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Colorectal Cancer

Archives for July 2013

Something for side effects.
Just wanted to mention and get some other's thoughts on taking something to help with side-effects of chemo. I am currently on the FOLFOX treatment and the effects (fatigue, loud noises bothering me, neuropathy, muscle spasms and cramping, and nausia) seem to be hitting me pretty hard. I got the standard compazine for…
Caregiver needing advice on taking mini-vacation
Hi Everyone, Mom has been fighting metastatic colorectal cancer for two years now. It came back with a vengence in April. The oncologist at the time told us that if she responded well to the chemo regimine it could give her another year of life. My dad and I have been with her every step-the good, the bad, and more often…
Horrible Mouth Sores
Hello to my support group! While I know mouth sores are to be expected with some Chemotherapy Regimines, I need to know if anyone has words of wisdom on how to deal with them. Mom has had mouth sores in the past, but hey are now getting worse with the regimine of Folfiri and Zaltrap. If she drinks liquids it hurts. Her…
Weird question re colonoscopy prep and/or pre-procedure anxiety
Last night, doing my colonoscopy prep (and continuing today, post-CLEAR colonoscopy) my sense of smell went on super-overdrive. My husband came to bed and I asked him if he'd eaten any garlic yesterday. He'd had a piece of pizza for lunch, and was reeking of it (to me.) I've never noticed this on him before. Today at my…
Laparoscopic or open surgery?
I talked to 4 surgeons so far. The older ones want to do open surgery to remove my rectum and anus and do pernanent colostomy. They claim there is better visibility. The younger doctors want to do laparoscopic, claiming the same thing and that it's easier to get around with a robotic arm in the narrower male pelvis. I…
Just had a consultation.
Just had a second consultation with the surgeon. I told him how much the radiation and Xeloda helped. He felt my tumor in the rectum and said it shrank from 5cm to 3-4cm, but still will shrink a little more. They agreed with my oncologist to go on a couple rounds of Folfox as of next week. MRI at the end of August and…
Big Billy Is In the House
“You like him….you love him….you want some more of him!” Big Billy is back in the house, LOL! It’s been awhile, huh? Like many of you, I’ve been floor boarded with the recent chain of events concerning our boy Craig… I feel a special kinship towards him, because he was the guy who breathed life into me and made me tangible…
Miserable family time...
When my dad was dx with Stage 4 colon cancer back in January this site was my savior. I dont think i would have made it through if it werent for the knowledgable folks here that serve as inspiration and angels to me and my family. I come back because I am again lost for what to do... My Dad was dx in January it came as a…
T-CELL BREAKTHROUGH - I READ THIS TODAY AND WANTED TO PASS IT ALONG.
Cancer researchers worldwide are heralding the results of a "sensational" new study, in which a team from the University of Pennsylvania showed that a cancer patient's own immune cells can be genetically re-engineered to target and kill cancer cells. Though it's a preliminary study involving only three patients with…
Mags
Hi Mags. I've added you to the growing list of people to worry about. Lol. I've noticed you've been quiet since Steved passed. I'm guessing that has thrown you for a loop. Hope all is well with you. I can understand why some members are staying away. There's been so much heartache here lately. Take care, Chels
Craig? We're missing you
Hey buddy we are all a bit on the worried hoping it isn't your pain keeping you from us. I personally am trying to imagine you are simply taking a week off of work and not around a computer. At least that's what I'm hoping for rather then you being in pain. Or if the pain was too much the doc's got you in the hospital and…
Loss
We all have losses of various kinds. Be it the children leave, or become estranged. A spouse or significant other Dies or leaves via divorce. Whatever the way , loss is indeed hard. My wife Josephine and I were married 56 years last month. Yet I will soon loose her. In a way I have lost her already, since she is no longer…
Loss
We all have losses of various kinds. Be it the children leave, or become estranged. A spouse or significant other Dies or leaves via divorce. Whatever the way , loss is indeed hard. My wife Josephine and I were married 56 years last month. Yet I will soon loose her. In a way I have lost her already, since sshe is no longer…
Dendritic Cell Treatment
Hello, all. I just started dendritic cell therapy, through the Dr. Nesselhuts' clinic in Duderstadt, Germany http://immune-therapy.net and Dr. Raymond Chang in New York City at the Meridian Medical Group. http://www.meridianmedical.org. I will be posting about my experiences, and results, on this site, throughout…
