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Question on how long after CT scan .. do you know?
Hello everyone and good day to you all! I have a question my hubby went in for his 2nd yearly CT scan on the 13th. Now his appointment with the ONC is not scheduled until Oct 7th. When do you actually hear how the details to the scan turned out? If there was something that showed up on the scans that needed attention is it…
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Oxaliplatin and cold weather
With Fall and colder weather on its way, can I expect increased cold issues from Oxaliplatin? I am on it through November.
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FYI from Greta
Occasionally staff from various organizations creates CSN accounts to announce events or raise awareness of their services. This is inconsistent with the purpose of CSN, which is for survivors and the loved ones of cancer survivors to share their experiences and practical tips and to support one another. "Organizational"…
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Worried about accidents but don't want fear to control me
Sometimes it is only people who have had cancer can understand how your level of anxiety can skyrocket by what-should-be a fun thing. We are going camping this weekend with two other families and their children. I was looking at my list of things I had to pack, not just for my family, but for me, just in case. the list…
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Newby Caregiver.....with rectal question.
Husband was dx w/colorectal cancer 12/2010, received chemo/rad then surgery 6/23/11. They removed his rectum and he sports a colostomy that is healing nicely. He is currently going through his first week of chemo since surgery. Though it has been a short time since all this rained down on us, it already feels like we've…
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OK.......Getting the Game Face on...............and vent extraordinaire..
Cancer is bullchit !!!!! Anyway you look at it, its bullchit........OK, life has a bad prognosis, its an exercise in futility to think that we will live forever here on earth. Its also bullchit for the USA to allow pharmaceutical corporations to control our destiny and their pockets as well. It is a crime to control who…
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my aunt, my thoughts
I know this is a stupid way to think, I know it, I really do, but I can't help myself. My aunt is losing an average of 2 lbs per week, she weighs now, 170lbs (down from 304lbs in February of this year), at this average she will be non-existant very soon. I just want to cry. The told her not to take her xeloda (she hasn't…
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got priority medical evacuation from rabaul PNG due partial blockage and malaria
Just had unforgettable Diving and photography holiday at kabiriai resort PNG. So 10 Days great Diving, healthy eating and sunshine vitamin d. Then one sleepless night in agony, at resort, on my own. First day at Home with wife and kids which I missed heaps. Yesterday in little catholic hospital rabaul on drip. At 3am a…
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OT-Waiting game for me
Everyone tells a caregiver, "Remember to take care of yourself". Easier said than done, but I took the first step and went to go see a dermatologist about a couple of moles. I knew they didn't look right, but shoved it to the side; Robert's fight takes all of my attention. The derm took measurements and biopsies from my…
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will now look at date of posts...
First time I went to the site I went to the chatroom, which was friendly, but didn't help me with answers---and questions. This board site is amazing....what a treasure trove of information.
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once had cancer, always compromised immune system?
I'm wondering if this is true. What do you all out there think about this? Stage 3 colorectal cancer dx 2009 as of now, clear scans
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Question.... Cramping, charlie horses..legs..hands????
Anybody got anything on this? I have started having cramping...like charlie horse kind...in my feet....uhhhh...its really wierd... I have to put all my weight flat on my foot to get it to stop...if I relax...the whole foot starts drawing up.... it don't hurt like a charlie horse in your leg...but I cannot control it or…
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And so it begins.....
Hey Guys... I have to be at St. Louis Univ Monday morning for lung biopsy and fuducial placement for upcoming Cyberknife. They will work on tumor in left lower lobe first since it is largest at about 2.2cm now. I have opted to go to a new facility in St. Louis area that houses a new Cyberknife machine. This new machine…
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Irinotecan Regime Kicking Butt. Need Tips
Background: Wife, 47 at diagnosis, July 2009, Stage 4 Colon Cancer. FOLFOX, 12 rounds. Numerous surgeries, liver resection, liver tumor embolizations, on and on. Each time, she sailed through (except for the liver infection). Now: Xeloda, Irinetecan, Avastin, Neulasta. Round 3 on Friday, and today she can't get out of the…
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1st Pet scan since treatment started
I had my first pet scan today after 4 treatments should have the results back in the next couple of days. Even though the doctor says my blood levels were good and he thinks the spots on my liver are better I am still worried. I wish they could just read them right then and tell you something waiting is the worst part.…
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Verdict is in........
