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Colorectal Cancer

Archives for September 2011

Just returned from Tokyo---1st big trip since diagnosis
Hi all, Simply sharing: I just returned from Tokyo and everything went better than I could have hoped. I had my ilestomy reversed in October, went through the Depends stage, and for the last few months have had very few accidents (and can usually trace why, like drinking red wine). Anyway, I purchased some Depends before…
Just returned from Tokyo---1st big trip since diagnosis
Hi all, Simply sharing: I just returned from Tokyo and everything went better than I could have hoped. I had my ilestomy reversed in October, went through the Depends stage, and for the last few months have had very few accidents (and can usually trace why, like drinking red wine). Anyway, I purchased some Depends before…
CP9 - COLON PALOOZA #9 - anyone that hasn't purchased airfare or reserved a room yet?
I am copying and pasting some of Suzann's info from an earlier post below my post here. I know many have planned well in advance, but there are many of us with ongoing treatments that do not have that luxury. If anyone is still interested in going, American Airlines has a nice sale right now for flights into Chicago from a…
Follow-up to Ending Radiations
First thanks to all of you for your posts and kind words. I cried when I read them. Here's the outcome to my radiation dilemma. I ended up in the hospital for the 4 last days. I spiked a fever so went to the ER and was admitted. I ended up on IV antibiotics for sepsis, bowel enteritis and a UTI. I also received two units…
Fatigue greater from 2nd round after liver surgery? Experiences?
I had 6 rounds of chemo and the fatigue and other side effects weren't too bad. This was then followed by liver surgery to remove one met. I have resumed chemo and after the first infusion the fatigue was hit sooner, harder, and lasted longer. I started the chemo ~6 weeks after the liver surgery. Granted I'm not as strong…
Scans or no scans??
I need some feedback. My husband had surgery on 3-25-11 he is currently on his post chemo. He has not been scanned since right before his surgery. Do they normally scan during chemo? His cancer was rectal with one lymph node involved. The worrisome part is that on his first PET scan before surgery and chemo there was two…
Short breathing and chest pain can it be anxiety ?
my scans were fine two weeks ago so... .I'm going to Mexico next week and this is my first long trip since DX!,did it ever happened to you before a trip or new plan?
Colon Cancer
I'm having chemo treatment for colon cancer and I would just like to understand more about the side effects that others have after going through treatment. I'm 39 years old and at times this can get so overwhelming because I wear a colostomy bag as well. Is there anyone who is willing to help me to understand more about…
Anger
My 19 year old daughter informs me last night that I have become an angry person with three specific examples. So I am asking for your opinion regarding yesterday's incident and you tell me if it was justified anger or I am slowly becoming a psychopath. Give me your real opinion, I won't get angry (maybe). When I got to…
Taken off Erbitux
Went to get my treatment today but platelet count was below 100,000 so the onconlogist won't give a full treatment. Last week he gave me only 400ml of Erbitux. The week before that I got my full treatment except he stopped Avistin and gave me 700ml of Erbitux thinking it would help keep my platelets up. Today when I just…
looking for some objective opinions
Hello fellow CC survivors, I having been doing some naturopathic things for about a year now . . . . on top of loads of exercise, and continually changing/modifying my diet. Now I am looking into mistletoe injections and/or Vitamin C IV. My naturopathic doctor is open to doing both or either with me. I don't know the cost…
help!!!! falling through the crack and its my life
HI! I'm having an issue here. I have been going to a hospital in Boston, MA for my colon cancer (recurrent Stage IV), my local oncologist has says there is nothing they can do for me down here and sent me to the "specialists". Now I have been going since May and I feel like I'm falling through the cracks. I barely see my…
Why this "old timer" rarely posts
Hi all - I have followed the recent "flames" with interest. It's a common thing on message boards - I know there are folks with Ph.D's who actually study this stuff. In part I rarely post because I am 6+ years surviving Stage 4 and need some space (even though I know a recurrence is possible at any moment). The drama does…
ascites
I was just diagnosed with ascites after a CT scan for a bloated / distended abdomen, any experience with this out there ? what can I expect as far as treatment.... at this time it has me more or less off my feet as I am only comfortable on my side laying down. I realize this is probably an indicator of the condition of my…
PET/CT Today
