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Happy Birthday (22nd Dec) & Happy Christmas to me!
Just got back from the Oncologist and my CEA is .5 the best its ever been. Something was up in my liver, but he said he'd watch it, patted my shoulder and sent me on my way. Time for a spinny dance . Colonoscopy next month, but no more trips to the big city for another three. Yep, I'm a happy camper for sure. Thank you for…
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Any good stories with Sir Spheres?
In 2011 my husband was diagnosed with Stage 4 cancer with 5 mets to his liver. He had liver resection but the mets returned. He has had more chemo than we can count, radiation to his liver(2 of the spots) and now they want to do Sir Spheres. Meanwhile, he is getting ready to start back on chemo after a one month break. He…
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Need some advice
I haven't been on here for a while, but this was the first place i thought of when i need some advice. A dear friend of mine just called me to tell me his father "might" have cancer. They are pretty sure it is cancer, but they have not been "officially" told. Although i am dealing with my husband's cancer every day - i am…
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question about chemo
Back in sept of this year, my wife had a ct scan after three months on folfiri and avastin. The scan showed minimal growth, about .5 percent. The doctor took her off folfiri and put her on zaltrap and xeloda. Now, after another scan right before thanksgiving, the cancer grew 50%. He wants to put her on stivarga, which…
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Christmas/Holiday Greetings post for all to participate in
Dear friends, May this holiday season bring you peace in you life. May the difficulties of this past year be overshadowed by sweet memories of the past. May each of you feel the love of your friends and family. Hugs to each and every one of you, Marie who loves kitties (and you)
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Apologies for no Christmas card list
It has been a tradition here on the board to assemble a Christmas card mailing list for those who want to participate. It was originally started by a very special lady. When she passed, I took it up and did the list for several years. I apologize that it didn't get done this year. With my sister's passing and trying to…
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Top 13 Holiday Tips for Patients & Caregivers
Found this excellent blog on the Colon Cancer Alliance web site: Top 13 Holiday Tips for Patients & Caregivers http://ccalliance.org/blog/13-holiday-tips-for-patients-survivors-and-caregivers/ The holidays can be a tough time of the year when you’re dealing with cancer. Check out this list of personal tips from our Patient…
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One for the road...
Ok, thought I had nothing left to offer here but then this came along, I feel it would be negligent if I didn't post this. This isn't CRC but the response of this girl dying in hospice is too remarkable to ignore, also this herbal is pretty low in toxicity with side effects that can (apparently) be managed. There is a huge…
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How long to start Chemo? Any advice from someone who has been there?
I was hoping for a little advice from you guys. I was diagnosed with stage 4 small bowel adenocarcinoma on the 1st of December when I had a tumor removed from my illeum and and bowel resection.. The oncologist at the hosptil where I was diagnosed wants me to start chemo as soon as possible which would be Dec 18th. I can't…
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5000mg per day?
After 4 rounds of Folfox my oncologist is concerned that the numbness I feel in my toes and fingers is getting serious. I was gonna get two more rounds of Folfox, but now he just wants me to do 5 rounds of 5000mg a day for 2 weeks and 1 week break. He showed me the charts and calculations and it looked acurate. I'm 175…
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"Slowly Learning to Live with the Physical Pain of Cancer"
Note: I need to talk here and this could be one of my last chances to write a good post. Thanks for listening. What does it feel like when the body starts dying? I’ve asked myself that question the past several months as I’m battling my 4th recurrence. There are times where I feel like my body feels like it is physically…
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should we wait?
My wife was told on thursday the dr. is putting her on stivarga because zaltrap and xeloda didn't work. In fact the cancer got worse. He said he is out of options if the stivarga does not work. He then said he would contact the cleveland clinic or sloan kettering. My question is, should we wait to see if this new drug,…
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Need help mom had large intestinal issues I'm worried-UPDATE Update
The doctor is concerned. She is having uncontrollable diarhea. He says there is a problem in her large intestine and has orderd a biopsy. I am worried! Any advice! UPDATE All of her tests were negative. She has to have a colonoscopy and biopsy. Her last blood work and scans in May were fine. I don't understand why ahe…
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Back
I haven't been around in a while. No particular reason, just everything in general. I'm a caretaker and stumbled on this site about a year ago. Brief overview. Wife was diagnosed with Stage IIIA back in Dec. 2012. After 28 rounds of chemo/radation, then colon resection, then 12 rounds of FulFox we are done. She just had…
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Don't know if any of this is helpful but if you have a few minutes to investigate
maybe check out: Imprime PGG (esp if KRAS-mutant); Masitinib; AZA197; CRLX101; Lenalidomide; TAS-115 each od which rec'd some decent press recently
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Treatment centers
I have recently been diagnosed with stage 3 colon cancer. I am looking at several treatment centers. I am looking at Moffitt and UM Sylvester. Has anyone had any experiences with either place?
