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Caring4Dad: You deserve your own thread.
Caring4Dad, (Michelle) I am sorry to hear about your dad and sorry that you have had a need to find this site...but find it you did...and it is an amazing place to get information, care, support and even warmth and laughter. It is place where others get what is going on for you and your father and it is open 24/7. I am…
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Trying to enjoy my garden
It has been tough with only about 20% taste to enjoy my garden this year, I am trying but alot of the flavors that I usually love are not coming through. I finally have my weight stable and am going to try to get my Peg tube removed tommorow at the ENT visit. Wish me luck, this whole eating thing is a pain in the butt for…
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12 day out of treatment
Glenn is doing really well. The first week was pretty rough and very typical of what others have gone through. He had lots of pain, weakness, mucus, lack of sleep.... He even had two days of not being able to swallow even water without chocking. I worried at that point but the head nurse on his team called me and kind of…
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Reluctant to Post
Yes I’ve been reluctant to post on this forum lately. I am now 1 week post treatment and after 4-5 rough days I am already feeling better. And I didn’t have it very rough to begin with. My treatment has been a walk in the park in comparison to what most everyone else has gone through. When I read the problems Debbie is…
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How / When to tell my mom?
Sorry for the length of my post or any spelling errors. I am new here and wanted advise on telling my mom that I have tonsil cancer. I am a 40 year old, single,non smoker, rarely drink just diagnosed with Tonsil cancer with right neck metastasis. I received the initial call from my ENT on July 8,2010 after a ultrasound…
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PET Scan due Wednesday
Hi everyone, looks like another PET scan is due this Wednesday at MD Anderson in Houston. My local doctors are a little concerned as I been have a lot of pain the head and neck again and they can seam to find the problem. As you know all my passed PET scans for the last 5 years came back dirty, but showing no new growth.…
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Post NPC Questions
As I am in recovery phase, even though I have two chemo sessions to go Aug 9 and Aug 30, I have some questions about what to expect in the future. Finished my 40 rads about 6-7weeks ago. Port I have a port surgically inserted into the upper left portion of my chest just below my collar bone / shoulder socket. I heard and…
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Post treament depression
Hi Everyone-my husband finished 7 weeks of chemo/rad on June 10th for BOT stage III SCC HPV+. He says that this is harder than going through the treatment, at least treatment had an end date. He is still not eating or drinking-even water irritates his mouth/tongue which is still very raw. He (we) thought that he would at…
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Getting my MOJO back.
Sharing helps. I felt so lost and so lethargic, to reach out, and to write was such an effort. I am glad I posted my caretaker, post treatment funk (PTF); and recieved all of your wonderful responses. Also, Skiffin's thread with all of the pictures of the people around you all, who love and support and care for you...is…
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Still in remission
Good Morning Everyone; Just wanted to share the great news I received yesterday. My latest scan shows that I am still in REMISSION!!! This scan was only for my lung cancer but I am being scoped every month to check the larynx and all of my doctors agree that I am doing great. Since I have had no problems and all of my…
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New Update
Hi all, I met with the ENT yesterday and had my PET repeated this morning. The ENT has said that he did not like seeing the new mess on the CT in my nodes, left tonsil and soft palate. He agreed that the PET did need to be repeated. But he also said he didn't feel that my tumor(on the BOT) would shrink much more. Said it…
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skin on neck still changing
hi all I hope all is well, my skin on my neck is still going from regular back to dark like it was when I was going through radiation and im six months out of treatment have any of you heard of this?
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Another NED
Hi everyone, Just left the ENT and he scoped me and said everything looked perfect and I don't have to see him or get any more scans until December. A pretty good start to the day I must admit. Best to all, Steve
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Finished lymph node removal
Hi Everyone, I've caught up on posts and wish everyone the best. I've mainly been watching my favorite commercials this last week recuperating from neck dissection of the left side. Everything went smooth, but I want to quickly give a few specifics for those of you contemplating post treatment surgery to remove some of…
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Care Giver Recognition Week - Per Kimba's Post
I wanted to let you all see my care giver since Kimba had such a great post and response. I changed my profile photo, this photo is of my lovely wife and care giver ~ Shelley....I know that it wasn't easy. Believe it or not, LOL, I can be quite the Butt-Hole when I'm irritated and don't feel well. Something that we all go…
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BOT Biopsy
Hi all. My recent PET showed that my BOT has an SUV rating, that is a little higher than they like to see, on both sides. My Doc assures me that he does not think it is anything to worry about BUT since they are taking such a conservative approach with me ( surgery only no rads or chemo ) they would rather be safe than…
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PET Scan ~ Fourteen Months Post Treatment
All clear NED.....