Scanxiety hit during ZUMBA class on Saturday. It was so wierd, I was dancing and stomping around saying "FU Cancer" in my head to the beat of the songs and the next minute I'm tearing up and can't breathe and I'm thinking.."What if it's back, what if I didn't dodge the bullet, what if I only got a year clear???" Will get…
Hi I'm new to this site
I am now 53. I was diagnosed with Stage 4 colon cancer on September 9th, 2010 with mets to the liver. I had a colon resection (right hemicolectomy), 6 treatments of Folxfox, liver resection and 5 treatments of Xeloda. CEA went down after the liver surgery (March 21, 2011) to 10.1 and started rising when I started chemo.…
Jorge has his ct scan
Today jorge has a ct scan I'm so stress and scare and I didn't want to get out of bed today would love some good wishes today thanks all hugs Tina
colon resection surgery
I would like to know how common are anastomosis leaks after colon resection surgery. Has anyone else had this happen? Please elaborate. My husband's first surgery for removal of a malignant colon tumor went well. However after the first few days, he got very sick with nausea and vomiting and ended up back in the hospital.…
blood clot
Hi. I'm in the hospital with a blood clot in my lung. Glad I made the decision to go to the ER. I was feeling pretty dumb for a while because by the time I got to the hospital the pain was gone. I'm learning it is better to be safe than sorry.
Any ideas on foods to eat....
My husband just had his 3nd treatment of FOLFOX. He can not eat or drink anything cold for about 10-12 days after his treatment. It is getting really hard to find foods that he can eat and things to drink that taste okay luke warm. He is getting tired of soup and warm water. Any ideas would be greatly appreciated as he has…
Mum's passing.
Mum's just passed away yesterday afternoon after fighting cancer bravely. It's been a pleasure being in the cancer survivors network and sharing knowledge of colorectal cancer with one another and the advice that I got from you guys. Don't worry about deaths, that should be the thing that's at the back of your heads. Go…
Hello from a Stage IV (my over-due, wayyyy over-long, opinionated intro)
Hi, This is a lengthy, not very well-rounded and perhaps too opinionated first post, but I’ll justify it by saying I invested a lot of time reading Emily's deleted thread, and the article she linked to. ;-) I was diagnosed with Stage IV colon cancer in 2007, with at least seven metastatic tumors in and on my liver. Yikes,…
Stereotactic Radiotheraphy
Who has had this done? Anyone here have it done for lymph node mets only? Can you tell me what it was like for you? I have good news. My CEA stalled out at 3.6. It stopped rising! But still I am challenging the long-term plan for my treatment. I pushed my oncologist for SRT or cryoablation. He was against cryoablation…
From England:"....Avastin,Erbitux and Vectibix will not be routinely available on the NHS
for people with metastastic bowel cancers, those that have spread to the rest of the body......." Economics$$$$$$$$$$$$$$$$$$$$$$$$$$ so reports The Daily Mail
tumors causing fever
Can anyone tell me about tumors causing fever? My mum had to be taken to the hospital last night because of a high fever 102.7 to be exact. She was given tylenol which brought her temperature down. Blood work came back and all negative. Chest x-ray was negative also. However, this is the second time she had a spike in…
Would appreciate your input
When my husband started this journey in Nov. 2010 his CEA level was at 1145, then in March after 8 treatments of 5fu, Oxaliplatin it went down to 465 then in April it was down to 211, they dropped the oxy after his 10th treatment and since then he had been feeling really good. In June he started having issues with his…
Nudgie
Where are the Friday Questions and pondering thoughts. Never was one to answer them because I'm not good with problems but always loved seeing your questions. Hope all is well. Miss seeing your posts. Kim
Is there a way of getting around wearing that stupid pump?!?!
I'm 30 years old and was diagnoised with Stage 3 Colon Cancer in April - no cancer in my family so this was a huge shock to my husband and I. I had major surgery to remove part of my colon and the tumor soon after the discovery. I just finished 6 rounds of chemo (oxaliplatin) through a port in my chest. I do this every…
Mum's Condition
Hi guys, hope you still remember me. Mums condition has deteriorated. Shes now just laying in bed and doesn't even recognize familiar faces anymore. We are expecting her to go soon ),: This is a very bitter and sad part of my life. I'm only 18 and it pains to see my mum suffering. There's two kind of people in this world,…
Remission?
So the question is: When does a cancer patient proclaim remission? I am happy to report my last scan in August was clear. This is two good scans and 6-months. Living life without Chemo is a very good thing. I wish anyone currently in treatment the best and know there is a future beyond treatment sessions and chemo side…

Colorectal Cancer

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