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Over Radiated
There are some discussions in different posts on this board that some patients feel and know they were over radiated. Looking back, does anyone know or have any ideas as what effects during radiation would send any warning signals?
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Feeding tube hole
I had my feeding tube taken out six days ago, my question is. How long did you wait before going swimming and getting into the lake? I have not gone swimming or boating this year since I could not get into the water. Tommorow will be 100 degrees and I want to take the fishing boat to the lake. Should I wait or get in the…
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HPV+ Question
I keep seeing reference to HPV. What is it? How can I tell if I've been tested for it? What's the underlying impact of being or not being HPV+? My prayers are with all, keep up the good fight. Ed
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Hello All! We are New to this discussion board!
Hello All! My name is Crystal and I am helping my mom Tammy ( who isnt tech smart haha) get used to using this site. She just found out last week she has cancer; Basal Cell Carcinoma and Matastatic neck cancer. She had surgery on Friday and The doctor said That they cancer didnt start in her neck and that they need to find…
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Amifostine (ethyol)
During my rads treatment I took two shots before they zapped my head called amifostine. I was curious out of the lot of us here, who all took this drug? Did you find it to be beneficial post treatment? I'm just curious because I think I only saw one person mention the use of the drug in a post somewhere. Amifostine:…
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Football Season! What's your Team? :)
Hi Folks, thought it would be nice to post something other than cancer stuff! So who is into football? What is your team. I am a BUFFALO BILLS fan. I was OAKLAND RAIDERS when I was younger but decided to join the rest of the western New Yorkers and support the local team! Go BILLS! Charles
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Chemo Plan
Met with the medical ongologist and nurse. Looks like I start chemo next week unless anything comes up. The Chemo they have planned for me is Cispaltin, Doxcetaxil, Fluoracil then Pegfilgrastim / Neulasta to boost my immune system. I have the handouts the hospital provided but wanted some real life exprience? I am nervous…
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PET results for Hondo
To all my Family here on CSN We had a very eventful day at MD Anderson as we waited for the doctors to come in the room with the report of the PET scan, of all days Friday 13th only bad things happen on this day. But not so today my PET showed clean no Cancer, the first time in 8 years. There are still a lot of major…
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Pet Scan 10 mos out!
Hi all! I am driving myself to NYC for my Pet scan on Monday 8/16/10. I am okay now, but I know I will be "reving" up by Sunday. Please keep me in your prayers, as I do you. I have never gone by myself, but am strengthened by my belief in the Lord that I am not done yet, I KNOW that! Thank you all for always being there…
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How about nutritional supplements?
I've always been kind of a health nut and a regular part of my diet has been stuff called JuicePlus+ (just organic fruits, vegetable & vineyard dehydrated in a capsule form). It's for people who don't think theiy consume the proper amount of fruits and veggies in their regular diet. I do some Omega-3 fish oil as well. The…
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FINAL PATH IN FROM SURGERIES
My Doc's Nurse Called my wife earlier to let her know that the Doc did get good margins in my mouth, but there may be some uncertianties regarding the removal of all of the cancer in the neck. Of course my Doc is in the OR all day today. The final repot now makes the Chemo portion mandatory so my journey will endure…
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Two Different Cancers
Hi Everyone My Name is Judy I recently discussed my newly diagnosed Kidney Cancer which I was led to believe was Renal Cell Carcinoma with neck lymph node metastasis.Following further discussions with my Oncologist I have now found out that the tumour in my lymph node appears to be a different type of cancer as it was…
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Gardasil Vaccine to prevent HPV+ SCC cancer recurrence
Hello all See the summary below of a study completed by the U of Alabama in 2010. Anyone here familiar with this? Has anyone discussed the ramifications of this study with their doctors, to assess the extent of its applicability to H&N SCC as opposed to Cervical SCC? The jury is still out on this one at Stanford, in part…
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Tinnitus Drug On Horizon
Hi Everyone, I live in the central valley of California. My last trip to my ENT I told him about my tinnitus, and he suggested I was a candidate for a trial being done on a new tinnitus drug treatment. I can't apply until September, but I will try and get into the trial. The drug is already being prescribed in Germany, and…
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squemous cell carsonoma
I was diagnosed withSCC and am presently ending my third week of treatment...I am presently having a constant buzzing in my ears, which I believe is from the chemo..I have this now for two weeks and am due for my second dose of chemo on Monday..I was wondering if anyone else has experienced this...I am scheduled for a…
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New Article! New England Journal of Medicine!
