The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Colorectal Cancer

Archives for January 2011

Dorookie and Winter Marie
Have you ladies had any word regarding your daughters? Praying for good news for both. Marie who loves kitties
Erbitux, 5fu, lv, & Irin
Changing from Xeloda to 5fu, I am starting folfiri with 5fu & Erbitux on Wednesday after a port is put in, it is suggested by a second opinion (Dr. Lenz USC) that I have a double dose of Erbitux (500mg) once every 14 days with the chemo. My Onc wants me to do the protocol, Erbitux every 7. I can't decide what I should do…
New member...Need stage IV remission encouragement
Greetings, After reading this board for months seeking encouragement, I have finally decided to post a message. I am 53 and up until now perfectly healthy. I have never smoked, always exercised regularly and ate well, so I don't need to tell you how shocked I was to be diagnosed with cancer. I am stage IV, diagnosed…
If I could, I would erase this post....sorry for the feelings! Please, just let this go! Old posts
My suggestion is, that if you have something new to add, start a new post, please. I just got the wind knocked out of me by a year-old post where our beloved Shayenne was posting, still full of life and optimism. We just suddenly lost 2 beloveds on my other board, and all of us are reeling there...I am going to make the…
Port flushing question, revisited...
From Lifeb4now: there are differnet types of ports,thus not a standard for flushing/maintainence.Power port[as my husband has] ACS states monthly; but the 'tunneled' ports are more often,since part is inside and outside[which iT kinda older design]the power port is the way to go; no external anything:)and there seems…
Sophie.......Time to check in ..........
Girl...you better get your behind in here and check in with us.. :) You know we're waiting to hear from our Shining Star.....your buddy........Buzz
Seeing the colon doctor
Guys prayers please Jorge and I will be going to see the colon doctor on Tuesday hoping he ready for surgery thank you everyone Hugs Tina
Have a question
What is HIPEC? anyone who has experinced this.
loads of pain
I've been in quite a bit of pain recently. My Drs and I thought it was a kidney infection. I took the antibiotics and the pain cleared up. I still have about 3 antibiotic tabs left and the pain has returned twice as bad. I seriously can't do anything because of the location of the pain. Medication only lowers the pain…
Chemo #8
Every treatment is different but the last two have been really bad.. Monday - Wednesday were not to bad just tired. But when I get my shot on Thursday it all goes down hill. I feel like I have the flu. Tired, soreness, not able to eat, the whole works, even my hair hurts. I did talk to my doctor about my dizzyness but he…
And so the adventure continues...
Hi everyone! Ok... update on the ongoing adventure! This week I guess ends my holiday from treatments/medical appts. I guess. I have to go to the hospital (Vancouver General Hospital aka VGH) Thursday morning to get my second port-a-cath inserted. The first one I had was back in 2007. I finished my FOLFOX (well, minus the…
maglets
How are you doing? I have been meaning to check on you.
Good News ... I'm back ...UPDATE
Hi Family! I am so sorry for the long absence and for all that I have missed. Hello and welcome to any of the newest members that have arrived since I've be off the boards. Marie (who loves kitties) sent me a wonderful PM updating me on many and I will attempt to respond if my fingers (damn chemo!) can hold up today. My…
What next and how do I help him
My husband and I just found out he has stage 4 colon cancer. It started out as a routine gallbladder surgery, they found cancer on his gallbladder a whirlwind of tests, found it in his colon, they then took out half of is colon.More tests then the other day we were told of staging and we where at stage four. This happening…
support groups online
Does anyone know of any support groups online? I am currently in remission from colorectal ca stage 3. I was diagnosed in Jan 2009 on my birthday. Had my first surgery in March 2009. Went thru chemo and radiation 2009 til 2010. Had several surgeries from 2009 til 2010. Had a feeding tube in last year for about 4 months.…
Website
I am glad I have logged onto this website this early am. It has alot of information. And knowing I am not the only one that has had colorectal cancer. I will be back on here soon.
Misc
Hi, I dont log on to the website very often. It has been 2 yrs since I found out I had colorecetal cancer stage 3. I am in remission now. And I pray that it stays that way. Since going thru chemo and radiation, and several surgeries. I have had several other issues. I had a ilestomy(sp) and they did the reversal. Sometimes…
Your love and kindness help sustain us
Dear Friends, Thank you very, very much for your kind responses. I can't tell you how much it means to me to know you are out there, know what we are going through and you care about us. Thank you. **** does have a small hernia but he does have fluid too. Can someone please tell me what they do to get rid of the fluid? Do…
your opinion ??
So Chris has decided to go back to work full force. After being off for a year and a half it has put a huge strain on our finances. He is woriking alot of hours and really not getting alot of sleep. Our familes are insisting that by his lack of sleep and the stress of working so much, we are some how going to cause a…
merry-go-round
I feel numb tonight as I read your stories....some of us go for tests and go down for a bit, some of us go for tests and rise up.... cancer stinks mags
leathery skin: side effect of treatment?
Hi all, I'm new to this board. My mom had a cancerous polyp removed from her colon, but it metastasized to her lung and she just had lung surgery to remove a lobe. She just finished 8 weeks of daily radiation combined with a steady dose of 5FU. She's lately been having dry, leathery skin on the soles of her feet and palms…
Plan in place, but need advice
Hi friends, I, too, have some bad news. I met with Dr. Lenz on Thursday about my reoccurance in three lymph nodes. He thinks I should start on Folfiri and Erbitux and follow that with radiation. Once everything is clear then he recommends HIPEC to kill any remaining cells. It is all so overwhelming and difficult to deal…
The best medicine is free
Someone sent this to me and I love it, but I wonder if it is possible.... I try to follow most of this advice but why does it take something like cancer to see how important things are? I know all of this is not possible for many here but it's nice to try. A GUIDE FOR LIVING IN 2011 Health: 1. Drink plenty of water. 2. Eat…
C Dixon how are you?
Just want to know about! Hugs!
Seems like we are all getting our check ups!
I am scheduled to see my ONC on Wednesday. I finished my 12 rounds of Folfox in October ( For Stage 3C ) and was told to come back in three months. I have never been given a CEA level although I am sure it has been tested. I had a CAT prior to my sigmoid colectomy which was February of last year, but no tests since then.…
Liver surgery with multiple lesions
I was wondering if anyone has surgery on liver with multiple lesions. My husband has 6 lesions on the liver and was told that he is not a candidate for RFA due to amount of lesions and that some of the lesions were near the blood vessels. We meet with a surgeon two weeks ago and she was willing to resection but she only…
Juicing/Diet
My niece who lives in England has been diagnosed with Colon cancer, primary that metastised to her ovaries and peritoneum. She has had colon surgery and had her ovaries removed. Her cancer is quite rare in that it strikes young women going through pregnancy or having a young child. My niece's baby is 1 year old. We found…
bad scan - very sad
Dear Friends, Wow that was a slap in the face. We were hoping that ****'s scan would clear him for flying. Instead we are fighting for "more time." He had his CAT yesterday and he has about 16 small nodes total in both lungs. Also a 5 cm mass up near his aorta. Also numerous small to med size lymph nodes. It's back. We…
Smooth Move Tea - Oh No What did I do
Oh my goodness I've been drinking this for over a year to keep me "regular" and now find out that you aren't supposed to take it or drink it more than a week. Talked to Pharmacist today and he said that it had senna in it and it makes for a lazy bowel if you take for a long time. Well now this is the first day off and I'm…
Just my luck
They add a 13th zodiac sign. I get bumped off leo to guess what........drum roll please.............cancer! WTF? I can't win for loosing.

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The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Colorectal Cancer

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