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Colorectal Cancer

Archives for August 2018

Busybody Lately
Had been busy lately doing bracelets, pendants and rosaries to sell in local stores in town. All made of genuine stones such as Amethyst, Citrine, Peridot, Jade, Garnet, Tiger Eye, Black Onyx...it is fun to have something you like to do and make extra money and meet new people after going through hardtimes. Being a cancer…
Stivarga
I am trying to find out has anyone had any success on Stivarga and what side affects did you experience. My husband has stage IV Colorectal Cancer and they want him to start on Stivarga. He cancer has spread to his liver, lungs , spleen and lymph nodes. My concern and what I have read is that the Stivarga can cause him to…
Post Surgery Questions
Hey Guys, My Abdominoperineal resection (APR) Surgery is scheduled for next Wednesday the 5th and I'd like to ask some opinions from some of you LAR, APR, colorectal surgery survivors ;) I know everyone has "different experiences and recovery rates but these are just somethings I've been thinking about. 1. How long after…
Cancer Humor
A very close law enforcement friend of mine (who is quite the character) shared his pre-treatment colonoscopy story with me: My friend was not only awake for his colonoscopy but totally alert. As the doctor began inserting the camera, he yelled "STOP" and the doc asked him what the problem was. My friend explained he was…
POMEGRANATE PUTS CHEMO & RADIATION TO SHAME
https://www.energytherapy.biz/2017/10/26/pomegranate-puts-chemo-radiation-to-shame/
You don't look like you have cancer.
I took a car service home from the pet scan. The driver asked why I was there, told him, and he says, you don't look like you have cancer. I get that a lot. In fact, at my pre-surgery vitals a few days before my liver resection, the admin said that to me when we got to the point where we got to why I was there. What do you…
Two weeks in the hospital
I’ve been two weeks in the hospital and I’m getting out today and going to Rehab to regain my strength. We’ve been chasing pain in my butt for a few months. It was hard to pin down. Good news was that it wasn’t cancer. It was an infection turned into an abscess which was causing pressure pain. Finally a drainage tube was…
CT scan results
So prior to changing my chemo from avastin, irrintecan, and 5-fu to avastin and Xeloda, my oncologist ordered a CT scan. I'm NED! I'm so relieved. I was so scared that the cancer has come back in the short time since April. Now I'm ready to continue the chemo to the finish! K
Colon cancer and Liver transplantation
Hi everyone, I have satge 4 colon cancer and recently had colon tumor removal surgery due to obstruction in colon And still trying to recovery. I wonder has anyone had liver transplantation with primary colon cancer. My oncologist at MD Anderson told me liver transplantation will not work form because my primary tumor is…
Six month scan results
It’s been six months since my last encounter with the University of Michigan Health System, Cancer Center. The blood draw area was all new. New design and reinvented. They had numbers now, instead of calling you by name. They also explainef that they can’t leave an IV in and use it for both the CT scan and blood draw. This…
Avastin and Xeloda
Well my oncologist is stopping the Avastin, Irinotecan and 5-fu because of low WBC. He's ordered Avastin and Xeloda. I'm not sure how long i will be taking this stuff. Probably the full 12 treatments. Has anyone been on this combination? I was on Xeloda pills and Oxiliplatin previously. I tolerated it ok. I only had a few…
Is it really necessary to flush your port every month?
Now this is an interesting question, and you will get many of different anwsers from oncologists and nurses who deal with ports everyday. While the medical device companies have set requirements like every 30 or 90 days to keep the port functioning and free from infection, there are many in the medical field familiar with…
Stage 3 or stage 4??
My doctors have told me that I’m “stage 3/ kinda stage 4”. So far I’ve done six weeks of 5fu and radiatio. I’m scheduled for APR surgery tomorrow. So, today I found out what the “kinda” part of my staging meant. My original scans showed bilateral adenocarcinoma in my inguinal (groin) lymph nodes. When I asked if they are…
Thank you and wishing each of you healing!
It has taken me awhile to come post on the board. My husband passed away July 30th. He fought so hard with this awful disease. The last week - things changed rapidly- and I have been going through the daily must haves since then. I cannot express how helpful this community was to both of us and how I plan to still use it…
whuch hospital
Hi. I have Stage 4 RECTAL cancer. My oncologist basically said we will keep you comfortable and stay on chemo. Nothing can be done with lung nodules. I have narrowed it down to Roswell in Buffalo, Sloan Kettering or MD Anderson for my 2nd opinion. Anybody recomment one over the other for rectal mets to lungs?