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Painful Scope
Since I have been diagnosed in April I have had 4 scopes through my nostril and down my throat. My 4th was this past Monday after going over my 3 month post surgery PET scan results. Up until this last scope they have not been painful but merely a tad uncomfortable, but on Monday it hurt like hell. It was like a giant…
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No good news I'm afraid...
Hi all, The results are in and the findings are not good. The tumor shrunk from 2.5cm to 1.9cm which is a minor improvement. The right palatine tonsil appears within normal limits. But, Asymmetric enhancement involving the left palatine tonsil with extension into the soft palate, scattered cervical adenopathy, and…
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SCC and genetic testing results. Help anyone?
I have SCC at the base of the tongue and I am currently in tx. (both chemo and rad). I requested genetic testing to check for HPV. The nurse just called me an said that it was positive for subtype 16-18 and negative for 6-11 and 31-33. I asked her to explain what that meant and she is clueless. She is going to check with…
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The Post Treatment Funk: A Caregivers Perspective
I am aware this forum is primarily for those with the diagnosis of cancer; and we who love you piggy back on this site to get our own form of support. I am writing this post with the intent of sharing my current experience. It is in no way intended to offend those of you who have had, or are, physically fighting this…
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Hubby had 4th erbitux today
Hi all: Basketcase wife checking in here. Charlie had his 4th of 7 erbitux treatments today. He didn't get taxotere today because his mouth and lips are broken out and doc wanted him to have a week with the magic mouthwash to heal it up. But, his blood counts are still pretty good, rbc was in normal range, wbc and platlets…
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radiation burns to neck
Can anyone advise the best way to care for the radiation burned skin on the neck? Using Biafine. Also, Dr advised DOMboro soaks and Vitamin E. Is it best to remove dead skin? The pain is about "8" about 7 days out from the last treatment. Is it best to let it scab?
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Feeling dizzy
My dad is about 5 weeks post treatment. He had 35 rads and 6 doeses of cisplaitin. The week before his treatment started he had an issue with being dizzy, after the second dose of chemo they took him off his blood pressure meds. The problem went away, but has now returned. He says that he is only dizzy when he stands up…
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Nasopharyngeal Carcinoma
- Age 28 Male - Age of diagnosis or time since diagnosis April 2010 - Specific type of cancer (squamous cell, salivary gland, thyroid, others) Nasopharyngeal Carcinoma - Treatments: surgery, chemotherapy (if possible with names), radiation, etc. 8 Weeks of radiation complete 4 weeks of chemotherapy complete (cisplatin /…
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First news update
Hi to all, I had my scans this morning and will know the results tomorrow. But the big news is...my PEG is gone..YIPPEE. Of course mine went like everyone else's with my doctor saying take a deep breath and he yanked and I howled. Then I cried because it was gone. The doctor told me to stay on the Boost and Ensure because…
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Drinking Ensure
Without having the full taste and from the very start, I never did like the taste of Ensure. I could tolerate Boost a little better. I am drinking vanilla Ensure because the VA has them, but not Boost. For veterans who need Ensure and under VA care, check with them since it is a prescription item. With advice from the food…
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reaction to radiation/chemo
My husband is having chemo and radiation after having two seperate sugeries to remove two seperate masses(mouth, neck). In addition to swelling there seems to be sloughing off of skin on what remains of his tongue, the inside of his mouth and lips. Anyone else come across this? None of the health care people mentioned this…
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L'hermitte Sympton
I just started experiencing L'hermitte Sympton. It is a strange sensation, but not really uncomfortable. Does it get more intense as time passes? I’m about 2 months post treatment.
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new
Hello everyone! I found this site last night and have been reading ya'lls posts...Thanx to everyone for sharing. I laughed and cried reading your stories and feel blessed to find this site.I have thought I was "being weak and feeling sorry for myself" until I read posts till wee hrs of morning,now I realize it's part of…