-
7 is my lucky number
OK I finally found an ENT that I like and can answer most of my questions. I don’t know why but it sure seams like the Female ENT doctors know a lot more or maybe they are just more into the feelings of people unlike my Male ENT doctors I have been seeing. Anyway right off she could see most of the problems I been having…
-
Advice for a newbee caregiver......
I have appreciated reading all of your posts since Oct. I've started a new thread because I've asked some of you questions before and then I can go back and find the original post (I'll get the hang of this). I have a question that hopefully someone can answer. My husband had a branchial cleft cyst removed in neck that was…
-
Superthread Idea. Post Any Commentary For Superthread Here.
Okay. So I have had this idea for a while and I finally finished all the work on it. I had an idea for a superthread filled with tips in the form of links about the FAQ we always get, as well as things that we have found useful during treatment. Something all in one spot so to speak that we could give to newbies to have…
-
Its Back!
Well I got the call today..... Surgery again. I'm a little upset but nothing like before. I'm just thankful I was able to postpone for a few weeks. Doc not happy but I need a few weeks to prepare. Mostly tell the kids again.... thats the hardest part. Watching their faces go from carefree to instant worry.
-
Checking In
Hi all: Basketcase checking in here. I have returned from Chatt. this past Sun. afternoon after spending Wed. thru Sun. there helping my niece and her two girls get moved from their rental house to my sister's house. My sister has the son that returned from Ohio to bury his dog Marley that passed on on Christmas Day and is…
-
Lifting weights helping with rebuilding muscle and increasing energy level
A little over a year after treatment and everything is going really well. Saliva, taste and weight are pretty much back to normal except for my energy level. Although i could go to work all day and come home, if i layed on the couch come 7 or 8pm and i was out like a light! Before treatment I generally stayed up until 11…
-
How should a caregiver handle the eating issue?
My husband is a little bit past the 4 week mark post radiation/chemo. I really don't know what to do with meals. Should I just let him decide what he wants (which is nothing)or fix him a plate of food and have him come to the table? For dinner last evening, I presented him with a very small portion of cut up rotisserie…
-
Mornings
About 30 minutes after I wake I am hit hard with what I suppose is anxiety. I have never had it as far as I know and don't quite know what to do with it. It feels like I had about 10 cups of coffee. My stomach is restless and my mind is racing. It's hard to stay focused on what I'm doing and unless I distract myself with…
-
CT Anxiety ****UPDATE****
The anxiety begins.... I had my routine CT this morning...especially stressful on this one as I just had knee surgery. In doing that, they of course knocked me out, and shoved the breathing tube down my throat. This was a week or so ago. Well every since, my throat on that side has been soar and swollen. Glands are swollwn…
-
The Food Network Conundrum or..eating versus watching or..what WAS all that about?
It is so interesting that many of us watched the food network during some of the worst times during treatment, when we had not watched prior or have not watched it much after treatment ended?? Thinking fond thoughts of you all, Stacey
-
Xanax before the Pet Scan
Some time ago there was a thread on this subject, and how the Xanax did more than just calm the nerves- it also did something to fat(?) which helped in reducing false positives. I recently had a check-in with my regular Dr. and threw that past him, and he didn't buy it. All I wanted was one measely Xanax tab! No dice. So,…
-
Adenoid Cystic Carcinoma - after radiation, how soon do you feel better, tastebuds return?
I had 33 days of radiation, it fried, my mouth, taste buds esophagus, and throat. The last two weeks of treatment were awful. I never had to have a feeding tube, but did need several IV's. Today is my 5th day post treatment, and am wondering when taste buds will return, when my throat won't be so sore. When I will be able…
-
On Any Given Day…
Cancer never sleeps. It does not discriminate, and no one is immune. Cancer can strike any family, in any community, at any time. And the only way to fight it is to be right there in those communities and with those families …every single day. That’s the great strength of the American Cancer Society. Thanks to our…
-
dose ear tubes hurt to get put in
HI all i hope everyone is good and well I have a ? im still having trouble with my ear I had prednisone but it helped a little I might need the ear tube they said they will cut my ear and i will be woke is this painfull?
