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Marley Dog Finally Laid to Rest
Hi all: Basketcase here! I know you all have been waiting with baited breath to finally hear that Marley Dog (nephew who came home to Chatt. from Ohio to bury his dog and remember this dog passed on on Christmas Day and has been in the freezer till yesterday!) Well, my nephew finally picked him up and laid him to rest.…
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Live Again
Feeling nothing Lonely empty You try to walk away but you fall You cannot understand what's this for In this world I see it more The pain you feel that I have known You see my face and then you see nothin' Confused. you turn and live on I turn my face You're staring back and then Look at yourself and live again Can't see…
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Introducting myself
. Hello to all. I would like to introduce myself and tell a brief story of my experience. Jan. 2010 I was diagnosed with tongue cancer. I had a tumor there and Every it was also in my lymph nodes. They where the size of golf balls in my neck. Pet scans, MRI, CT scans showed that it was confined to my neck. My ENT wanted me…
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Introducting myself
. Hello to all. I would like to introduce myself and tell a brief story of my experience. Jan. 2010 I was diagnosed with tongue cancer. I had a tumor there and Every it was also in my lymph nodes. They where the size of golf balls in my neck. Pet scans, MRI, CT scans showed that it was confined to my neck. My ENT wanted me…
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Another Milestone
Another milestone soon to be accomplished.... Spoke to my Chemo MD and ENT scoped me today also... I got the official word; port is coming out in a week or two. I’m moving to four months between ENT visits, still six months between for my Chemo MD. All blood-work is in normal ranges, TSH is still in the 5.6 range, but my…
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Trouble Swallowing after surgery
I want to start out by saying I am new to this community and want to thank all of you for sharing your experiences. I had stage 4 tonsil cancer on the left side. I had spread to three lymph nodes on the left side. On Jan 21, I had radical neck dissection followed by robotic throat surgery on Jan 31. They removed the…
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tattoo
i posted awhile ago about a survivor tattoo. i had my tattoo guy draw something up and i got it yesterday, let me know what you think. i posted it in my expression page
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Radiation time frame -effect on tumor reduction
Anyone know if there a time frame in which radiation is supposed to result in tumor reduction? Clear
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Tomorrow I go for the PET scan
What is bugging me is that the nutritionist called. I gave all the bags back after my last NED in January and I think she wanted to know if she needed to order me new bags. I am sure she is a very nice person, but I have never liked her. Probably because what she represented (that **** feeding tube). I know the doctors are…
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"Four Cups a Joe" per day, drink up!
A little food for thought, pun intended. In this months SPOHNC newsletter, Vol. 20 No. 5, pg.5 "Oral, head. And Neck Cancer News" Coffee may protect against head and neck cancer. "Results of a recent study add to the brewing evidence that drinking coffee protects against cancer, this time against head and neck cancer. Full…
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Happy Valentine's Day!
Happy Valentines Day to everyone here on these message boards! I'm holding you all in my heart today. I could not have survived this without you. Sending healing and positive thoughts to you all. Have a wonderful day! Deb
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Extreme fatigue
Over the last week I am so tired all the time, if I do something small it takes me a day to recover. I went through chemo for the second time finishing last month. It has been about 8 months since I finished radiation. I was looking on line and the one thing that sticks in my head is my thyroid. Has anyone experianced…
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more teeth/jaw bone and saliva questions
I posted this on a different thread with no responses so I thought I would start a new thread with my questions. Thanks if anyone has advice, two cents or otherwise! Help with protecting Teeth: Has anyone tried Trident Extra Care with Recaldent? Does anyone know of any known issues/toxicity of chewing gum with Recaldent…
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Treatment Options - Recurring HNC / Unknown primary
Round two? Looking for anyone with information regarding treatment options for a recurrence of Metastatic HNC unknown primary (2 lymph nodes). My husband was originally diagnosed 2/18/10 biopsies of lymph nodes came back SCC, had tonsil removed and tissue biopsy's all negative. Treatment at major cancer center 10 weeks…
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Gobbler Neck Revisited
There was an excellent thread on this topic a few months ago. So far, I've seen that it goes away within a year for some, doesn't go away for others. While we're waiting to find out which group we are in, I'm thinking of trying some of the devices mentioned - NeckCaddy was one and the Universal Plastic Surgery Facial Band…
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Submandibular Gland Swollen - no one worried but me..
