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LIVING HELL!
Well I have four more weeks to go. The outside looks good so far not too red. The inside that's a different story mucositis, sores on tongue and back of mouth. The pain is the worst when the mouth drys out. That is the torcher part the dry mouth hurts like hell! THIS IS LIVING HELL! I'm getting PEG tube in on Wed. I'm…
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Marine/Irishgypsie/Skiffin: Thank you for service.
To Marine and Irish Gypsie, Skiffin and all the men and women who have served in the armed forces: You sign up to do battle and fight for our country and all its freedoms. Then you fight a war on the most intimate front...the enemy: cancer. Just know I appreciate your service to our country and how that protects each and…
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Treatment plan finally
After a million appointments and much preparation Glenn is getting ready to begin treatment. They've decided on IMRT/Tomo bilateral neck and Carbo/Taxol x3. He was TxN2bMo. He's been to the dentist and had all teeth removed, PEG inserted last Wednesday. He'll start on Monday, 6/7. He's looking forward to Radiation…
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my dad
I am hoping someone can help direct me & my mom in a direction. My dad was diag w/cancer just a couple of days ago. Its mainly in his throat & tonsils. We are doing a PET scan to see exactly where & how much there is. My dad is 64 was laid off from his job just a day or two before we found out. Also, they do not have…
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Wonderful news
Hi Everyone, My dad had a checkup with the chemo doctor yesterday and got the best news. His doctor told him that it is nothing short of a mircle how much his tumor his disappeared at only half way through treatment. All of the swelling has gone down in his face and the doctor could not believe that this was the same…
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Had my first laryngoscopy today..........scared.....doctor says looks like cancer
Hello..I have never posted before but have been looking on this site since my doctor said I had a nasopharyngeal mass and one in my voicebox (right arytenoid mass it said). I don't ask enough questions at the doctors office. I had my laryngoscopy today and the doctor said the nasopharyngeal mass was a cyst but that the…
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Can I Introduce Myself?
Hi. My name is Mick and I just came across this site. I completed treatment for cancer of the tonsil and neck one year ago. Things seem to be going well although my last scan indicated the possibility of a 4mm nodule on my lung. My Oncologist does not believe it is that but instead a temporary collapse of the lung which is…
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eating just sucks
I am feeling really discouraged about eating..sorry for the depressing title!
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pic of husband!
That's him! back to hunting! it's not all good ... but the good is out weighing the bad!
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Unknown primary site
My husband was diagnosed stage 4 HNSCC. Left neck disection Surgery on April 30 , 2010 removed 22 lymph nodes 3 were positive. Unknown primary but the doctors are recommending full radiation 60 grays on right side and 70 grays on left side, 5 days a week for 6 weeks. Also, recommended Cisplatin 3 times OR Erbitux weekly.…
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bone loss in jaw question
My husband has been told that he has bone loss around one of his teeth and it probably will have to come out. The dentist told him because his blood counts were back to normal there shouldn't be an issue with this. I have read many comments on here about special procedure. .. hyperberic stuff, etc. is what the dentist is…
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MIBG Study update
I had my MIBG study done on Tuesday and the doctor just called and said that the preliminary results so no uptake in my lung, which is great news! My wife and I are very excited. The doctor said he should have a full report tommorrow, but he does not except it to show anything. The plan going forward to is to have a CT or…
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Hyperbaric Therapy
I have just had the ok to start this treament next week, to clean and build new cells to my larnyx and voice box where i was given radiation, if anyone has every had this procedure, please feel free to post, tell me of your expereince and if it was a positive diretion for you. This is my last hope. Thanks, I'm hoping for a…
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This lonleness is killing me.......
