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What to expect moving forward? Dad dx with stage 4 Colon Cancer...starting chemo
Hello again folks, I dont know what i would have done without this site. As many of you have given me information that has helped us process Dad's dx. Just to give you the story so far, Dad went to the ER after a few days of stomach pain and unable to go to the bathroom. Drs dx him with Colon Cancer stage 4 after running…
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Fever and low white blood cell count from chemo?
www.benzinga.com/news/10/01/3276805/amgen-phase-3-trial-of-neulasta-in-patients-with-colorectal-cancer-met-primary-en Link doesn't seem to work but results thus far are favorable if on FOLFOX or FOLFIRI,with Avastin as per PAVES (Pegfilgrastim and Anti-VEGF Evaluation Study) , the phase 3 trial - goal is to mitigate low…
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diet and nutrition, folate and colon cancer - for supplementers
http://www.lef.org/news/LefDailyNews.htm?NewsID=18022&Section=Vitamins&utm_source=DailyHealthBulletin&utm_medium=email&utm_term=Vitamins&utm_content=Top+ContinueReading&utm_campaign=DHB_130126 Studies from University of Cairo Yield New Information about Diet and Nutrition Dear Colorectal Friends Interested in Supplements,…
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Anyone has mild side effects taking Xeloda Chemo pills???
My husband will begin taking daily Xeloda Chemo pills for five weeks. Has anyone had just mild side effects? Please share your experience. Thank you kindly!
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Brain Mets: Stereotactic Radiation?
I hope this doesn't double post. I am not understanding the trimmed versus the full version in the preview of this email I am writing. If it does, apologies. If anyone has any experience with stereotactic radiation for brain mets I kindly request they post or send me a pm. My husband has recently been diagnosed with two…
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Ramucirumab:"Novel Drug Shows Promise in Gastric Cancer"
www.medpagetoday.com/MeetingCoverage/MGICS/37022 and there's something with no name from Dainippon Sumitomo Pharma Co that targets cancer stem cells and is in trial somewhere in US (have no more info on this one;just citing it as an example of research being done all over even if not ready yesterday)
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Radiation to pelvis
Wondering if anyone could help with information about radiation to the pelvis? Where the side effects manageable, and what were they? Did the treatments work? Was it used while NED or to shrink tumors? Did the treatments create any scar tissue for you that you are aware of? I have never had radiation before and I am in the…
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Went to a dutch swap meet today....
... in the southern part of The Netherlands...went through FAST! So, instead of driving right back...we decided, instead, to have lunch in Germany! We had pork roulade, red cabbage, and potatoes with a lovely brown gravy! Gotta LOVE the geography of Western Europe!!!! (We filled up on gas...20 Euro cents per liter cheaper…
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NED - for the time being...
Hi, all. I had my first scan last week (PET) and I am more or less NED. I have a large rectal tumor (ouch), four decent sized mets to the liver, and four tic tac sized mets on the lungs. Affected lymph nodes as well. Had 12 hits of Folfox and Avastin and during last week's scan nothing lit up on the PET. I'm relieved, but…
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Wills and paperwork - running out of time?
I met with a lawyer on Mon. (referral from a friend) and he was 40 minutes late and asked me how long the doctor gave me....that didn't sit well with me. I told him no doctors really know that and he shared he knew someone who outlived their timeliness by 12 years. Grrrrrrr... He is lucky my steroid had worn off some…
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Bleeding in the Stool
To all those who have rectal cancer, do you guys have bleeding in the stool? Just curious to know. Sometimes, people think that its just a bad case of hemmorhoids.
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CT results as I move toward 7 years with stage 4
Hello all, I am sorry I am not around as much. I still read many posts and just don't respond as I should. To any new members, I am stage 4 ( 4 lung resections, 1 liver rresection, colon, 10 months chemo, pulmonary embolism) and I am still here. The randomness and unfairness of this disease is the part that is so hard. I…
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PhillieG How Be U?
Haven't seen your smiling face or any of your great pics you use for avitars lately. Hope you are doing so well, that your days are full of fun and laughter. Marie who loves kitties
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catscan results
I had a catscan Monday. Still no evidence of cancer in the colon, but the colon cancer tumors in my liver are shrinking. ONe of the appeared to be gone! It has been two months from yesterday that the rectal abcess got me into the hospital. I am very thankful, because the catscan for that was what showed the mets in my…
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"Ganglioside-monosialic acid (GM1)prevents oxaliplatin-induced peripheral neurotoxicity in patients
www.wjso.com/content/11/1/19/abstract Too late for me; those on oxi might want to investigate further;just saw this (you can access full study at bottom of abstract,if so inclined)
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Being an activist, starting with a media release! what do you think ?