I have a CT scan with contrast scheduled for Friday at 9;15...used as a baseline for my protocol that starts next Monday ... I go in Monday for irrinotecan leucovorin then Tuesday for Avastin and leucovorin, a push then have my 5fu pump taken off Wednesday... 3 days every two weeks for the rest of my life.....Hmm, Then he…
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Scan Results In.Not sure How I feel Yet
CT scan in July - nodule in right lobe of lung ggrew from 3 mm to 7 mm CEA 2.5 - up from 1.9 PET/CT last week- Lung nodule uptake - 8mm CEA down to 1.6 Onc feels it's "something" but not an alarming something. She said "knowing you are aggressive and want answers" she suggest a consult with Onc/Thoracic surgeon to discuss…
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Important to act upon- FDA wants to ban supplements in the U.S.
Read the article from the link below (sorry- you have to copy and paste into your web browser) about how the FDA is trying to ban the availability of helpful, natural supplements. The almighty dollar speaks loud here & it makes me angry! Read and contact your representatives about it if you agree- thanks! Lisa…
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CT Scan
Had my 6 month CT scan last Saturday morning my new Oncologist here in Houston called me this morning good to go except wants me to see a gastro guy maybe another colon exam I suspect. Colonoscopy here I come. Next Onc appointment and CT scan March 2012. I'm a dancing.. Keep paddling folks...
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5 days since liver surgery
and i am home.hurting like heck but i am walking around getting stronger everyday.the surgen took my gall bladder out also.anyone else on here have that done during liver surgery?just checking in just letting you all know that i made it thru surgery.need to rest now.everyone take care and keep up the…
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O/T Football
The NFL is back. My Rams lost to the Eagles (>_<) May your team do well Mark
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On for a scan
Went to the onc today and now he wants to schedule Jake for a scan at the end of the month. Hopefully he won't change his mind between now and then! Should find out his CEA in a day or two--doc thinks it will be much lower. Guess the Erbitux is working a little too well--on Jake's face at least. Doc took one look at him,…
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FredBentley
Your recent post was on a very old thread. I am pasting it here in hopes that you will have some answers. Unfortunately, some of the members on the original post are no longer with us. ************************************************************************************* rife machine new Hi Rev, Have you found out anymorer…
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C-Diff
So I followed your guys advice and got the mucus thing checked out yesterday and got the call about 30 minutes ago that I am not dealing with a local reccurance but rather C-Diff. The doctor stated that for me it's good news because it not cancer, but if I were a non cancer person it's still not good news because this can…
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After 2 1/2 weeks from my last chemo still having some diarrhea and stomach bloated after
lunch ,how long takes to get better? any experience there?
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It's mid afternoon here ,tomorrow early I'm going to Mexico so I'm going to be away from the board f
10 days, will try to post Friday's post from there!. Hugs!
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9/11 my 5 year anniversary!
I know yesterday has a deeper significance to everyone, but for me it is also the day of my original colon surgery (2days after original dx) and the start of my journey. I've now been POST treatment 25 months, clean scans, great blood tests and port free. My husband and I are sitting on the porch of a beautiful hotel on…
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Wanted to share my daughters day with you
Hello everyone...we just got home from the skating rink for my youngest daughters 10th birthday. Since you are like my family I thought I would share how special she is to us. This is my post on my facebook page today. "On September 10,2001 when I was 10 days overdue with my baby and my doc wanted me to wait a few more…
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price of treatments!!!
I have been on Avastin and Xeloda for about 6 months and will be awitching to Erbitux on Wedensday. My schedule for treatment is weekly so I know it will be expensive...anyway I just received the bill for my prtion of one (1) Avastin treatment after my insurance payment and my portion is $9700.00. I can't afford that...I…
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Article on Folate and CRC on MedlinePlus
Folate and CRC Some key notes:People who eat plenty of folate had a lower risk of colon and rectal cancers in a new study that examined the effects of folic acid fortification in the United States.... ...In the late 1990s, the U.S. and Canadian governments began requiring that folic acid (a synthetic form of folate) be…