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Need input
I haven't posted for a while. My husband has now been cancer free for 2 years. He had J-pouch surgery 2 1/2 years ago after Dx of stage 3A rectal cancer. He has been clear every since but had a PET scan this week and it showed moderate activity where the colon was resected. The Onc. Doesn't seem real concerned and thinks…
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bummy news today
I'm stage 4, on my 4th recurrance and started chemo 6 weeks ago. I'm on Xeloda (3 pills morning and night), Irinotecan (40% strength to keep diarrhea at bay), and Avastin. After the first cycle my CEA went from 18.6 to 15.9. A good drop. Second cycle my CEA went back up to 18.4, not good. Third cycle, I had a bad cold and…
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Tedd? Craig? Phil?
Just wondering how you all are doing. I think of you guys often, and hope that there are plenty of bright moments in each day. I'm sure I'm not the only one here doing that...we miss you!
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Received bad news yesterday
A little background on my wife. She was diagnosed in oct of 2012 with stage 4 cc, with mets on the liver and lungs. Went through 11 rounds of folfox, 10 rounds of folfiri. The mets on her liver doubled while on folfiri. The Dr put her on Zaltrap with Xeloda. After one month on that combo, she started having shortness of…
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Can't seem to catch a break (Update at bottom)
My brother went for his follow-up with his oncologist on Monday. His heart rate was fast, his leg was swollen and his INR was very low. The oncologist decided to readmit him to see what was going on. We found out that the discharge nurse/doctor at the other hospital screwed up (I knew they were stupid). They discharged him…
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Arizona Cancer care
Hello all: I've been at this since 2008. I am considering a move to Scottsdale, AZ. I have noted a Mayo Clinic there but I was interested in anyones personal experience with Cancer care in the Phoenix, Scottsdale area. I will continue with Xeloda/Avastin and likely be considering future surgeries. Any advice or personal…
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why I have hope
http://www.vancouversun.com/touch/story.html?id=9236357 My stem cell recurrence s I will have a drug for un 10 weeks not years. I am very well on map ketogenic and healthy and happy Godbless us all no matter your treatment. Read it and have hope.
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How long can you go without a bowel movement? Update 12/18/13
Hello all. My husband was diagnosed just about 1 year ago with stage 2 colon cancer, large tumor caused complete obstruction, successful resection, 6 months of Folfox (oxaliplatin cut out after 5 treatments due to obstruction and hospitalization). He had extreme constipation throughout treatment. Last chemo in July, clear…
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Eating chocolate and other 'bad' foods.
I just posted this on another thread, but thought I'd start a new thread and get others opinions. After my bowel resection I asked my GI Doc about taking Pro Biotics, his advice was to go out and order a big steak. My Oncologist on the other hand, when I told him I was buying a box of my favourite chocolates (love…
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Just because we have cancer we are not immune from other problems
hi everyone , it is unusual for me to post other than an occasional reply. I am in a position that most here would envy. I have made it to nearly 15 years cancer free after aggressive stage 3 c colon cancer into 6 nodes. I had some pretty awful chemotherapy , namely levamisole an immunomodulator most commonly used by vets…
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Survey
Just got an email from Gretta about a survey that CSN was conducting and it came in my spam e-mail. Please check that so you can take the time for the survey. Wish that CSN would have given us a heads up because I've obviously deleted the previously sent survey. So much is sent to my spam e-mail that usually I'm just…
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Confused!!!!
Hi! Hope all is well! I just had a follow up MRI post abdominal hernia surgery and a liver ablation! They spotted something else on my liver. The doctor gave me myy options today: Another ablation, obe technique (Spelling?) up thorugh the groin and kill it at the root hmm never heard of this one, chemo, or a total…
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Thank you, John23
I wanted to say thank you for all of your information regarding TCM. I know you, as well as Pete, have taken heat on your alternative posts but my wife and I thank you for your persistence. A little background for you as well as others before I explain the post. My wife was diagnosed in September of 2010, 5m after the…
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HELP!!! Having issues while on "Maintenance Therapy"
I was diagnosed with stage iv colon cancer in april this year. Was told the the Xeloda (2 wks on 1 wk off) worked and now in remission as of October. The Oncologist wanted me to remain on the Xeloda for maintenance therapy but increased the dosage from 3 in am and 3 in pm to 3 in the morning and 4 in the evening. Now I am…