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Maxiecat?
Just wondering how you're doing. Haven't seen you on here for awhile. Big hugs coming your way~AA
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Need some help!
Hi, it's been a while since i have been on here. My husband has stage 4 colon cancer, he is in his 5th year fighting it. His body has become toxic to all chemo that is available to him. The oncologist has decided to send him to University of Penn hospital for a clinical trial consultation. I know i need to ask questions…
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Fungal infections
Have any of you gotten fungal infections from the chemo? My brother, all of a sudden, is dealing with this. Just wondering if you did, what did the docs give you. He is using a creme right now. We'll see how that works. Is this normal for chemo patients? Lin PS He is only on 2 chemo meds right now. He asked for them to…
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Had to stop Regorafenib
I had to be taken off regorafenib after 10 days due to jaundice and various liver numbers being too far out of whack. I didn't even bother arguing with the doctor that yellow was a good color for me . My platelets fell too, but not enough to be worrisome. I missed out on all of the other side effects. In 2 weeks i see my…
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PET results tomorrow/chemo combo
Tomorrow at 215 p more or less, I'll get the results of my PET scan. Too say I'm a little nervous would be a huge understatement. I should find out when I'll be going to MD Anderson as well. Looks like the chemo combo at this point is going to be FU, Folifri and avastan. Had FU last time. Anything I need to prepare for on…
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no surgery
They fkund 3 more spots on left chest wall so will not operate. What a waste of time and money.
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Remember us?....=)
Gosh, I'm so sorry I haven't posted on here in a very long time. I've had issues with my rotator cuffs (in both shoulders) so it has been kinda hard to get online for very long at one time, but I'm determined to do an update on Jason's condition, especially since it's all pretty awesome news! I won't go into the long…
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Cimetidine/Tagamet for Janderson
Jeff, I wanted to make sure you saw this, so am starting a new post. Tagamet is an OTC med that you can pick up at any pharmacy. It's an antacid medication, but for some reason seems to make it difficult for stray cancer cells dislodged during surgery to stick to the surrounding tissues. I don't understand the mechanism…
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Wow what a day...
Went to Ann Arbor for follow up with the surgeon. CEA is back down to 1. And I have a letter to go back to work part time (lifting restrictions of course). I'm looking forward to surprising my co workers tomorrow. Surgery on 2/7. Home from the hospital on 2/13. Off all meds on 2/16. Back to work part time from home on…
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Have questions, need help please
I woke up one morning with severe back pain in my sacral region, bad enough I could barely walk, and blood in my stool. It took me a few days to be seen. I was checked for anything that could cause the problems seperately, but everything came back normal and clear. The doctor said I show signs of Spinal Metastases…
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IV nutritional therapy
Has anyone tried iv nutritional therapy for pre and post chemotherapy? Oh have read that it really helps with quality of life during chemo. I am on oxaliplatin and irinotecan for stage 3 colon cancer. Any advise would b helpful.
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Thinking of you, rls67
Just wanted to let you know that you and your kids are in my thoughts, and the thoughts of many others here too, I'm sure. No need to reply if you don't feel up to it. Many hugs, AA
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Today's CT results :-(
Met with my doctor this afternoon to get my CT scans results and the news was not good. Several liver spots that were absent from last 3 scans are back, I have a new tumor on my adrenal gland (on top of right kidney). With that news I'm now schedule to get a Pet Scan this Thursday along w/ an MRI, The MRI is for some bad…
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CT results for Laz
The good news is that the liver and the lungs are clear. The bad news is that there is some abnormality in my left seminal vesicle, which is a gland next to the prostate. The doctor says it is very rare that rectal cancer would spread into this gland, especially since my cancer was far away from this area, but anything is…
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TPN (Total Parenteral Nutrition) and venting tube with Palliative Care - Erbitux and Irinotecan
My father has been placed on Palliative Care with TPN (Total Parenteral Nutrition) and venting tube He is home - Not impressed with "Palliative Care" He is trying Erbitux and Irinotecan as his last resort, but not really sure its working, he hasn't had any scans. He has had a pretty bad rash and extremely fatigued.(which…
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Flu...
