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Ron50
Ron, just wondering if you had any good news from the Specialist? love Virginia.
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New "Official" role for Avastin,as per FDA
www.marketwatch.com/story/fda-approves-new-use-of-avastin-plus-chemotherapy-for-people-with-metastatic-colorectal-cancer-2013-01-23 there are some statistics cited so be forewarned; info provided by manufacturer,which is plentiful
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Key to long term survival for Stage 4
The more I read, and based on info from this site, the key to long term survival for stage 4 colon cancer seems to be surgical removal of tumors. Many people who get surgery also take chemo (before, after, or both), but those who aren't candidates for surgery seem to have a much worse prognosis. Unfortunately, I do not…
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CSN update
I apologize to everyone for not having communicated sooner. You have been more than patient under the circumstances. At this point, all of the content that was missing following the upgrade has been restored with the exception of private messages. There has been an ongoing investigation for several weeks that has yielded…
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http://articles.washingtonpost.com/2011-10-17/national/35277344_1_colon-cancer-common-cancers-cathy-
Anyone see this article before? I apologize if it's already been shared but I just wanted to make sure we all saw it. :)
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Wanna improve your "odds"? Get off your ****!!!!!
more on the importance of physical activity (if practical-there was a period where just getting out of bed to car service to get to treatment was all i could barely do) http://consumer.healthday.com/Article.asp?AID=672735 http://jco.ascopubs.org/content/early/2013/01/21/JCO.2012.45.9735.abstract It shouldbe a foregone…
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5fu iv versus 5fu orally. Any advice???
Dr is considering halting oxi temporarily and continuing 5fu and is offering to continue the iv every two weeks with pump for 2days like we have been doing or switching to oral 5fu which I believe is daily. wondering about any of your experiences with this. thanks
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Stage 4, 4 Years NED
I just got my scan results and they were all clear. That makes it four years NED! If I can make it one more year I think I will have won the fight. Even if I make it one more year without a recurrence I don't think I will change what I am doing. For those new to the Board my program is as follows: 1. Exercise 3 hrs/day…
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No hair!
Hi everyone, well my husband is still fighting, and now to add to the battle is his hair loss!! We knew the new drug after 3 weeks of being in his system he could lose his hair, but still a shock, any tips on coping with this? Take care all.
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Gandalf Was One Smart Dude...a little OT, but maybe not.
Don’t know how many of you out there are Lord of the Rings fans, but in my family, both the books and the movies have given us a lot of enjoyment over the years. My husband and I have both read the trilogy several times, and were thrilled to introduce it to our teenage daughters, first with audiobooks, and then when the…
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A lot to be read here on evolutionary biology and cancer, plus.....
http://onlinelibrary.wiley.com/doi/10.1111/eva.2013.6.issue-1/issuetoc (if this fails,try link at bottom of www.eurekalert.org/pub_releases/2013-01/w-hce012213.php This article involves CRC here at http://medicalxpress.com/news/2013-01-drug-side-effects-chemotherapy.html and i'll reiterate this easy one to try on grape…
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Need advice from other caregivers
I'm going to work today and really questioning if I can do it this time around? Last go round, recurrance, I had panic attacks driving to work. I wasn't able to concentrate at work either. Any other caregivers experience this? I'm a teacher so I have to be "on" all day. I have to work. just need strategies to get through…
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Another anniversary
Well It appears that I have survived another year. The 22 nd Of Jan 1998 I had a tumour in my transverse and descending colon removed along with 6 cancerous lymph nodes. A year of chemo followed and I have remained ca free ever since. Fifteen years. To all of you currently in the battle for your lives I wish you well and…
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Going for third opinion
Thank you everyone for replying to my last post. Next Tuesday I'm going to get a third opinion from the University of Miami cancer institute. They are suppose to be very aggressive in their treatment. Decided I would rather live sick and hurting but still be here for my husband and daughter than to just give up. Thank you…
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Radioactive beads for treatment of liver mets from colon cancer
In the news today: http://finance.yahoo.com/news/interventional-treatment-radioactive-beads-helps-180500865.html
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Liver biopsy and resection vs rfa
