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Tooth removed today POST radiation
ok... so I went to the superthread! (which is AWESOME!!!) but i couldn't find a link for what I need. My husband is post treatment. He has recieved 20 HBO treatments and will now have a tooth pulled. Then he will receive 10 more HBO treatments. What should I watch for? How will I know if he isn't going to heal? Thanks for…
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A WT? moment
Yes, I am living the nightmare. A distant met that is acting very quickly. My head and neck are clear. I can't breath because I have a tumor in my right airway blocking the fuction of my right lung. On Tuesday the Doc will remove the tumor (a temp fix) the chemo will start next week. Last Thursday they put in a port I woke…
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Taheebo
Just diagnosed. I read about Taheebo Tea and ordered it, Has anybody out there tried it? Not as an alternative but hopefully an added benefit.
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social situations and travel
I was wondering what to do in social situations involving eating. Do you stay away from restaurants? We were able to attend a large social gathering at a pizza place recently without anyone even noticing Buzz nursing a bottle of gatorade which he brought along. In a small group I think it would be noticed. The guy across…
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Have A Drink On Me
Gotta love AC/DC Everyone on this board has been AWESOME. And I will continue to lurk and offer support and advice where and when I can. It won't be much as my expertise is limited, but I will try. I do have a small request. Around 11 am EST (or your time where ever you may be located) have a drink for me. Irish tradition…
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Stage 4 metastisized cancer survivors
Hello, Are there any stage 4 survivors out there that the cancer has metastasized? My husband Tony has stage 4b squamous cell cancer that has spread to his lungs. He has received radiation, cisplatin and eurbitux. The cancer is now gone in his throat but has spread in his lungs. We would love to hear from those that beat…
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Recipes for feeding tube
I feel like I am starving to death with just the canned supplements being given to me. I am 4 weeks into my radiation treatment and chemo also with four weeks to go. Lukily I am not in any pain yet, but have such a hard time eating. It's probably a mental thing but because everything tastes like cardboard I just can't get…
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Chemotherapy for Neck Cancer Treatment
On Tuesday, 02-22-2011, I met with a Otorhinolaryngology (head & neck Surgeon) at the Mayo Clinic in Phoenix, Arizona. Besides being scheduled for surgery, I was told by him that I also would be doing radiation as part of the treatment. I was relieved when he told me that I would not be undergoing any chemotherapy. The doc…
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Tongue feels weird
My husband,Buzz, finished radiation/chemo on January 10th for a Stage IV BOT cancer. He still has his PEG and uses it for water and 2 cans of Osmolyte per day. Otherwise his oral intake is liquid. His throat is only slightly sore and his tongue is not hurting. However, any solid food(no matter how soft) feels weird in his…
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Just discovered tumor, should I go to a major medical center for surgery?
Had a sore throat for a few months and then difficulty swallowing for a couple of weeks. Went to my primary who thought I might have silent GERD due to a medication I was taking. They sent to an ENT (took 2 weeks to get in). PA thought it was GERD but with scoping saw a swollen area on the right side of my larynx…
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mouth sores post radiation
Currently using baking soda and water rinse, magic mouthwash from pharmacy(lidocaine), biodyne mouthrinse and gel, diflucan(yeast) and my tounge is still killing me! any suggestions?
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Stage IV Nasopharyngeal Cancer, newly diagnosed
My fiance was just diagnosed this week with stage IV nasopharyngeal carcinoma. It's metastatic and spread to lungs, lymph nodes, and his bone marrow. We had the most horrendous experience with the doctor who just told us and tried to rush us out of the office to take the next patient apparently. Apparently this cancer is…
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mucoepidermoid carcinima
i am 20 years old and I was told yesterday that the mass or lump i had on my neck was Mucoepidermoid carcinima. the intermediate type. I really dont know anything about it or what people have gone through. i really dont even know what it means. they are sending me to University of Michigan to do the complete tests, which i…
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The Doctor didn't say it was going to hurt this bad!
