on the way to the shower. Anyway, as I was preparing to do this yesterday I turned my head way to one direction and felt a POP in my jaw near the joint. It hurt some but not too bad. Today when I saw the rad onc he said that it is possible that it is an old adhesion or scar tissue from the neck…
-
ROLL CALL 2011 CLOSED. REPORT BACK IN 2012 LISTING
AM UPDATING ROLL CALL. If you had not checked in for year 2011, please post. Thank you. Please note that there are two rosters. The first lists those who have reported back in year 2011. The second are those who have not checked in. Some may already have posted in this thread and will update the roster in January. CHECKED…
-
Collapsed voice box
So has anyone experianced this after treatment, half of mine is colapsed she said. I would like my voice back, being able to speak is a good thing. I have a very quite raspy voice now. Brad
-
Cousin just passed away
We all know how cancer sucks but it is really hard when someone young dies of this crap and leave behind a Husband and two small children and one with a handicap. My Cousin has been fighting a rare form of stomach cancer for the past 3 years, this morning she lost her battle at the MD Anderson hospital in Houston. Please…
-
neck pain, headaches?
Anyone else here ever experience neck and head pain following treatment? I'm about ten weeks out of radiation and chemo. In the past week, I've been having neck and head pain mainly in the posterior neck (occipital neuralgia) and up the back of my head. My head and hair are super sensitive to touch. It is painful to…
-
ROLL CALL, AUGUST 2011
Aloha all. My apologies for the delay. I have not been on the board as much, but will continue to update if there is sufficient interest. We have 58 who enrolled or reported back in. There is another 77 who have not checked back in. That roster will follow. The intent was to keep track of those with H&N cancer. There are a…
-
Chemo Blues
Hello all, I hope this Thursday is treating you well! I reported awhile ago that my Dad handled his most recent chemo session (now two weeks ago) quite well. He was symptom free for a week and then all the side effects started coming around: Completely exhausted, sleeping for days, feeling weak, nauseated. My mom brought…
-
Today is my Father's 65th Birthday! and guess what he has to look forwared to????
Today is my Father's 65th birthday! In addition, he does not have to go to the hospital for Radiation or Chemo today. He is done with that. i don't know of a better birthday present he could ever want. We are going to spend the day together at a tractor show. Just me, my Son, and my Father. Its amazing how priorities chang…
-
Throat infection during radiation
Helllo everyone, The last three days I had a sore throat etc and put it down to normal side effect of radiation....when I turned up at radiation this morning they told me I had a mild fever. But retook it 20 min later and it was fine. I stopped by my oncologists office this afternoon bc I needed to pick up my iron tablets…
-
TransOral Robotic Surgery (TORS) & Radiation VS Radiation & Chemo
Hello everyone, What a great place to gain information and support! My story is I am a 48 year old male, at peace with where I am going if my life is shortened, but not really ready to move on to heaven! I went to my primary care physician for my yearly physical 4 weeks ago and he found a lump in my neck (left lymph node).…
-
Ginger & Nausea
My daughter went to a natural helath food store and apparently bought everything and anything that had ginger in it. She read some where that ginger helps with nausea, she also bought some kind of bracelet that has pressure points. Has anyone here tried ginger for nausea? Gotta love my structural engineer daughter, she is…
-
Lump in tongue
I developed a large sublingual lump in the middle of my tongue and I am quite worried about it. It has been there for two months after suddenly appearing in a rather painful and inflammed way. (A similar lump appeared under my chin at exactly the same time but subsequently disappeared although the tongue lump has…
-
A very funny comic
that our kids turned us on to. Copy and paste into browser. http://xkcd.com/933/ http://xkcd.com/931/ btw, if you let your mouse stay on these for a few seconds there is additional commentary. I hope you enjoy, Doug
-
Texture of foods
Greetings and good wishes to all, I just love all the support and kindness on this site! It is very ressuring to know so many people have gone through this and are here to help! I am 13 weeks post treatment now and am looking for a little advice. I really want to get back to eating real food again but am having a problem…
-
Post Surgery
I wanted to update you on my recovery. Left side neck dissection July 22. Really happy with the doctor. I pretended that I was at the spa at Stanford (I have a very good imagination!). Got the pathology report today. C was only in the one lymph node but it is a recurrance. My case will go to the tumor board tomorrow and I…
-
Chemo Drugs are on the short list.
Hey Guys I just wanted to pass long I am currently watching cbs evening news and now they are saying that chemo drugs like Carboplatin,Cisplatin are on very short supply list which can be scary for us cancer patents.
-
Survived my first week back at work
Have not been here for a while. I've been busy solving people's health problems. It was really difficult the first week. I was experiencing a lot of fatigue by day's end. Also, had weird paresthesias down both arms and then weird headaches in the occipital region. Seems OK now, with only slight residual. My Accupuncturist…
-
Today is Mark's Birthday!!!
I came on the boards today after the longest break I have ever taken. Today is Mark's birthday, and neither of us could remember what we were doing on August 3rd 2010 because Mark was in the initial weeks following treatment. I thought some old posts would refresh my memory of what was happening at this time last…