Hey all. I'm glad I managed to stumble my way onto the CSN boards and I have learned alot from reading many posts. My question is to those of you who have been diagnosed with cancer involving the submandibular gland. Can you give me a timeline from when you first noticed the gland was enlarged to what led you or your…
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Invited Michael Douglas
to join us here on CSN, hoping we can get advise and info as to how he has recovered so quickly: Maybe better Dr's for the rich and famous. That is my hope anyway. Let us all pray that he will join us here and can give advise we may not know about. Probably not but we can hope. Hope all are well. I have been away for a…
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Radiation for six weeks
My surgeon said he did get all the cancer out of my mouth, but I need to have six weeks of radiation. After reading the posts about the toxicity of flouride, and dry mouth and breaking teeth, I am very worried about this. I am trying to find a great radiologist that cares about people in Southern California or the San…
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Tung Cancer
Hi i'm Pieter, i was diagnosed with tung cancer 6 years ago. The dr removed the cancer on the tung with the biops. Another dr cut 30 x 20 x 20 mm of the tung in the area where the 1st dr did the biops, but found that all the cancer was cut out with the biops. No radiation or chemo was done afterwards. In April 2010 i went…
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dental prosthetic or dentures and seasonal colds
I have a dental prosthetic in the roof of my mouth called an obturator. it fills in a good sized hole and helps prevent fluids and food from going up into my sinuses. I have been dealing with a cold this past week where I have been having to do a lot of vomiting. I was just wondering, if you have something similar (or even…
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NEC vs. NED
The result I was told of Mark's PET on Wednesday was NEC (No Evidence of Cancer). NEC or NED...Nice to Hear (NTH) regarding SCC, HPV+ Tonsil survivorship. Love you all here on CSN. Also surgeon's office gave the A-OK for Mark to have a massage. He has been wanting one...now I can get him one for Valentine's Day. It's a…
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blood transfusion
Has anybody had to have a blood transfusion after cemo treatments? my husband's cemo docter wants him to try a new drug Aranesp because his blood level is 9.7 But there is alot of risk to this drug. He has had a liver transplant 10 years ago, now throat cancer. Has a feeding tube and had to have a track because he stopped…
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A couple of questions
Hey Everyone, Work has taken over my life again and has kept me from posting very much. Hope everyone is doing well! A couple of questions for you. I'm 10 months post treatment and doing well, but do have a couple of things I thought I'd run up the flagpole and see what you thought. Every afternoon I get terribly cold. It…
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"There must be some way out of here, said the Joker to the Thief"
(Bob Dylan reference) I visited ENT Man on Tuesday. As per the norm, I arrived early so that he could see me more than an hour later. Fortunately, CNN was on the television rather than Sesame Street so I was able to watch the Egyptian Riots Reality Show rather than Bert and Ernie. This assisted in my remaining for more…
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Good News or Bad News?
I had a visit with a chemo onc today to discuss my recurrence of the malignancy in my neck. The fact that this little beastie laughed at the radiation and came back a few months later had me very concerned. Well, the doc was very reluctant to give me a firm "expiration date" as was to be expected. So, the news is that he…
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Swollen Lymph Node
I'm approaching a year since I was diagnosed with SCC unknown primary and had left neck dissection. Since then I have had checkups every six weeks where I get scoped and the awesome hand down my throat manuever. A few days back I noticed a swollen lymph node in the back of my neck. It's the kind of thing I get from time to…
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2nd Belly Button Club
I am now officially a member! That stinky old tube served me well but I am absolutely overjoyed to be rid of it. Doc says I can jump in the ocean tomorrow! Wahooo!!!! Bob
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FIRST DENTAL VISIT SINCE COMPLETING TREATMENT
I had my first dental exam since completing treatment on Oct. 20. All seems to look real good. I have 1-2 sensitive spots on my gums, but teeth look good and strong. Curious to know if you have had dental issues, how far out past your treatment date did they occur. My dentist says from his experience he sees damage pretty…
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Big News: Neck Dissection "Not Fun”
Last week I got my first post-treatment PET back and was clean. Yeah! So this week we did the long-anticipated cleanup of the battlefield. The surgeon went into the neck to clean out the lymph node which had been cancerous and which is now shriveled up and dead from the rads as well as its downstream neighbors. As such…
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Scared to look for work
I've been out of work for a long time now and I'm sick of blaming the economy. The problem for me is I'm absolutely petrified to meet prospective employers with a face like mine -- paralyzed on one side, can't smile, and can't really blink my eye. I've always felt that first impressions on interviews are so very important.…