-
more than 3 years...
Husband had CT today - 3 years and 9 months after stage 4 diagnosis with mets in liver. CT looks clear... details on tuesday... but - hurray - he still seems to be NED Hurray Petra
-
Winter Marie
Are there any updates on Winter Marie? I'm still pulling for you and praying that things start looking up for you! <3 Lin
-
Rather creative use for a colostomy bag:
Check this out,esp if you're an ostamate: www.nydailynews.com/news/crime/s-man-hid-stolen-steaks-colostomy-bag-deputies-article-1.2323860
-
Vein Damage?
I hate to sound like a whiner but I get so freaking sick and tired of all the little extras that come along with cancer. It's a life long sentence as it is, in so many ways. Which one of us won't worry about it forever? None, I don't think. So even if it never rears it's hideously ugly head again we'll never know if or…
-
Another Cancer Faker
Some people are messed up for sure. http://www.nbcnews.com/news/us-news/pennsylvania-beauty-queen-arrested-allegedly-faking-cancer-n408416
-
surprisingly good scan report
It was way better than I expected after all the Hell I went through over the past 2 months. The tumor between my IVC, liver and kidney that we did 4 rounds of SBRT is gone. The lung tumor and the chest wall tumor on my back that was ablated aren't even mentioned. The liver tumor that I did y90 on and ablated last December…
-
Dark days. Need Hope
As the main caregiver to my long time partner, this disease and its horrors are starting to consume me. Seeing the man I have known and loved for so long detiriorate so quickly is breaking my heart. My wonderful and corageous man was diagnosed 2 1/2 months ago with stage 4 colorectal cancer with spread to peritonneal…
-
Pain management
My husband has been in mostly uncontrolled pain for about a month now. He's talked to the Onc about it and he is saying that with the amount of morphine he takes a day, nothing else would work with it or instead of it. He takes 180 mg (120 mg extented release & 60 immediate release) in the morning and supposed to take the…
-
Fatigue & Hair Loss
I had colon surgery in March and I am so tired but not anemic my hemo is 12. I notice my hair is getting thinner too. I was extremely lucky the cancer was stage 1 and did not require any further treatment. Is this normal for me to be so tired and for my hair to be coming out? Any suggestions? I am so new to this and would…
-
Supporting friend and emotional health
I have been quiet lately. I guess I have been silently spinning a bit out of control for the last couple of weeks. As far as I know (being in between tests) I am still NED (13 months since the end of chemo, 22 months since my small recurrence was surgically removed). We are planning an amazing month long trip to Costa Rica…
-
waiting game
Since my brother's liver tumor grew a little bit while on irinotecan, the doctor decided to try to add 5-FU back, but only via IV, not with the pump. My brother had the first 3 doses of chemo, but after the 3rd he developed severe diarrhea that Lomotil AND Imodium didn't help. So he went for the 4th chemo and the doctor…
-
I am going to be a guest speaker At local Relay for Life - UPDATE
On Thursday evening I recieved a call from a gentleman asking me if I would be the guest speaker at the opening ceremony for this years local American Cancer Society 'Relay for Life' on Saturday. Well, that was a surprise. I guess two different people had put forth my name as an inspirational 'survivor'. I actually don't…
-
Karin ..lilacbroller?
wondering how you are doing? I haven't seen any posts in a while, but I haven't been on much so maybe I missed something.
-
Prayers, good vibes, any kind of loving though for our dear friend herdizziness - Winter Marie
Winter has just been told that her bili is high, and that she is in liver failure. After a fight between her Doctor, nurse and pharma, they are going to try Erbitux again. We need to rally around our friend with all the prayers or good vibes we can muster. We all know Winter is a fighter, and she will do her part, so we…
-
Stage 2a colon cancer - Deciding on chemo with oncologist
My husband had surgery last month to remove 12 inches of his colon and I am grateful that he is recovering well. The surgeon told us that his tumor was T3, N0, M0 which is stage 2a. We are seeing an oncologist tomorrow and getting a second opinion at MD Anderson. i noticed there's a lot of disagreement among doctors on…
-
Stage 4 and 4 Folfox treatments in
We found out that my beloved bf of 8yrs has stage 4 cancer 2 months ago. Doctor started him on chemo about 2 weeks after diagnosis as they first wanted to control the chrons flare up he was dealing with. It has so far been a crazy and heartbreaking ride. 34 just seems way too young to have to deal with this. His cancer is…
-
How are things going for you, Hippiechicks?
I've been thinking of you, and hoping that things are moving along. Keep us updated when you can. Sue - Trubrit
-
Today I celebrate another clear scan and CEA of 0.6
I am beside myself with joy . This makes it 13 months since my liver ablation, 13 months with NED. I consider myself blessed. I have worked hard to get to this point, and will continue to work hard to stay there. Happy me!
-
surgery decision help
Hi - I was diagnosed with colorectal cancer at the beginning of April this year. I immedietly went straight to chemo and radiation because they wanted to increase the margins for surgery because my tumor was in the lower rectum. We finished that treatment 6 weeks ago, and they recently had me in for a procedure to see the…
-
Oral care
Just finished four standard treatments - 5FU and Oxy - after proximal colon resection in May (Stage IIIc) and have been getting small oral ulcers after each treatment. I switched to a baby rubber toothbrush which helps a lot but wonder if there is some other toothpaste (I am using Crest) that is less likely to irritate my…