Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Archives for August 2010

Hello to the board
First, hello to all. My name is Blake, and I was DX with stage IV rectal (mets to distant lymph systems) in March/April of this year. My treatment schedule has been folfox w/avastin every other week, and I just finished my 9th treatment. My blood work has been excellent, always in the normal range for white and red cells,…
Blood Type A - More likely to be diagnosed with cancer?
I read that statement in a book (blood type A has more cancer than other blood types)-didn't know if anyone else has heard of it or knows anything about special diets based on blood type. Just a thought. Just got back from Anna Maria Island near Bradenton Florida. My daughter loved the beach and the pool. After dealing…
Levaquin lawsuits
I have a lot of pain in my hands, arms, shoulders and heels of my feet. The law suits on Levaquin have me thinking if they are related. I took a lot of Levaquin after my surgeries. Anyone else? I'm not sure how we would differentiate the effects of Levaquin and Chemo after effects.
Not trying to force religion but this was a great message
I do not talk much on here about faith as I know there are many views and I admire so much all of you here and your struggles and triumphs. I have been really down lately and going through lots of why me and this sucks and there is no future...just too much negative thought. This podcast was recommended this by some…
Reversal of IIeostomy rectal cancer.....Bowels not working properly
Hi my name is Elisabeth and I am from the UK. I suppose your wondering why I am on this site and that I should be on the UK site, but every time I put any heading for my problem it always referred me to the US site. I was diagnosed with Colonrectal Cancer last year September had my surgery in November 2009 where they…
Louswift
Hi Lous, I saw you posted yesterday, but I've only got a chance to come online today, ie use my sisters laptop. I can't find your post anywhere so I think you may have deleted it. I just wanted to say what you did for your colleague was admirable, not many people would do what you did. You have nothing to be sorry for, the…
i'm wondering and actually quite surprised i've not asked this question until now.
i was wondering how many if any Colorectal Cancer patients there are out there with Kidney Failure. it's my understanding i've set some kind of record to have survived this long with Stage IV CC and also have kidney failure. i do dialysis 3 times a week and of course all the requirements there are to be as healthy as one…
Best Day EVER!!!
Some of my wonderful friends organized a poker run today for my benefit. IT WAS AWESOME!!!! I got to ride b#*!h on the back of a Harley. I met so many great people. Now I want to be a full time biker b#*!h. How does one apply? I guess if there is a bright side to having cancer, it would definitely be all the fantastic…
What treatments other than irinotecan, oxaliplatin, xeloda, avastin, 5-FU
My husband has been on all of these at one time or another along with trying 4 different clinical trials. All have failed. Is anyone on other chemo regimens that are working - shrinkage or even stable disease? Dr said we are running out of options. I have not seen anyone post anything new - a new combination of drugs in a…
What the heck?
I have no idea why this is happening today. Haven't had a bad day. One of our grandsons spent the night last night (he's 3). We had lots of fun with him. Bill and I went to lunch today, I got to do some shopping. So, what's wrong? For about the last hour or so, everything's making me cry. Happy seems to be running away…
Shayenne....Gotta see the smile again.....
OK young lady, we need to see your beautiful smile again in here....Whenever ya feel like it pop in here and give us a NYC howdy doo...We miss ya and love ya very much....Buzz
Biopsy didn't go too good
What's that Murphy's Law saying???? uh huh..... Went in yesterday for my biopsy and marker placement in preparation for Cyberknife. They had decided to go down my throat and into the lungs that way instead of thru the skin. Less to get thru and much smaller chance of lung collapse. So I spent 20 minutes on an inhaler used…
“Sundance Still Alive and Kickin’”
Well, I’ve been home a little over a week now. Hospital stay was 13 very long days. Today, I had to return to the “scene of the crime.” I had an appointment with good ol’ Dr. D. – I love this guy. There he was waiting at the door to the waiting room for me and ushering me in. He took my arm and walked me down to the exam…
Friday Riddle Answer
RIDDLE: Part One: Cal Ripken, Jr, holds the record for the most straight games played spanned over seventeen seasons, from May 30, 1982 to September 20, 1998. How many games? Part Two: How many hits during his career? ANSWER: 2,632 Games; 3,184 hits
No rash this time
Hi all, I wanted to update you on **** and the reaction he had with his 26th treatment 1 month ago. To fill you in, in July, **** got a bad rash 2 days after Avastin and Folfori. The rash lasted almost 2 weeks and was mostly on his thighs. One doctor thought it was vasculitis. When I called Dr. Lenz's nurse she said they…