-
Food Before and After Treatment
I was hungry a little while ago and found myself in the Kitchen looking something to eat. There was all kinds of stuff I loved at one time in my life but find it does not quite taste the same any more, then I found myself eating something I never did like before C but love it now. This led me to wonder about the foods I…
-
I hate the look on the doctor's face
When they are looking at something that isn't good. I have bronchitis. My daughter had it before I did. I have been coughing and hacking for three weeks thinking I could beat it and pretty much avoided the GP. This morning I decided that I have had enough I ran to urgent aid to get some antibotics. Because I told him I had…
-
Stinging tongue
My hubby, Buzz, is plagued with stinging of his tongue. It seems to be set off by some foods but sometimes happens on its own. He finished radiation/chemo 4 weeks ago and still has sores on both sides of his tongue as well as the stinging. He is feeling pretty discouraged about this symptom as well as his tongue feeling…
-
Tonsil cancer-Mucoepidermold carcinoma
I was recently diagnosed with mucoepidermold carcinoma of the left tonsil. This is a bit unusual, in that most cancer in tonsils is classified as squamous cell carcinoma. The path to diagnosis started with the appearance of a small lump in the area of my neck under the left jaw. A CTscan revealed a mass 3.4cm by 1.5cm. A…
-
Cold Sores?
My husband finished chemo/rads on Dec 22nd for Stage IVa BOT. Late last month we headed south on a road trip (with the blessing of his docs) just to escape the cold. We are at South Padre, Texas, with limited clinics. Gary has been eating normally for the last 2 1/2 weeks, and has not been using his PEG. Things seemed to…
-
When being “not bright” is a good thing
So, after all those weeks of radiation and chemo and then weeks of being “too hot” to scan (the only time in my life I have ever been “too hot”) we finally did the PET/CT scans to confirm what we already believed. The surgeon called me today to tell me that the scan came out fine and he sees no bright signs of cancer on…
-
Ability to smell / Nasal steroid rinse
Diagnosed with Stage II Esthesioneuroblastoma ("c" of the olfactory/smelling nerves) on January 29, 2009. Tumor removed endoscopically February 9, 2009. I never lost my sense of taste. However, until last week, my ability to smell has been sporadic at best...once or twice a month for a day at the most. This was until last…
-
NPC with HPV positive?
Anybody here know about the link between NPC and HPV. We went to the doctors today and was told that his tonsils are too large and they want to test to see if he is HPV possitive? And it he is positve for HPV, the doctor will remove his tonsils. He as diagnosted with NPC, but I did not know about the tonsils and HPV?…
-
Free tube food (kinda)
Hey all, I have 8 unopened cases of Compleat and 1 with just 4 cans missing. Each 8.45 oz. can has 250 calories with 12 grams of protein. Compleat contains chicken,cranberry juice, carrots, tomato's and peas along with a whole lot of corn syrup and maltodextrin and other strange ingredients. It was a compromise with the…
-
UPDATE
Hello all, I have been petty much non existent from the boards lately. There was a run recently of people having some setbacks and for some reason I have been having trouble with accepting the good as well as the bad. (weakness on my part) I should be in there helping the new comers. I just passed my 90 day mark from post…
-
lymph edema, tinnitus, accupuncture, etc . . .
Hi Everyone, thought I'd let you know what I've been trying for what lately. I'm eight months out of chemo/rads, and 5 or 6 from neck dissection. Have been trying acupuncture--5 treatments now--for severe tinnitus. No result to speak of yet, and will be givng it another treatment or two. Well known products tried with no…
-
Songs
Good Afternoon! I am working with my local Relay for Life, and I am one of the chair's for the Survivor events that will be taking place. I would encourage anyone to attend their local Relay for Life event. My family has been touched multiple times with cancer, and RFL has been a great way for us to Celebrate, Remember,…
-
Guess who I found today.
That's right! I found NED! EEEEEEEEEEEEE! Aaaahhhhhhhh! Keep your fingers crossed that it stays that way!
-
Frustrated caregiver
My hubby is 3 1/2 weeks post radiation/chemo. He is doing well and is healing. His throat is barely sore now. My problem is getting him to eat/drink. It took the entire day yesterday for him to drink an 8 oz Boost. No, he says, he has no trouble swallowing but nothing tastes good. I am tired of dealing with the peg and…
-
Snowed In
Hi Everybody!! Just sitting here this morning in Texas snowed and iced in. Very unusual for Fort Worth, It happens every couple of years. Temp 13 - wind chill -11. So I finally get a chance to post again. For all you newbies, I used to be a regular on here. I had scc right tonsil Sage 4, W/ mets to lymph nodes. Diagnosed…
-
Photo Links
I finally figured out how to do a link to a photo. Once I get it a little more refined I'll post the how to in my expressions for any that might be interested. Mean while, as an example, here's one of my boat that I used to have before the Redfisher I have now. Tailfisher It's a Tailfisher, more a skiff instead of a bay…