Kennyt and Beebee!
How is your treatment going, how is the adjustment? Laz
Vacation was great but all the results were bad.
Came home from Vacation (OBX) , And all the bad new dumped on me. My CEA level is over 100, PET scan showed a spot on my liver, And the doctor said I need another liver resection so as possible. The spot on my liver is blocking a duct, He is going to remove 30%. But this time he has to cut me open because I have to much…
Ferritin Level
You guys aren't going to believe this but Steve is experiencing an unusual problem. I have mentioned in my recent posts that he has been experiencing extreme fatigue since taking a chemo break from May 14 - June 27. I noticed it when we were in Vegas. He seemed to sleep a lot. It got progressively worse to the point of…
Does folfox get worse over time?
I just finished my fourth treatment and have 8 to go. Do side effects get worse? I have neuropathy especially right after infusion and am tired all the time. I take naps which I never used to do. I may have to go back to work so I'm a little worried. What has your experience been? Thanks in advance
CALLING FOR CRAIG THE SUNDANCEH!
I'm relatively new to this forum and most of you know him much more, but it's not secrete that you get attached to Craig fast. We haven't heard from him in days and we know that he is going trough really hard times. So please, Craig check in or anyone who is closer to him let us know what's up if it's appropriate. KEEP…
Sacral fractures
In response to BrokenJ, I too have both left and right sacral fractures caused by pelvic radiation in the winter/spring of 2012. The right side fractured in Oct of 2012 and the left side fractured July 2013. In pain, using walker, cannot sit. Quality of life is poor. Only leave home for doc appointments. The right side…
Why does Chemo cause Hernias?
Hi my friends I have noticed that some of you are posting about hernias that have appeared during Chemotherapy. Could some of you please share your knowlege or experience with this? I have never has Chemotherapy but it may be in my future so I would like to know what to expect. Thank you all for sharing so much of your…
6 years ago today
I had my cytoreductive surgery for Stage IV Mucinous Adenocarcinoma of the Appendix. I was resected in 3 places, but was fortunate in that I never had a bag. My surgeon was extraordinarily skillful. I had several months of Intraperitoneal chemo, followed by 7 cycles of Folfox + Avastin. I am currently healthy, doing…
some bleeding from nose and congestions
Good Morning Everyone, Hope you are all well. It's been a while since I have been on the site. Mom is hanging in there with her treatements. Has anyone noticed blood pieces mixed with mucous coming out of their nose? Is this from the chemotherapy? Her oncologist seems to believe this is a non issue. But she is also saying…
Trying to move
Will be moving 20 Miles south of Sacramento near university of Davis. We have Medicare & humana anyone Know cancer treatment centers in that area???? Clarks
MRI results
Most of you know I had a CT scan 3 weeks ago and initially I was told it was clear. Then the official report mentioned a tiny nodule near the surface of the liver. So they scheduled an MRI which I did Tuesday. Well I got the results today from my oncologist and as I figured it was inconclusive. He said I could do a biopsy…
Short remission
We had a 3 week vacation. Now we went to get new blood test results and George CEA going up again. We had 0.7 when we left on trip now back up to 3.6. With George this is always a sign active cancer. He has done all the chemo so we have to see what is next. we were hoping remission of at least a year
very curious
Does anyone here know of someone who chose not to continue with chemo/surgery once it became stage 4, and wanted more quality of life even if it would, perhaps, be less amount of time for them? Would like to know. Thank you.
Almost scary to feel good again!
Hi Everyone, Yesterday I finished my radiation and Xeloda and I feel great. This treatment brought me incredible relief. Even a month ago I had bad pain, fever, night sweats, anxiety, discharge of blood, stool, mucus. Now nothing, but some minor skin irritation between my cheeks and tight muscles in my back. This is the…
Progression
Well I'm at my oncologist' office, right now getting my infusion. I awoke this a.m. with pain below my ribs (left side thi time). He thinks it's progression. It could be from missing treatment the weekend of my surgery, not having Avastin for almost two months, or my body building a tolerance to the chemo. I am feeling…
Westie66 has passed
It is with sadness that we have learned of her passing. Please see the post on the original thread entitled "Westie66".

Colorectal Cancer

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