Hey, I also wanted to share that there is a new article from the New England journal of medicine from July 1, 2010. It talks about HPV+16 tumors and Survival stats for those of you who are interested. N Engl J med 2010; 363:24-35
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Better days!
Hey peeps! Sorry haven't posted in a while; I have been reading but didn't really have much to say! I was really inspired by the caregiver posts; but being single I didn't really feel like I had much to add! Anyway, I am on week 6; haven't used feeding tube since last Friday. I am eating but it's slow process and have to…
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P E T Scan
Had my first P E T Scan after having surgery and 33 radiation treatments for pitirod gland cancer and the P E T came out clean .It was well worth the hard times of enduring the 33 Radiation treatments
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Tripping Over My Tongue
Hi all. Pam here - almost 5 months post tx for base of tongue. I got my PEG out and throat dilated a couple of weeks ago. I've noticed very recently that I sometimes have difficulty speaking again (haven't had this problem for at least 3 months). Not total inability to be coherent, just like having a harder time getting my…
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PEG placement today
I'm going in for my PEG placement today and just want to stop by and say thank you to all the folks who have come before and posted their experiences and advice regarding treatment. I've been pretty good about accepting all the pre-treatment procedures that been done to date. However I've not been very accepting over the…
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Cancer free states/areas
Thank you Skiffin16 for creating that map with our locations. Has anyone else noticed the considerable lack of individuals posting from the Rocky Mountain states or the Great Plans area? The gap is very noticeable on John’s map. I realize that these states are probably less populated, but it would appear that there should…
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PET scan or no PET Scan
Question regarding PET scan. So far my doctors have not scheduled me for a PET scan. Should I be requesting one? Initial testing by my ENT for initial disgnosis was ultrasound of neck, CT scan, needle biopsy, which showed Squamos Cell Carcinoma in my right neck lymph nodes. Then he refered me to MD Anderson. He ordered a…
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HAS ANYONE TALK TO OR HEARD FROM CHEFFDAY?????????????
I haven't heard anything from chefdaddy since June. Has anyone ele heard something?
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Sorry Guys
To all my new family, As promised I would update as soon as the results were in...I do have another tumor. This one appears to go from the left tonsil into the soft palette. The ENT wanted it to be that the spot showing on the PET was hot from my rads but no such luck. The radiologist confirm another mass and when scoped,…
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Needle Biospy not performed in 2005 (lump in 2006 was cancer)
Question concerning something that has been really nagging at me ever since my brother Michael's diagnois. He had a lump in his neck and went to ENT in Sav, GA sometime in 2005. He told me he thought it might be ear, tonsil, or tooth related (he did not have the best teeth even prior to rad treatment). At that visit the…
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NEW BUT LATE UPDATE
Good morning all!! I am finally home recovering from my surgeries. Yes, surgeries with an S. Nothing comes easy. My original plan was to have one surgery on Monday August 9th to extract the oral cancer and then the neck dissection. While driving home from work on Friday the 7th, my mouth filled with blood, and this…
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9 year survivor, with a couple questions..please help!
9 years ago I was diagnosed with Tonsilar cancer. Ever since then, I have been having 2 sorts of problems. One is where my memory is really bad. I don't remember much of my past, nor what I have done even last week. It's extremely frustrating. The other problem is that I get a pain in the left side of my neck, below my ear…
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Rash on face, head and neck: prediagnosis
Has anyone heard of a rash on your forehead, sides of nose, neck and scap being related to tonsil cancer? Pre-diagnosis April 19th to be exact I developed a rash after a minor car accident in which I was rear-ended. At the time I went to the ER cause my neck hurt and my friend thought I should. Well they diagnosed it as…
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Three month PET scan results.
I went over my three month pet scan results with the doctors today, some hot spots still showing up. The conclusion was that in the last two months since my last pet scan the hot spot has shrunk by half, so it is half the size it was. I also had some biopsies done 6 weeks ago in that area and they came back as cancer free.…
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WGM Stage4 Tongue, base of mouth
Hello, my name is Bill and my mother (WCG=World's Greatest Mom!!) was recently diagnosed with stage 4 tongue and base of mouth cancer. Lymph nodes look like they might not be affected but not 100% sure of this. Our first DR. took a week for this, a week for that and time is passing which has me stressed. We waited a week…