Head and Neck Cancer
Discussion List
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3 month PET Scan
I go in Monday for my 3 month pet scan. I had one a month out of treatment and it did not come back good. Since then I had some biopsies done and they came back great. I hope this one comes back great. Eating is such a pain in the butt, I have never had a problem eating before and now I am fighting to keep the weight on,…
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feet swellingwith pain
Hi all I have pain and tingling and numbness I had in my feet is now turning into swlleing of hand and feet is with stiffness in bones my doc said is radiation damage have any of you go through this or have heard of it and will it go away?
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ANYONE HAVE FEEDBACK REGARDING SURGICAL APPROACH
Things are finally coming together. I met with my Doc yesterday and he formally staged me as T2 N2 BM0 P16+. Just what I wanted to hear regarding the HPV. The Surgical approach for the Oral Cavity he call "Trans Oral Microscopic Laser Surgery." he says this approach will allow him to cut through the tumors and that he can…
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Story of no Insurance
Got a Relative w/no insurance, or job, and in his mid-50's without much money. Been going to a "free clinic" for the last couple years, and has been told he has an acid reflux problem. Lost some 38lbs over that time, and swallowing has gradually gotten harder. So, they finally put tubes down his nose and throat, which led…
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Update: Endoscopy on the horizon
Howdy everyone. The Drs want to do an endoscopy after the episode the other day. What happened was a painful exercise in what NOT to eat if you have a PEG and can't burp. I still have been putting all kinds of stuff in there, regular food instead of the formula, for a while now. Well, I guess the baked beans I threw in…
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First Post Treatment PET
Tomorrow morning I have my first post-treatment PET/CT scan. I had surgery in late April, SCC unknown Primary T0N1M0, and no rads or chemo. My scans prior to surgery showed all sorts of activity in my left and right tonsil as well as a number of lymph nodes. Post surgery pathology revealed all negative except for the one…
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Tingling Feet...need info please
Hi everyone, I think I have seen something about this but couldn't find it so I have to ask. I finished my rads June 24 and for about a week now my feet are tingling and feeling like they are asleep so bad I am going nuts. Is this something to be concerned about? I check back in next week to repeat my MRI and see the doc…
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Lhermitte's Syndrome??
Hey Everybody I thought I was getting lucky and missing one of the many lovely side effects we all enjoy. But alas as luck would have it, I started getting the shooting "electric shocks" down my neck when I look down. I know this has been discussed before - Lhermitte's Syndrome I believe, but didn't read too close since I…
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Neck Dissection & PT
Just a quick question. How many folks went to or requested physical therapy after their neck dissection? I'm about 3 1/2 weeks out from my partial right neck dissection, back to work but my neck is still very stiff/sore. The massage and heat trick works for a time, but about half way through the day the muscles start…
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Soft Tissue Necrosis!
Hey went for check up Monday and today! Saw ENT on Monday and Radiation Doc today. I was concerned about irritation on Right side where I got most of the radiation in mouth. The ENT said it was just healing still from Radiation treatment; that everything was healing good. Radiation team said I had a tiny amount of bone…
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Has anyone experienced alcohol ablation int the lymph node area of the neck? What were the results?
I may be undergoing lymph node ablation in the neck area with an alcohol injection. Has anyone had this done and what were the results? Possible residual papillary thyroid cancer after after thyroid cancer surgery four years age.
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doctors want to remove feeding tube im not ready yet
Hi all I hope all is well with everyone at my doc appt he want to remove my feeding tube but im still not comfortable with mt food intake by mouth on my own due to my lack of taste when did most of you no when it was time to get it removed , my family think ive become dependant on the feeding tube and thinks it is time but…
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A laugh to brighten your day!
I'm new here and posted my story in an earlier thread. In it I mentioned that I went to Johns Hopkins on Friday. I was able to get an emergency appt. in only a day! How? Read on... So I've got the General working on this for me as well. My late dad 'Bigfuzzydad' was a Captain in the Marines in WWII in the Pacific. Tough as…
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Are you Full Yet?