Loal had all of his lymph nodes removed on right side yesterday. The 1-2 hour procedure was 4.5 hours. Nodes wrapped around scar tissue from the cyst removal in Oct. Had to take some of his muscle out. He can't feel his ear. Doctor said it'll always be numb. He is having trouble with his tongue and talking. Well, last…
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HPV positives may be being over treated
Went for a check up at Johns Hopkins with my Radiation and Chemo doctors yesterday and everything checked out great. They both say that im doing extremely well. My oncologist was telling me that they discovering lots of new things about HPV+ cancers. She said that there are two clinical trials going on right now and that…
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I MET NED THIS MORNING
Hello all, I had my first PET Scan yesterday and received this morning, "NO EVIDENCE OF NEW DISEASE." I see my ENT tomorrow morning for a physical checkup. I do not think the good news has sunk in yet. I thought I would have jumped out of my shoes. It has been a long 7 months to get to this point. BEST!! Mike
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Melatonin
I noted some reports on Melatonin over the last year but as with many things, took a long while to get back and find out more. I used to take it for Jet Lag and just now, have commenced reading a rather long but fascinating series of reports published in Life Extension.org magazine. The reports are well worth a look at as…
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NCP
Have any of you gotten ct scans showing a mass 6 mos. after treatment which turn out to be nothing after biopsy
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New Here, Father diagnosed with hypopharyngeal cancer...
Hi there. Just thought I'd join this group as I know the days ahead are going to be rough. My dear father was just diagnosed with hypopharyngeal cancer. In two days will have the scan to see if cancer has spread, then in a week sees a specialist who will give all the info such as what stage, if it has spread, etc. At this…
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Lymphedema?
My husband finished chem/rads for IVa BOT at the end of December (surgery not possible). The last 2 days his neck has been swelling, his upper shoulders hurt and he feels like there is fluid in his neck where the tumor was. He hasn't had his follow-up CT yet so we don't know whether or not he's NED. It sounds to my perhaps…
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How long have you ..........
I started this post "how long have you survived" Sept 2010 for some personal hope and didn't expect the amazing responses that have been posted. It is now six months later and I am in a totally different mind set since then. I have so much hope and excitement in me. I'm no longer scared or worried about the future at all…
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Ulcer from radiation treatment
Anybody get an ulcer in the throat from the radiation treatment?
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Finished up Brechytherpy radiation
So I finished up my brechytherpy with hypothermic treatment this week and the side effects or pain is much greater than I had hoped for. I had two hypothermic treatments then directly to the brechytherpy machine for treatments there. A total of 6 brechytherpy treatments with the two heat treatments. My poor tongue is in so…
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Where in the World Are You - Updating
I thought this would be a good time (Dawn is kicking me in the Butt), to update the CSN Location Map - Where in the World are you. So you can check it out on Google Maps, or Google Earth (which looks way cool)... Here is the link; Where in the World Are You If you would like to be added, just post your first name, and…
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Peg Tube: Should I or shouldn't I
I am in the 4th week of my 6 1/2 week radiation. My throat is pretty sore but my DR said that I also thrush which may be contributing to the pain. I can get Ensures down with psyllium and L-Glutimine down. My question is how much worst will my throat get and should I schedule the Peg. I would love to think I could rough it…
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Alternative therapy and delayed surgery
Hello all. My father with ahistory of scc of the left cheek has failed chemoradiation. The pet scan revealed the cancer in upper and lower jaw. There wwas A spot on the pet scan that showed some activity behind the nose however he is not sure and scheduled a biopsy. Father is worried his surgery is getting delayed now and…
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I just wanted to say "thanks a million"
To ALL the great people on this site I just wanted to thank you for all the advice, comfort, wisdom and hope that you have given Connie & I. I remember my first post back in Oct. 2010 when I was really worried because I did not have insurance and I felt I had let Connie down by my ignorance. I was surprised the next day…
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Cancer Treatment Centers of America?
I have been diagnosed with neck cancer recently. I have a large cancerous tumor behind and below my right ear. A biopsy confirmed the tumor is cancerous but neither CAT, MRI nor PET scan can locate the cancer origin. I will be seeing a ENT this Monday (02-21-11) for additional scoping. I live in Central Arizona and there…
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tonsil cancer
I was just told by ENT that I have SCC of my right tonsil and I need a PET scan but it wiil take 1 week to get in. Is that unusual?
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Seriously? More surgery?
They can't find it. Two weeks ago they knocked my husband out and still couldn't find anything in the neck after biopsies. Now they want to take out 20-30 nodes next week. Yesterday the Ono. said "you want to survive this don't you?" when we choked. NO, you can't be serious I wanted to say! The cyst had squamous cell…