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Head and Neck Cancer

Archives for December 2010

Clean PET / CT Scans
Let me be the latest to offer up test results. My ENT had me in for a check-up and PET / CT Scans of the neck and chest this morning. They all came back clean! She scoped the area as well and said everything had healed up nicely. No evidence of disease (NED). I'm doing the happy dance! Rush
All i can do is gasp
Decided to make this a separate one time posting. All i can do is gasp in awe at how you all got through the H&N, RT hell. I understand that coupled with the rads itself, is surviving the rad effects as time goes on.In any case,it is a celebration , for want of a much better word, that this is behind you all and you can…
Humidifier.
Wow. I got a cool moisture humidifier and I've been using it the last two days. I set it right next to me, right by my bed. That horrible dry tickle that was making my right eye tear is all but gone. I'm coughing way less and I even slept better. It was only about $20 at Walmart.
Starting chemo tommorow again
Well the day I have been dredding has finally come, tommorow the long trip to San Francisco and have a pick line installed. Did not have one last time I went through chemo, anyway have not been looking forward to this. I can only hope it will take away the pain I have been experianceing for the last week. No radiation or…
NECK SCAN BEFORE PET SCAN
I finished treatment on October 20th, and will have a Neck CT I assume with contrast on December 15th. I am then scheduled for my first PET in February. Have most of you all had the same type of scan schedule? I understand waiting for the PET because of the Radiation Treatment to avoid any false positives and wont the Neck…
Vitamix Discount
I posted this on the Pinedog thread but wanted to let everyone know because it's so helpful. Vitamix offers a significant discount ($125) on the purchase of a new blender for medical reasons. They do require a doctors note on letterhead be faxed over to get the discount. You can get all the information from Vitamix as they…
clear PET
I got a PET this week and it came back clear! unbelievable relief. I thank God. I also thank everyone on this board for the info and support. Greg
GOBBLER NECK
I had a Modified Neck Dissection on the Right Side and I have really started to notice this large clump of loose skin to the left of Midline and when I look in the mirror, it looks like my Airway shifts to the left also. Is this my new look forever and ever? Are there any excersises I can do to try to correct this?
LINKS
Finally thought of using HTML Code? CSN H&N LOCATIONS MAP Best, John
Clean Scope-YIPEEEEEEEEEEEEEEEEEEE
Nice! The scope wasn't as bad as before, for whatever reason. Although the doctor made an odd comment, that I looked "really healthy now, before you looked kind of pathetic." I am guessing he means this as a positive comment? Maybe I SHOULD have bitten him. Stacey
survivor logo?
I had my submandibular salivary gland remove because i had a lump on it and the biopsy showed i had a mucoepidermoid carcinoma. So now I will be starting radiation next week as a precautionary measure to help ensure it does not return. I have been trying to find some sort of logo , like the pink ribbon for breast cancer,…
Need advice on bad cold
Employees at my office have all had a bad cold. Now it appears I am getting it. Right now it is limited to a runny nose and sore throat and slight congestion. The discomfort is centered around the site of my former tonsils. In any event, with no saliva, it is extremely uncomfortable to swallow right now, but I am afraid…
Lost My Husband
My sweet husband lost the fight on November 19. He was diagnosed in June 2009 with stage IV Tonsil SCC. We did lots of chemo (five different types) and seven weeks of radiation. It eventually spread to lung, bone, liver. He was the most beautiful man in the world and I will miss him everyday! You all have no idea how much…
Had an MRI today - Came back NED!!!!!
My insurance company refused a Pet/CT for me. So, my doctor scheduled a brain MRI, and Neck MRI and a chest Ct today. I gotta say. The MRI tube makes the Pet tube seem like a 3 bedroom apt, with wet bar and balcany. It was tiny (though I'm not). Also the brain MRI took 45 mins w/o contrast plus 20 mins with. The Neck was…
update
Next Wednesday I get a second dilation procedure under general. Although I do not look forward to another sedation, I am hopeful the widening will improve on swallowing and I wont aspirate as much. I have a date for the removal of the g tube - Dec 15 - one week after the second dilation. The tube has been a blessing and a…
"Wasted away in Margaritaville"
(Jimmy Buffett reference) A CSN friend of mine recently posted about waste, (um, food waste...not the other kind, thankfully), and made some valid points that I wanted to expand upon. I think I have mentioned recently that following Thanksgiving it has been difficult to figure out what is what in the fridges, due to the…
pinedog alternative for feeding tube
Does anyone have the "pinedog" recipe for the feeding tube. His last posting was in 2005 but I could really use the recipe. My sister-in-law has just started her treatments for stage 3 throat cancer and will soon need to use her feeding tube. The family has asked me to help by collecting recipes and alternatives to canned…
Stage IV - Not good prognosis
I've been on the lung cancer board but actually I should have been on this board all along. We thought the tumor in my husband's lung was another primary cancer and not mets. He had a biopsy on his left lung which showed it's mets from the head & neck cancer he had been treated for. My husband had his appointment with the…
Thyroid out at 2 years
Well I made it almost two years to the day but my thyroid has finally given up. Biggest thing I noticed was cold hands but also some fatigue and definitely constipation. (Also look for droopy eyelids, slow reflexes and achy joints and muscles among other things). I have a question for everyone on Synthroid/Levothyroxin. My…
When are we survivors?
Hi all. I was SSC one lymph in neck, primary unknown. Neck dissection, PEG, Chemo, IMRT, etc. Thirteen months out and feeling better than i have in 20 years. The treatment knocked 80 lbs off and I've been successful in keeping it off. Partial taste, lack of saliva and choking several times per meal of course bolster my…
bad biopsy / confused and upset
Well i received my results today and they were not good. Cancer is back...they think they may have remove all of it during the biopsy but not completely sure. They are making arrangements for me to see other doctors. My head is spinning....I cannot believe this. I'm scared and angry! i dont know if i'm ready for this…

Head and Neck Cancer

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