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Two Years
Two years ago I faced surgery for an obstructive tumor in my colon. I did not know if I would live to see another Spring (my favorite season, despite the allergies). After surgery, the results came back stage IIIb, and I did a single treatment with oxaliplatin, which I discontinued, and four months of capecitabine…
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Scan today
so yea, having the ole scanxiety! I finished treatment last December. The first scan at the end of 2018 was NED. It’s been 3 months and time for the next one and of course I can’t sleep. I wish I could turn off my brain. My sister, who I dearly love, tells me I must meditate and ”see” myself as healed. I really want to...…
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Hubby got an APR
We are here at MD Anderson Hospital. Hubby has his APR last week and he is still recovering. The colon surgeon is confident all remaining cancer was removeD. This was left from what the first surgeon missed. She said they tested the tissues and most of it was dead from all of the chemo and radiation. Richard had A foot of…
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I am not a Survivor
Ill try to make this brief. Rattling the cage, only annoys people. Theres no way out and venting doesn't help. I am not a survivor. I am not a fighter. I never will be. I have spent the last two months of my life trying to find the internal resources within me to have the courage and strength to fight cancer. Its not…
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Radiation Questions
According to the doctors I have internal adhesions (scarring) from having radiation a couple of times. So they don't want to radiate me again unless it's for palliative reasons. I have a huge scar that has developed over the last almost five years since my initial surgery when I had to have a drain after due to an abcess…
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Stage 2A colon cancer Chemo or Surveillance?
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Accuracy of CT scans in Right Colon Cancer
Here's a scary one: CT scans were inaccurate in almost half of the scans examined: https://www.ncbi.nlm.nih.gov/pubmed/30870227 Of 150 CT scans reviewed, CT failed to identify primary cancer in 19.3%. Overall accuracy of CT to identify unfavorable pathologic features was 63% with sensitivity, specificity, positive…
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Back in the ER
wrll, my troublesome back pain that was a symptom of my last liver abscess is back. Since it’s gotten worse over the last two weeks and now it hurts to take a deep breath and I’m not getting as deep a breath, my oncologist suggested heading to the ER to get checked out. So I’m now comfortable in the ER after a dose of…
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Alkaline Phosphatase
For anyone who has had a liver resection, how long did it take for your liver enzymes to return to normal? I had 20% of my liver removed back in July and my liver enzymes still haven’t returned to normal, especially the levels of alkaline phosphatase. Since surgery, they haven’t been under 300 and a couple times it’s been…
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Sometimes ya gotta be the squeaky wheel
I am getting a scan on the 21st. I see online, they schedule an appt for results on the 1st. So I called and said, YOU EXPECT ME TO WAIT 11 DAYS FOR MY RESULTS!?! So, results are now on the 27th. Not much better, but better. This is the same secretary who would schedule my appts and not actually put in system, so I would…
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CEA Question
What is normal for a CEA level? I understood it was 3 and under. My doctor just called to say that mine is now down to 5.4 and that 5 and under are normal. I just Googled it and can't seem to find the answer. Can someone please tell me if I'm wrong? I'd love to be only .4 away from normal! Thanks! Jan
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Off topic share. Alash - Tuvan Throat Singers
Last night, my husband and I went to see Alash - Tuvan Throat singers. WOW! WOW! WOW! We live in a tiny rural deset town, and this was so totally unexpected and absolutely fantastic. Just saying, if you ever see that they are performing in your area, go. As I post this, I am remembering Pepe, a former member who passed…
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Dark Colored Maple Syrup?!?
Okay, this one is just for fun, but hey, you never know: https://www.spandidos-publications.com/ol/17/3/2713 It has been previously reported that dark‑colored maple syrup exerts an inhibitory effect on colorectal cancer (CRC) proliferation and invasion. In the present study, the underlying mechanism of CRC cell growth…
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Sleepless Nights
Husband diagnosed with rectal cancer 8.1.18 after colonoscopy which he had due to bleeding in his rectum. Treatment was radiation and chemo. Surgery 1.17.19; removed rectum, has temporary ileostomy. After surgery doctor stated they were able to get all of the cancer and it did not go into his other organs or seminal…
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Has anyone had rigors?
