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Colorectal Cancer

Archives for January 2013

Need Your Prayers
Hi everyone. I get my Petscan results tomorrow and I am hoping you will find it in your heart pray for me. Last scan five months ago showed multiple spots in both lungs. A spot on pelvis and a spot on adrenal gland. Chem for me was reduced to Avastin and Xeloda due to low platelets. Since the switch my CEA has been rising.…
My young caregivers
Since being told I had Colorectal CA stage back on 16 Jan 2009, my 2 young children have been there thru think and thin. They seen me go thru several surgeries, come home with a feeding tube, seen me with a ilescompty (sp), dressing changes, being connected to TPN via PICC lines, more then once, several times. I am in…
Survived another 'country switch'....
We arrived safely in The Netherlands on Tuesday. It is very cold here, and today I was gifted with a soft snowfall. I am busy putting the house together, and settling in, contacting friends, and planning our days. The end of February we have booked a cruise from Rome to Turkey, Israel, Greece. By then, this sun-loving gal…
update and happy new year
Hello Family, Firstly I want to thank those who sent me a Christmas card, it was really very sweet and it put a smile on my face every time I received one. Finances prevented me from sending any out abroad, but (touch wood, god willing) next Christmas those on the list will not escape me. :-) I have been lurking, I think…
PLEASE HELP! Dad preliminarily diagnosed with Colon Cancer Stage 4
My Dad is 65 years old. He was having some stomach pain and couldnt go to the bathroom for a few days. He finally went to the ER Wednesday of this past week. He was given a scan and told there was an obstruction. By that afternoon when i arrived, the Dr told him he had cancer. I spoke to the Doctors and was told they…
A New Scan & Lung Biopsy
Hello All, For the "newbies" who may wonder why I'm posting on this board, my daughter, Johnnybegood, is a 4+ years survivor of Colon Cancer, we are both members here and this is our "cyber family". Just wanted to clear that one up. Yesterday, we saw the second onc at MDA. Next week, hubby will have another…
Elevated CEA...more Chemo...Lost Job...Help
Today was a bad day. My recent scans show more cancer, CEA highest ever and today I was Laid off. Unemployment and no insurance is very scary. I live and work in Californiia. I moved here for a new career in 2011. All seemed well until today. I want to pursue Legal recourse for Cancer/Insurance cost discrimination. Anyone…
FarmGirl how is your sister?
Did your sister have her first scan since starting Zaltrap yet? I had a scan December 28th and the Dr. was pleased with the results. After 6 treatments my CEA was cut in 1/2, lesions are shrinking and no progression. We are going to contiue with another 6 treatments of Folfiri + Zaltrap. I still have stomach cramps/pain.…
Liver Mets
Hi! EVERYBODY. I've been away for some time - busy with the grandkids and work. I always have kept everybody in my prayers and I love everyone of you. Question? My CEA level has been rising so I went for the normal PET and they saw a 2 1/2cm lesion on my liver that now has to be removed along with follow up chemo. I'm…
Mushrooms and cancer
http://www.ncbi.nlm.nih.gov/pubmed/20694295 Agaricus sylvaticus. one of many mushroom species that have amazing properties. Similar to Blazei.
Lynch Syndrome? Kras, signet cell, etc?
My husband's surgeon has been recommending that he do the genetic testing. I asked him if it comes back negative does that mean our kids will not need to be tested early and he said no that they should still be tested 10 yrs before their dad's diagnosis. I can't help wondering why bother with this - just another expense.…
Braelee - Natalie - How are you doing?
I was wondering how you were doing? We both had surgery on liver last year, and started Folfox about the same time. Did you have all 12 doses? Just thinking about you. Hope everything is good. Sandy :)
Hi Mates it is FRIDAY any interesting plan for the weekend ?
Not very much here ! Probably going to the cinema to see " Les Miserables " What about you Mates?
Anyone on chemo pill Stivarga Regorafenib
Has anyone started to take Regorafenib? I will be starting on this next week if my insurance approves it. I read the side effectswhich seem to be similar to other chemos. I pray the side effects arent to severe. If anyone has taken it I'd be interested how it was. Thanks. Jeff
First ct scan today.
My wife has her fitst ct scan today to compare against the first one they took back in october when they dx her. We will get the results back on monday when she goes in for her next treatment. Needless to say we will be worrying all weekend. Please keep her in your prayers for a good scan result.