I got some eye opening info my last post regarding risks of liver biopsy and seeding. I wanted to put it out again to see who else has thoughts and experiences. Husbands 2nd recurrance in liver. Previous resection 4 lesions resected. I'm thinking no biopsy and resection is best best versus rfa. Thoughts? Thx!,
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rgcc molecular cancer stem cell profiling
http://petertrayhurn.blogspot.com.au/2013/01/ordering-rgcc-molecular-ctc-test-kit.html I ordered this a few days ago, going direct using email orders. bypassing the previous distributor of the test reduced the price by $2000. now thats exploiting cancer patients. i have my old dec2011 rgcc results already published on my…
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Husband's 2nd liver recurrence
Hi Everyone. I've been away for a while. Last Dec . My husband had his liver resection. Latest pet scan as of last week said "one new lesion in right inferior hepatic lobe that has further increased on size and shows more uptake consistent with focal progression of disease. SUV previously 4.0 now 7.6 and measures 4.7x2.2…
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Dendritic cell vaccine
going in for dendritic cell vaccine therapy. the doctor administering the therapy has scheduled 6 doses between 15th and 21st day of chemo( my father is having folfox 6 with xeloda every 21 days) let me know what your experience has been with dendritic cell treatment and any comments on the dose schedule
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First post
Hello all, been on the forum for a while so decided time to introduce myself. I am from Melbourne, Australia and have been diagnosed with stage 4 mCRC in october. I have extensive liver mets, taking over maybe 70% of the liver. Had five rounds of folfox thus far which failed so onto folfiri from this week. I have a…
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newbie from australia
hi all this is my first post although i have been looking around here for a few weeks.my name is Steve and i live on the Gold Coast in Australia. my story thus far is that back in june last year i visited the doctor with problems with my bowels and he did a bit of probing and pushing and then told me that i have…
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Avastin withheld due to blood thinners
My husband, Steve's, blood clots continue to be an issue. Went to chemo on Wed. Saw onc before chemo. Face and neck still really really really swollen. Voice has not sounded normal. I think the onc was concerned. I asked her if she could prescribe a steroid to reduce the inflammation. She presc. dexamethasone 4 mg. Half…
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free sight seeing all around germany
cost is free, just pm me your arrival details frankfurt. my super fast audii a5, will try and have some fun. i got it up to 240km/hour. next trip I think 260km/hour is a good goal. I got some colorectal friends from australia coming over february march. seriously pm me if interested, we can lineup travel dates and have…
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Chemo/Radiation??? yes..no?
Is chemo and radiation really necessary if you are still early in the stages or Rectal Cancer? I'm just worried about all the side effects and all.
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This looks very promising
Been buried in immunotherapy for months, keep finding hope; http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2889279/pdf/10434_2010_Article_920.pdf "In four out of nine stage IV patients, complete tumor regression occurred." Not a total cure but this result can easily be improved upon. This Swedish institute is cutting edge…
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How much does stress contribute to the onset of cancer?
So yesterday my husband and I were talking about the latest cancer hoax to come down the pike (the Notre Dame football player with the "girlfriend" who died of cancer right before the big game), and the following was said: Me: Yeah, when someone's story is full of drama, especially involving cancer, you really have to be…
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PIK3CA test , aspirin and prognosis
I am KRAS wold type and am currently on erbitux maintenance chemo. My doctor has also recently started me on low dose aspirin (75 mg) daily after my resection of colon and liver. He advised that I should get the pik3ca test done. The test is done on the tumour sample and the test has me identified as pik3ca mutation in…
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When is enough enough?
I never thought I would reach this point but with no end to chemo insight and no chance of remission I am wondering if I should stop fighting. I fought so hard for my husband and daughter but I'm always just so tired. Our lives revolve around me being sick scattered with a few good times. When do you just say enough is…
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MRI
My husband gets pet scans & CT scans, I am worried because they never do MRI. Anyone have thoughts on this. And how effective is Irinotecan on Lymph Nodes that are enlarged in groin??? Cea quit going up after first treatment of Irinotecan, & Xeloda. I get the feeling this is a never ending battle.
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Hi mates, it is FRIDAY ! Any interesting plan for the weekend?
Here just go to cinema and lunch with family on Friday! What about you mates?