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Remission
Just curious. When exactly does the remission start? Does it start after your last dose of chemo? Or is it from the result of your 1st follow-up scan after the chemo? I think it should start after your 1st scan result.
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Keytruda
Is anyone on this ? And what is your expericnce? My husband has peritoneal carcinomatosis and is not doing well - they want to try Keytruda - he is MSI H and tumor burden is 28.
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A sad and thought provoking article
https://www.bbc.com/news/health-47442946 We had a handful of members on the forum, who tired their luck at Hallwang. One died out there, and the others are are all dead. It is a terrible amonut of money, and often for treatments that are not fully understood by the patients. I can't help but think that people are being…
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Just needing support! Inoperable and not curable!
It’s been a while since I’ve posted. It’s been a crazy rough few months! To summarize our story, here it goes. Husband diagnosed in Oct 2017 with cancer in sigmoid, originally thought stage 3b, but quickly learned stage 4. Mets to liver and a question mark for the lungs with multiple nodules there. Fast forward to now…
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Manapart
I'm sure that you had your oncologist appointment today and wondered how it went. Hoping that you discussed your PTSD and other issues you were dealing with. I'm hoping that you got some answers. Just let us know when you get a chance. Kim
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The Unwinding of the Miracle: A Memoir of Life, Death, and Everything That Comes After
I just finished this memoir by Julie Yip-Williams. It is a heart break and a triumph. It is a beautiful book about her struggle with metastatic colon cancer at age 38. I recommend this book to everyone, no matter what stage you have. She tells us to live every day until we can’t. i hope to have this clarity when my time is…
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Bowel cancer
I had a Iliostomy for 10 months. Took a while to get used to.Rolling over in bed then leakage. One good was i had a plastic container so i could empty my bag any where Keep hand towels and sanitser with you. I ate most foods but i took Lopiramide tablets, they were capsules that slows things down and you need to cut the…
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My Husband My World - by YROSS
"My Husband My World is falling apart, I can't breathe..we had so many plans and yesterday we were told CEA is 3010, after Scan Mayo tells us the cancer is growing along with new spots, mostly in liver and left lung...he had emergency surgery in oct/2017 has only had 6 weeks off of chemo, last line of therapy is ironatican…
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Waiting to get next scan March 15th
Hi all, If it seems like I only pop in occasionally, you are right. It's just too tough for me. I apologize for not coming here more often and offering my support. I feel like I'm treading water and just barely keeping my head from going under. Obviously it's depression. However, I still feel like I am recouperating from…
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Xeloda, what should I expect?
They came in today, shipped right to my door with free samples of Imodium and warnings not to touch the pills with my hands. What should I expect when I start both this and radiation this Wednesday?
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Xeloda and new mets
Hi all My sister has new mets being found (liver/lungs), and existing mets growing while on Xeloda. Her Onc is suggesting gamma knife type surgery for both. In your experience is it likely they will keep her on Xeloda? Thank you
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Thinking..thinking...and THINKING
So many of us here with so many decisions to make. I know each one of us has different lives..different stories..different fears and hopes. This massive surgery I just had left me more aware of so many things. As many of you know, I lost my husband to this god awful disease three years ago and now I have the exact same…
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2 years in stage 4, insurance question
Hi all, So my sister is 2 years post diagnosis. Her Cobra insurance is maxing out. From the research I've done, it looks like she might qualify for Medi-cal after 25 months of disability. Does anyone know about this? She is only 43. I think her latest paperwork sent into disability said she wouldn't be able to return to…
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The most difficult decision I will ever make
I have pretty much 5-6 days to make a decision about my treatment going forward. I have spent many hours and days researching and speaking to many people about a variety of issues related to my specific diagnoses. Thinking and obsessiving a lot. The particular compromising challenge for me is that I am mentally ill. I…