CEA count after Irinotecan
My CEA count went from 24 to 14.8 after one dose of Irinotecan. WHOOP WHOOP!!! So loss of hair no big deal, much better to have loss of cancer cells!!! Very happy today!! Winter Marie
Life Extention membership & $25 credit...and questions
Just came across this link for a free 6 month membership to life extension, that comes with a $25 credit. I used it to buy 120 5000 IU Vit D3 and 500 1000 IU Vit D3 - for $9 shipped, which seemed to be a good price. Does anyone know anything about these guys (Tans?) and how their vitamins compare to other brands - like…
scan results
I just got my scan results back and still no evidence of disease. For those of you who dont know my story i have been battling stage IV colon cancer for over 7 years. I have had 2 recurrences. The last one was at the end of 2011. I had my 4th surgery in December 2011 and have been NED since then. I hope this gives some of…
Ct scan results
Well, I got my ct scan results yesterday and it was a mixed result. A recap is I started taking the new chemo Zaltrap in September to hopefully do its thing against the tumors in colon, liver and lungs. Zaltrap was a little hard for me but I prevailed! The good news with the scan is the tumors in colon and liver are the…
wow
hello everyone wow this is all new wow .well i hope hope you guys are doing well with everything thats going on with the good the bad and the sad i just wanted to drop in and say hello you all of yous sorry i haven been on just so busy with everyday life but i can sure say that i miss you all hugs to you all Tina
OT
My mom passed away on Monday @ 6am from complications resulting from vasculitis and a staph blood infection. She was a 30+ year breast cancer survivor. 4 out of 5 kids were by her bedside when the ventilator slowed down and her BP and heartrate declined. I have to believe she knew we were there, holding her hands, stroking…
Vitamins 'blocking cancer treatment'
Interesting article on taking vitamins whilst under chemotherapy treatment: http://www.watoday.com.au/world/vitamins-blocking-cancer-treatment-20130109-2cfjs.html
No NED for Tedd-Update below...
Got my CT results today after 12 tx of 5FU + Oxaliplatin and 10 tx of Avastin. Previous CT scans were taken after 5 tx of 5FU + Oxaliplatin and 3 tx of Avastin. Despite doing very well with the chemo (with respect to side effects), feeling very good the last few months, and hoping/praying for the best, I am not close to…
Options for liver mets
Steve is still in the hospital with the blood clots. He was granted an LOA this am to meet with the liver surgeon. He did not feel that resection was an option,at this time, due to the extent of the disease. Felt Steve would be left with an inadequate amount of liver. Feels even sequential resections would be difficult in…
For those unfamiliar with Dr Lenz, a little on some of his current work on Wnt:
www.onclive.com/publications/Oncology-live/2012/December-2012/Five-Wnt-Related-Questions-for-Heinz-Josef-Lenz-MD-FACP/1 WHERE DID THIS LINKAGE COME FROM? CSN STAFF? I sure didn't do it!!!!!!
Hello Everyone/update
Hi Everyone, It has been awhile since I posted anything on here. There has been alot going on in my life. Most of you know that I am a colorectal cancer suviour stage 3. Under went numberous sugeries on my colon, some was removed, Had a resection. And a ilesctompy bag, feeding tube, PICC lines x 4 with TPN and medication.…
Clinical vs Empathetic
So, we go to visit my Wife's prospect Endocrine Surgeon. She has a cyst or tumor on her thyroid gland. We speak with the surgeon and he tells us from the pathology report it may or not be a cyst, and could be a tumor. If he had the actual pictures he could instantly tell the difference. My wife says I am sure it is cancer,…
Update on STAR Ablation - RFA for spinal mets
Unless you are stage IV, or another stage with recurrence/progression to the spine, you wouldn't ever have to deal with this. But I thought you all might find this interesting, and it is something to keep in the back of your mind should you need it some day. I know a lot of people complain a lot about no cure for cancer…
RIP Rob in Van
My heart hurts tonight. Rob passed today. He was a wonderful friend and a good mentor to me as I came to terms with my stage IV dx. He was a minister, and a very wise man. He posted here a lot until a few years back. We stayed in touch. He didn't let anything stop him, and even was aggressive having extensive surgery for…
Ron, Are you OK?
Just read the news and see that Australia has many, many fires right now. So, "Mama" Wolfen is checking up on you. Luv, Wolfen

Colorectal Cancer

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