Specifically mucinous adenocarcinoma
Hi Everyone, **** just finished his 28th treatment. He unhooked yesterday and helped me set up my classroom all day today. He is a wonderful man. He wants to know who out there also has mucinous adenocarcinoma and what your story is. In other words is there a pattern with this cancer? Did you find a treatment that worked?…
Taking Nana's oxygen
My 100 year old grandmother wants me to come to her house and breath out of her oxygen tube for 30 minutes each day.......man, what if she dies cause she's not on it! Not sure that I want to do that!! My aunt says it will be fine but ah, don't know. I did hear that it's good for you in your fight with cancer, but do not…
I have a Pink Potatoe Peeler
Thoughts here people!!! Need them. Everything you see is for breast cancer. There was on Celebrity Apprentice a rock stars wife, named "Sharon" can't remember the last, chemo fog, pretty sure I remember it somewhere in the dark recesses of my so called file cabinet in my mind. So, how do I start something, a charity for…
Reoccurrence
Hi, this is a follow up post to my 'Five Additional Things I Tried in addition to radiation, chemo, and surgery' post I made back in June. In July 2010 both of my legs went out, and then numbness progessed upwards to my nipple line. It happened within a couple of weeks. By the time I made doctors appointments and started…
Ketagenic diet
My oncologist was talking to me yesterday about a "ketogenic" diet -- which (as I understand it) is high fat/protein, low carbs. It's a very old idea for fighting cancer -- and similar to Atkins or South Beach for weight loss, I believe. But apparently there is some new research coming out now, especially from some German…
I just can't seem to find anything to be happy about.
I think I must be crazy. Some of you guys know and have read my whining about my kids, my guy, etc. Well, the kids situation hasn't changed much. my oldest, Carl, moved back to Maine last month. I'm glad he left yet sad to see him go. He sat in his room for basically 6 months and did nothing, he ate us out of house and…
Stand up to Cancer
Raising awareness is scary but good. One in two men will get cancer in their life. One in three women. More people than ever are demanding a cure. Let's hope the next generation is more successfull than ours. Go check out the website and watch for the TV special September 10. http://changetheodds.standup2cancer.org/
Chemo Angels Program
Not sure if others have heard of this program. While I was on chemo I had a few Angels that would send me cards and letters of encouragement. It was nice to get them and they always brightened my day http://chemoangels.net/
CT scan
Question for anyone, my husband's CEA is very low, good news, but my question is this: November 2009 -- CEA 1.8; April -- CEA .7; July -- CEA 1. He has had pain in lower left adomen for quite a while, back and forth to ER and family dr. this past monday had a ct scan done and everything looked good. no metasis. Great. Pain…
Enough talk about food - time for the recipes!
I'll start: My grandmother's Braised Brisket (Eastern European) 1st cut (flat cut) fresh brisket--about 4 # well trimmed 1 bay leaf 1 clove garlic 3 whole allspice black pepper hot paprika Preheat oven to 325-350' F. Place brisket in covered casserole, fat side up. (I trim off as much fat as possible.) Break bay leaf in…
What is your favorite past time?
Mine is reading and researching, cooking......and peddling around the house. I just love it! Now that I am off work, it's like WOW, I can do this for a long time.........but time goes by so fast when you aren't working. I have worked all my life, I mean all my life.....this is an awakening! I sit here now and contemplate:…
Second update on Jim after seeing Doctor at Loyola
Well as you know we were pretty upset after the report Tuesday on all of the lesions on the CT scan, however I am so relieved to say that when we saw Doctor Shoup yesterday she told us that things aren't nearly as bad as they looked on that report! She went on to explain that the radiologists at these other facilities are…
scan results - hat in the creek
On Monday I had my first ct scan since HIPEC/rectal resection/ liver ablation surgery in April. The results are disappointing. Several more tumors in the liver. The cancer has also spread to my lungs. Many spots in both. The doctor said, "I just stopped counting." The good news is that all of the spots are less than 3mm. I…
Scan results -- good news! Chemo working!
I know there have been some not-so-good scan results recently. My heart goes out to all. But I hope/know you will welcome my GOOD NEWS results. I was diagnosed with multiple bone mets a few months ago. Started a new chemo regime (XELIRI). Had a PET scan after 4 cycles. The chemo is working!!! Every met has shrunk, and…
I think I lost my Loved one
Alright, I'm just looking for someone, (I think I might be the only one) that is going through this same thing. My husband has been there for every chemo, every Onc's appointment, rah rahed for my getting better. But.... He's taken to drinking, for the past 5 months, I have a very drunk man every evening. I'm talking…

Colorectal Cancer

Discussion List