I got rigors today, plus a few bad reactions. I was like, it is just cold in here. All the staff freaked out. They put 4 warm blankets, a blanket that has something in it to get ot hotter than blankets. And was still rigors. So they gave me a demerol. The blankets did not help. I am hoping it is from my cold. They took…
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CBD products/ Medical MJ
is there any one on here that takes/took CBD oils/products/ medical mj as a complimentary treatment? while i don't believe (at the moment any way) medical mj/CBD products can cure cancer I do believe that is is a important complimentary treatment that is just starting to be studied . It seems that it is the CBD products…
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Lonsurf or Time to look for a Trial?
Hi, This is the first time I have been on this forum. My husband was diagnosed with Stage IV Colon Cancer with Mets to the liver in December of 2015. He is amazing! He has never given up because he wants to be here for our family, and he continues to work full-time because he loves his job. He has had over seventy chemo…
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Why Is The Pain Worse At Night??
I thought each day would bring less pain with the liver and colon resection but I find some days just bring a new twinge in a different place. I'm walking and moving thru the day as well as resting. It seems severe pain will set in as soon as I try to get into bed. I hate taking the Oxi but a few nights have left me in…
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Severe back pain while on chemo....
I am curreny on Folfiri plus Avastin. I developed severe upper back pain that occurs in different areas including a shoulder and both collar bones. MRI didn t show anything. Going to a chiropractor and massage. They feel muscle spasms and some areas of muscles are very hard according to a massage person . Iboprofen,…
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Chemo and nausea?
I'm wondering how many people experienced nausea with their chemo and which chemo caused it? I've had nausea several times but not associated with my chemo. I've had lack of appetite with it but not nausea. I'm wondering because sometimes people worry about that and I don't think it's typical but maybe I'm wrong and just…
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Neuropathy question
Hello Friends, I am off chemo(Oxaliplati) for about 2 months and still have numbness under my feet and hands. I am currently not taking chemo. I appreciate if anyone had same experience and share with me. Is it normal to have numbness after 2 months or takes longer to get rid of. Thanks for responses. Thanks Kadir
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Decision Made-All Guns On Board
I couldn't get comfortable this morning so I am up with a heating pad. Thought I would update. I went back to MUSC Wednesday. They took out all of the staples and I met with both of my doctors. The colon doctor said he took out 19 lymph nodes and all were negative and that his margins were good as well. He still wants me…
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Metastatic colon cancer
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Colonoscopy prep
Here's an interesting new article about colonocopy prep (abstract only): https://www.ncbi.nlm.nih.gov/pubmed/30844973 I have been cheating on the prep (eating yogurt and drinking coffee with cream) on my most recent colonoscopies, and the reports say my prep was "excellent." Thank goodness my next one is in three years. I…
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Scan results - Good news!
I have now had a follow up CT Scan. I am about 3 years from the time that I started chemo and a little over that from my surgery. I just got an email from my doctor that it was all clear and there is no sign of metastices in the chest or abdomen. I of course worried myself about it before I had it, just like I worried…
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3rd month of 6 mo. life expect
First time on the boards so please excuse me if my post is too long-winded. if I am a 57 year old female who was diagnosed in Oct. 2018 with stage 4 colorectal cancer with metastasis in the lungs. Three doctors said my tumors were very extensive and I was not a candidate for an operation or chemo (I have some exterior…
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Maintenance
Is this scheduled maintenance past or is the date wrong. Just wondered if I'm reading it wrong or why it's still posted. Maybe this was up yesterday and just missed it. Kim
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Descending Colon thickened and Free Fluid at the Pelvic (Mild Ascites)
HI! Everyone. I'm actually from another disussion boards on kidney cancer. I had my surgical in 2017 and pathology is T1a Nx Mx, with 4 cm tumor Clear Cell RCC. Yesterday, i was having my normal 6 months MRI scan. Everything was Ok on my abdomen and chest. (X ray) But they accidentally found my descending colon thickened…
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Port or Picc?
I've been having problems with not absorbing magnesium. My onc says it's due to the chemo and is not uncommon. They've been giving me additional magnesium by IV right after the chemo every two weeks. This last time my magnesium got so low that they're calling it critical and had paramedice cme by the house this morning to…
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Good news to share
I had scans this week, MRI and CT, and my results are good. I am now two years and two months out from my last surgery with NED. I'm a stage 4 colon cancer survivor with metastsis to two lymph nodes, liver and both lungs. I'm just now starting to feel hopeful. I wish the best for all of you and would like you to also know…