Hi all it is really hard for me as of now im extremly lonely my daughter was here with me but now she wants to go back to her nanny and papa my eighteen year old is there also my five year old is with his dad it seem as though once treatment ended everyone dissapeard when treatment ended they think all is well beecause I…
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Scan
Hey everyone, Had a pet scan today. Only 6 1/2 wks. out. Tech said he didn't see anything to be worried about, but hes no doc. Wish me luck!! Steve
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update
Hi Folks. Went to the speech pathologist today who got mad at the ENT for not recognizing that I have an upper respiratory infection that has been adding to the secretions in the throat which makes swallowing more difficult than it needs to be. Other than that she's pretty happy that I'll be eating in a few weeks. Sleep is…
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Nutritious Drink
This may help those people out there who cannot swallow most or any foods yet. It's 1 scoop of protien powder, a handfull of strawberries. 1 banana, a handfull of blueberries AND...1 can of Vanilla Ensure. It is sooooo good!!! And good for you!! :D Cindy
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Soccerfreaks
Has anyone heard anything from Soccerfreaks? I haven't seen any of his posts. Or maybe I have skipped past them, without knowing. He was very helpfull as well:) Cindy
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Tonsillectomy Complications
Hi all, I had a left neck dissection and tonsillectomy about 5 weeks ago. My recovery has gone well for the most part and I'm very thankful. The last couple of days though I have noticed an acid like build up in the back of my throat where my tonsils were. It kinda feels like there's vomit in the back of my throat ( gross…
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Getting the PEG out
Good Morning everyone I hope everyone is feeling better today. I have an appointment tomorrow to get the PEG out. I was waiting until after my PET came back and what the outcome of that would be. Now that the scans are good I believe it is time. I have been using it still, supplementing with it. I have so much Jevity left…
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ENT doctor question
How often did any of you see the ENT through treatment? The ENT my dad went to did not impress us during the first visit. The whole time he talked to his nurse and explained very little to us. The only reason I understood anything was because of the research I had done. He never told us that the CT scan looked good or…
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Acupuncture
I have posted on hear before trying to get some information on acupuncture. I like many others on here have fried saliva glands due to radiation. I am now three years and three months post treatment and basically have no saliva other than the thick ropy type. Yes chewing gum, tic-tacs, biotene gel for dry mouth and a…
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Good Checkup
I was at MD Anderson last week for my 18 month checkup and got two thumbs up. Stressful testing, but was able to smile as I walked out the door. YAY ME :)
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Base of tongue cancer associated with Listerine?
Hi all, We have been very puzzled as to how Roger got this cancer. He smoked and drank socially for about 15 years, but stopped completely 41 years ago. From what we read, they are the two main catalysts for this type of cancer. We never really thought about the listerine having alcohol in it, but Roger has had some gum…
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Trouble finding an oral surgeon that takes medicare
Did anyone on medicare,have issues finding a Dr to take it? We have been put through the ringer today with this. Roger is 20 yr retired Vietnam vet with medicare, "Blue cross, blue shield" and tricare for life and we still could not find a dentist to take him. Since Medicare has to be primary, they did not want to go…
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Here we go again
My Dad had a biopsy last week, it came back as cancer again. His radiation treatments just ended in April. Cancer is a monster. We will be going to Charleston Wednesday to find out the details and the treatment plan. He is so weak already. Please keep him in your thoughts and prayers. Thanks and God bless you all.
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Kidney function and chemo
Can anyone share the experience with cisplatin (spelling) and kidney function. They said my dad's was up 1.4 after his 3rd chemo. They reduced the dose and said they doctor will talk with us about this Friday. Does that mean he will have to stop chemo or change drugs? The one nurse acted like it was a big deal and the…
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Trying to move on after treatment
Hi all im new here in october 09 I was diagnosed with nasopharyngeal carcinoma im 31 years old with three children still four and a half months after treatment im still trying to cope I thank God im still alive but it is very hard to deal with what the cancer has left behind my quality of taste is not that good im still on…
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Deportation
Hi all. Just returned from the hospital and feeling pretty upbeat. I had my port removed this morning. It has been a 12 month round trip this week. It was the week before Memorial Day 2009 that my cancer was discovered. Thank-you all for your supprt and input when I needed it. I wish I had found this site before my…
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Round 3
Well today round 3 of Rad/Chemo starts. Just starting to get used to some of the pain in my eyes and my face feeling like beef jerky...:) I'm worried whats going to hit next sofar 2 days after each treatement things went bad any ideas on what special suprises are around the corner. Really irritating part is even water is…