I got no real idea what I am doing, but it was fun on the radio tonight. Not knowing what I am doing has never stopped me before. I don't think this will go anywhere, but at least I have had a go. I emailed it to a few large sydney newspapers, and spoke on radio tonight. off to sleep. As a co-incidence i got the full…
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My Rectal Cancer Story
I usually do not post but I know when I was first diagnosed I always searched for good news stories. My son asked me to do a run with him and since I had not been that active I decided to have a physical before starting to train. On 7/15/2011 I was diagnosed with stage IIIb rectal cancer after a routine colonoscopy. In…
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ATTENTION: wisdom/suggestions for crc patients
I know there is a ton of knowledge on this netwrok! And I hope that others will try to distill some knowledge that just might help other crc patients with there battle against cancer! In my case I have learned a couple important things that I'd like to share with others -- and I hope that these couple things might actually…
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What are the side effects for Folfiri and Erbitux???
Well, the Tumor Board reviewed my case and liver resection surgery is not an option at this time. There are two larger tumors in my liver (3cm and 1.8cm) that are clearly visible on the MRI. Unfortunately there are also three other likely smaller tumors visible on the MRI as well. And the five tumors are located in…
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Hipec if cancer other places
Does anyone know if they can do HIPEC if there is cancer other places? I have three spots in pelvis but have spots other places too. I just figure if they can get as much out as possible it helps my odds.
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Hi mates this is FRIDAY , any interesting plan for the weekend?
Here nothing special we go to the cinemas ,probably LINCOLN ! Did any of you have seen the movie?. What about you MATES?
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folfox with 21 day cycle and xeloda
my dad just started ( 4 days back ) on folfox 6 with 180 mg oxaliplatin infusion followed by 2X2 oral xeloda (500mg) tablets for 14 days and then a 7 day break. making it a 21 day cycle.... has anyone had this protocol ? please share your thoughts/experiences.
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Store of Hope
As I came home from an appointment with a pulmonologist I noticed a strip store front that needs to be leasesed. I thought what about a store named "Hope ". Stock it with support staff, hope gift items and. alternative therapies. What would you stock or add? I "hope " you can have some creative fun with this idea.....i
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Doc Hawk - Ray
How are you doing? Haven't seen a post from you in awhile, getting concerned. Hope you are feeling better. Sandy :)
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sad
my boyfriend was diagnosed with colon cancer which has spread to peritoneal activity. today they told him that he has only 6 months to live. Im so scared and sad. He is depressed most of the time i dont know what to do or say to make him feel better
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Anyone have any experience with TACE
Hi everybody, Steve and I met with the Chief of Surgery at a hospital in Montreal. This is where he had his HIPEC surgery last Spring. In fact, this surgeon participated in Steve's surgery. This doctor was happy with the tumors (liver) response to the systemic chemo. Recommended to do 15 sessions of chemo (goes for #8 next…
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Medicare and Cancer? Need reply ASAP
Hello All, I am in the process of finding a Medicare Part D that will cover most of the prescription drugs at a reasonable cost for Colon Cancer. Anyone who can chime in on this? It is sooooooo confusing! -Julia
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Adjuvant chemotherapy vs. waiting for recurrence?
Looking for some advise on this one...has anyone been advised not to have adjuvant therapy after surgery? I have been told to wait for a recurrence and that there is an extremely high risk it will happen. I have had several opinions on this and getting the same answer. But also in the next statement I hear that if I want…
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Just finished chemo... Now need a liver MRI
Hi everyone, I just finished 12 rounds of Folfox 2 weeks ago. I thought everything was good...the dr said my ct scan was fine ... I did have 2 lesions on my liver and one on a kidney...but he said he wasn't concerned about them. Today I got a call from the drs office ... Apparently he rereviewed the scan and is concerned…
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researchers identify three distinct molecular subtypes of colorectal cancer
stilll looking for specifics so this is best i can do at this time on this http://ecancer.org/news/3744 While probably all are familiar with KRAS,less are aware of BRAF andPI3K on CRC..I'm curious as to the specifics of these "subtypes" referred to Like with every other variety of cancer, researchers investigate this gene…