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voice
I have just started Chemo (first week) and Rad (three treatments) and seem to have lost my voice. I have a trach in and now I just seem to blow wind all day. What is happening here?
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What is?
Can some tell me about high grade dyselastic
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Bye bye hair
Well I was hopeful that since most of you didn't suffer major hair loss, then neither would I. WRONG. Over a week ago my hair started falling out in chunks. It was so depressing. In just 3 days my hair had gotten terribly thin. My husband kept telling me "let's just cut it!" it took me 2 more days but I finally gave in,…
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NPC mets to bone
Just curious if anyone else had NPC metastasize to bone? My first PET back in June revealed multiple spots on my spine and sternum that are all clear now on PET in late August. Docs are telling me that if it got to the bone it's in the blood and will come back eventually. Prognosis is 1-3 years with full aggressive…
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FYI: Incase you didnt know!! This is what the docs deciscions are based on!!
In case some of you are wondering what the standard is this what the docs across the country are going by!! Hopefully in the future the protocols will be seperated into hpv vs non-hpv!! You have to log-in/ Register (it's free); then goto physician clinic guidlines, head and neck cancer!…
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I SURRENDER - THE PEG GOES IN NEXT TUESDAY
Wow, the beast got me on this one. I approached this whole thing with an apparrent unrealistic goal. I wanted to come out the other end without ever needing any type of assisted feeding device. I have been logging my dailiy intake of water and total calories ingested for each day. The best day I had this week was maybe…
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Coughing/Aspiration
It's been 5 weeks today since my last radiation tx. and I am just sipping water. For the last 2-3 days I have been coughing a bit during the day (not much) but then I cough all night. Did anyone else experience this once they started swallowing liquids after treatment. Should I be concerned that I could be aspirating? Any…
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Survivor TV Show
I watched a few of the survivor showed on TV and often think that would really be cool to be part of. We are all Survivor on a different team and God bless each and everyone one of us here today. But I can’t help but dream, so here is my question? If you could be part of the Survivor TV Show, Where would you like to go to…
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How long does it take to feed through the peg?
Hi guys this is Jason again, D-Byrds son. I hope you guys are doing okay this morning and feeling good. I have a question requarding the peg feeding. How long does it ake for you to do one feeding, and how many cans do you do in one feeding session? My dad does 2 cans in one session and seems to feel horrible after each…
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i have a question
well in truth two, but the most important on is what do i do to show our secetary how much i appreciate her help. I missed one appointment because i got busy and lost track of time, after that she made sure to come out and not only tell me the time but drove me back and forth. She took time out of her busy day to help me…
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Good Report
Doctors gave me excellent Blood Count today,no cancer!!, though I have a pin hole in my neck from trach removal, the healing process is taking longer due to the radiation, and told me no way to try have any skin grafts or cosmetic surgery done, I had 2 trach holes and a botched inplant done, they said the healing was a…