I, had some great news and alot of support, I thank everyone for that...I have a question...Does anyone every get tired of eating?????? I eat day, all day, and have gained only 12lbs,....why is it when you have cancer it takes more food to gain weight, I weigh a whopping 152-lbs, and I was at 140...I need to get back to at…
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TOTALLY CONFUSED AND MAD INSTEAD OF POSITIVE
For anyone who may have read my post from earlier today that indicated my Priamry Site was changed from BOT to my Right Tonsil, my wife received a call today from my Doc's APN indicating that all of the samples taken for my Biopsy last Wednesday afternoon are now all positive for the same type of cell. I guess when the Doc…
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Hubby had third Erbitux/Taxotere today
Hi all: Basketcase here checking in. Charlie had his third of seven erbitux/taxotere treatments today on our birthday no less! Yes, we have the same birthday; he was 58 today and I was 57 today; but hey, if this takes care of it or at least gets it under control; it will be an awesome birthday! He's felt really good most…
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Help, Support, Information & Hope
Hi Everyone, I recently posted this on Brian's post but I also wanted to post this here for more people to see. I think that anyone with head & neck cancer will be able to benefit from this online support group. The Oral Cancer Foundation has an online & free patient forum that can be accessed from their main site here:…
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Radiation Twice - Anyone? Recurrence - Hypopharyngeal Cancer - Husband
I have been reading this board for over a year and there is such a wealth of knowledge. My husband was diagnosed with hypopharyngeal cancer w/spread to 1 lymph node in June 2009. He went through 6 weeks induction chemo, followed by 35 rads + chemo (fun, fun). All was well we thought. This week marked 8 months out of…
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Where's my PEG? - - Oh, yeah - they took it out this morning
Yay - my doc subscribes to the "no pain, no pain" ideology. My PEG was removed this morning. "Mild sedative" turns out to be something that knocked me out, and left me with no memory of the procedure once the happy juice got turned on. Gastro scoped me while I was in la la land, decided a stretching was in order, and did…
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A newbie to your club *siiiiiigh*
Hoo-boy! Another BB forum to post to, but obviously, this is one that no one ever wanted to really a part of to begin with. Well here goes my first long-winded tale as I'm sure most people's first posts usually are. A quick shout-out of my rather unusual case... I'm 41, a non-smoker, non-drinker and in fact a lifelong…
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He's done
Glenn had his last radiation treatment this morning. He almost came out in a wheelchair due to a dizzy spell after standing up from the table but after we got done talking to everyone, he stood up and was feeling better so he walked out. Lots of mucus, throat pain, fatigue and just generally feeling like he's been pulled…
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Radiation mask and finz2lft
I did it, I put my mind in a far away place as everyone suggested and the hour dry run was over before I new it. Yea!!!!
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Good News!!!
Well, I just came from the doc today. No Cancer, My breathing airway has opened, infection gone. game plan, 2 more weeks of medication for safety, 2 weeks off, and we are going to rewmove this trach in my thtroat permantley, YES!!!!!!I Got rid of one doctor, and will be down to one medication in 2 weeks, I had to share,…
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I need some Radiation Mask advice--Please Help
I went for the trial run today, and they put that mask on me, and I lost it. I told them there was no way that is the mask they fitted me with. When they snapped it down around the back of the neck, I just freaked out, and could not handle it. It was so tight around my cheeks. My Doctor is new, and he was so great, he…
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thank you from Andyw
it has been a while since i wrote last and i want to say thank you to all the people who were kind enough to share with me and give me support. it is nice to know that there are people out there who understand. i have been trying to do more to help myself but it is difficult when i am depressed my doctor put me on…
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So...when did you get taste buds back?
Sort of just a poll here. When did you begin to get taste buds back after treatment ended? Just thought the scope of answers here might be helpful for those anxious about tasting food again.
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Last Day of Radiation today
Hubby had last radiation treatment today. All in all has done really well. About a twenty pound weight loss but is still taking all nutrition by mouth. No PEG tube. Sore throat but never lost his voice. Had terrible radiation burns at weeks 4 and 5 but they healed really quickly (may have been allergic to prescription…
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Tongue cancer
Hello to all I hope everyone is doing some what well. I am 25 years old, and in April of 2010 I got diagnosis with tongue cancer. I don't know what stage of what the correct name of the cancer is or shall I say was. On July 16,2010 I had my sergury to have part of my right tounge removed, along with the removal of my right…
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A little morning humor with your coffee
This morning I was doing my usual routine of coming to this site and another one that I frequent, with my coffee and was basically checking in on some of the posts. My wife came into the kitchen and with a strange voice said "Hello" almost imitating a Parrot. She does this once in awhile because she knows the story behind…
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BP Question
Hi all! Nine months out - scope was clean. Going for PET at Mt Sinai in August. Has anyone have trouble with LOW blood pressure? Last two weeks pressure running 80/50. Dr advised to add a lot of salt to foods, otherwise I will need medication which of course I do not want. I have enough trouble eating w/o adding salt to my…