Roswell or sloan kettering for stage 4 RECTAL cancer
Rising CEA
Hi all! When I was diagnosed was given "possibility" of cure with full treatment. Chemo/radiationX6weeks, surgery (laparascopic assisted APR), and followup chemo Oxaliplatin and 5FU pump for 4 months. Did all that. May CEA 3.8, down from 4.7. Last CEA 4.0. Research shows if CEA doesnt normalize after surgery it is highly…
trouble with port
Has anyone else had difficulty with their port getting infected? I am on my second port since May , the first one became infected after 3 rounds of Folfox, had another put in early July and now it too is infected. It is almost as if my body is rejecting it lol--but of course I am told that is "nonsense". It seems to alway…
Sigh...I think I have made my decision.
Hi gang! Been a while since I have checked in. I think I have made the decision to stop aggressive therapies, and switch to palliative care. My Onc wants to start chemo again in a few weeks. I do not want chemo again. We tried Cyberknife on one of the liver mets, doesn't seem to have worked. The other, larger met, is in a…
I'm still hanging in there -- no chemo
I just wanted to give everyone an update that I feel my health has continued to improve. A little background, diagnosed stage 4, at age 34, after nearly 10 years of surgeries, radiation to the lymph nodes in my neck, and years of endless on and off again chemo, I finally had enough. Not only had my oncologist ran out of…
To the Ft. Meyers FL Patient:
I am so sorry I can't remember your handle but I just have to say THANK YOU!!!!! I reached out to your oncologist and he still has a couple of HAI pumps left and is switching to a new one. I have reached out to so many centers to no avail and Thank God this doctor is doing this in our state. We are scheduling a consultaion…
The short focus
"Living in the now" has been a valuable technique for many on this board, and I strive to accomplish that goal every day. However, I want to share another technique that helps me, and that is what I call "the short focus." I set daily goals and on some days I limit my focus on the future to a date certain. For example, I…
Chemo sucks
It sucks in so many ways. Yesterday I was to have my 4th treatment and my WBC was 1.8 so I have to wait a week. It sucks because on the one hand, I'm happy to have a break. On the other hand, it makes my 12 treatments even longer. I've developed sores in the worse places... ugh. My fatigue is overwhelming some days.…
Have any of you had success with immunotherapy for recurrence?
Have any of you had success with immunotherapy for recurrence? My recurrence is the first post scan chemo, only 6 weeks later. I am currently in 3 stages of grief, denial, depression, and anger. Angry that the last 5 months on the new drug didn't work. So I dealt with the side effects, gained weight, have brown hands, lost…
Can chemo alone remove liver mets?
Has anyone had small liver mets go away with treatment when they can't be removed?
new member
Hi Everyone! First time posting...we love a long history dealing with Stage 4 colorectal cancer. My husband was 45 at diagnosis, he was a stage 1 initially and 10 month later became a stage 4 with multiple lung metastasis on both longs. He is 53 now and he is on the second line of treatment. He had 44 rounds of Folfiri and…
Adjuvant chemo
My wife was diagnosed with colon cancer, stage IIA in June. Surgery was successful, and no lymph node involvement or metastatis. CEA 2.4 post op Her first oncologist appointment was today, he recommends surveillance, but we asked about adjuvant chemo just in case. He said he doesn't recommend it as it would only make a 1…
When to find new oncologist
Looking for advice --Stage 4 colon cancer with lung mets here--had all surgery and biopsies done at a fantastic hospital in Virgina, was there visiting my daughter and my appendix ruptred leading to discovery of tumor in cecum. Surgery was awesome, all moargins clean, no nodes, one mets to omentum that was removed. 2 mets…
Searching for free/lesser cost cancer mutation test
Hi guys. I know you all have heard of testing our cancer tissues to know what type of cancer mutation we have (I know there's the KRAS wild, the BRAF, etc.). Do you know of any place that offers that for free or for a minimal cost and how much if you know? And do they allow overseas sampling? Because I want to test what…
Question unrelated to cancer
I have a question that is not related to cancer. I am posting it here because of the exposure and on the off-chance that someone here may be an amputee or know someone who is. Two weeks ago my 59 year old brother-in-law was standing inside a bank when a mentally unstable individual intentionally drove his vehicle into the…

Colorectal Cancer

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