Ugh, I got the flu and it's kicking my ****. I've had a 101 fever for 10 days, sore throat, coughing, nauseua, I've lost 10 pounds, and missed 7 days of work. I have a CT scan set for today, I'll get results tomorrow. All I do is sleep, and not very well, go from my bed, to my living room, to my office, back to bed, etc.…
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PhilieG
I believe your 10th aniversery of stage IV diagnosis is either today or tomorrow. So I just wanted to say congratulations and make newbies aware of your longevity and wish for another 10 years.
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Erbitux resistance
Anyone had resistance to this drug if so what were signs. How long had u been on it. And what was your next option
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New to the network
I just joined the cancer network because Phil64 encouraged me to do so. Thank you Phil. I am almost two years into my journey with stage IV colon cancer. So far, I have managed just fine, but I decided that I could use some support from those of you who actually understand as only a patient can. I probably won't " talk "…
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Surgery on Hold
Treatment on hold until I can get into Va as they will not pay for outside treatments. So waiting for appointment with them hope its soon. Need to go with them as eliminates out of pocket costs other than meds that will take some stress off financially. also hear one of the Doctors very blunt and will tell you like it is…
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what does this mean?
Periductal lymph node containing metastastic adenocarcinoma.... Everything I'm pulling up on periductal refers back to the gall bladder, Just had it removed.. had a PET scan today get results next Friday. I know adenocarcinoma is cancer but is it in the bile duct, ??? I need a medical degree :) I'm thinking this isn't good…
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Erbitux vs avastin
Hi We are awaiting results for KRAS mutation test for our second line chemo treatment. I understand that if mutation type is wild then we can add either avastin or erbitux along with FOLFIRI. Is there any data on which one is most effective? Also in terms of side effects which one is better? Your inputs on any…
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Smokeyjoe, Joemetz, other MIA
Was happy to see some recent posting from Craig. Havent seen smokeyjoe or Joe around in awhile.
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Major turn of events Update, detour in the road
Many of you have been following my post for the past couple of weeks with all of the drama and let downs. Well I am here to tell you it has been the ultimate roller coaster ride. I went from thinking I had kdney stones to having 3 mets and thing they could be surgically removed to a follow up MRI which revealed a fourth…
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Recipes
Martha Stewart has a few good recipes on her website. Look at Cleansing Broth, Detox Soup and Smoothies.
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Chemo Changes - Still Effective?
My doctor wants to make some changes to my chemotherapy, and I'm wondering if it will still be effective. A small bit of background - My 6th FOLFOX treatment was delayed a week due to low lab counts (specifically neutrophils). My 8th one (the current one) was also delayed a week due to low counts. This time they gave me a…
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More good News
The results from Pet scan showed the spot on lung not cancerous and the they are going to do surgery possibly next Thursday on colon
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Just out of the hospital
I just got home from the hospital. Really long week with over ten hours of surgery last Thursday. The surgeons were amazed at the results. I have no good explanation. Still on pain meds and partial bowel function, passing gas but not fecal matter. There is an earlier post that gives details of how the surgery was plagued…
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Waiting Game Pt 2
HI All! I will be waiting a little longer to hear about my results from USC. My colon shut down on Monday. It was due to a blockage. So far, no more information then that. Laurie took me to the hospital at 0030 Monday. The local Mountain hospital gave me a muscle relaxant, took a CT from the oldest CT machine I have ever…
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Just Asking For Opinions
Hello All, Just looking for opinions and/or our resident insurance guru, if we have one. As many others have done, my former company has decided to no longer be directly involved with supplemental health insurance for those of us on Medicare. I have received & tried to interpret(Ha, Ha!) all the new info. as well as…