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Colorectal Cancer

Archives for April 2010

Over two years into treatment and it finally happened
Some of you may find this disturbing so don't read it. I haven't had a complete evacuation bowel movement since my colectomy 22 months ago. I've come close, but a complete bowel movement for me usually occurs in 2-3 stages. I'm pretty sure this was caused by the primary tumor being located half in the sigmoid and half in…
My two nieces
Hi, I want to share something that happened to me yesterday. We celebrated Easter yesterday at our house, as my oldest daughter came home from University for the weekend + needs to be on a 7 pm bus back to school today. Several family members were here to celebrate. I have lost most of my hair from irenotecan, but it…
Father has colon cancer.
Hi, new to board and very confused about every thing. My father has colon cancer the plan was they had him on zoloda chermo and rad then surgury. well that lasted about 12 treatments He ended up in hospital for three weeks with bad diarrhea, dihiddration and malnutrition and twisting of the bowels Now he does not want any…
Clinical Trials
Clinical Trials My wife has stage 4 colon cancer with mets to liver and lung. She recently tested positive for the KRAS mutation so the 3rd line choice of chemotherapy (Cetuximab) will not be effective. Her oncologist told me we have a choice of going back to the Folfox regimen or look at clinical trials at a “University.”…
Is there a prep for CT scans of abdomen, pelvis and chest??
I have seen where some people have prepped for their CT scans? When I had some CT scans prior to surgery, the only thing I was told was not to eat for 4 hours before the scan. Is there anything else that I am missing? Everyone have a blessed Easter.
What EXACTLY does Stage IV Mean
The meaning I was told from day 1 was Stage IV means.... we can ONLY treat your cancer....you will NEVER be cured from stage IV....as there is NO cure for this TERMINAL illness. If you get to the "NED" status...and NEVER have a recurrance....would you not have been "CURED"?.....OR do you maintain the "terminal status"…
might get a choice
Good news or bad not sure yet DR says ca in colon has grew again so took me off chemo for now . I get CT Pet scan done Thurs and following Thurs find out if it has spread anywhere else DR said that the spot in my lungs was stable last CT scan but since the one in colon grew that meant chemo is not working. So he said if it…
Liver still acting up
they are going to do the needle bio next week some time but I gotta tell you this liver pain is the worse I have ever had. I didn't realize how important it is to have one working at 100% until I didn't have it anymore.My ONC wants to know what kind of mass I have even though the bio said now cancer cell activity so we…
experience with oral vs IV chemo
My boyfriend and I need to make a decision about his chemo for colorectal cancer. The oncologist stated that both the oral and IV meds are just a affective, but what about how it affects your day to day life? We want to know which my be better and how it worked for others.
Questions to colostomates who lift weights
I'd been lifting most of my life since early teens, lost it all in the past year and a half, end chemo within a few weeks and would like to get back into lifting, which surgeon said I could do. Started recently with 3 lb DB using right arm only (as picc is in left arm); "muscle memory", for those who are familiar with…
Patti's update
Hello all, looks like I have a recurrance in the plueral effusion area, It is from the same colon cancer, I guess all of that waiting with no chemo to have the sir spheres left me out there with no protection and this is what has happened. I was in the hospital for 5 days draining that area and they packed it with talc.…
Talk with Dr. Laura about Colorectal Cancer upcoming chat with Dr. Meyerhardt at Harvard
My CRC Connections An online community for those affected by colorectal cancer. A message to all members of My CRC Connections Chat/Conference Call with Dr. Meyerhardt Talk with Dr. Laura about Colorectal Cancer upcoming chat is April 7, 2010, 8PM EST - Dr. Jeffrey Meyerhardt, Medical Oncologist, Assistant Professor of…
Craig's Post
Hello everyone, I was so glad when I read Craig's post. I am so glad you got help. I know first hand about being humble and having a problem accepting help from others. As all of you have read, I have MS and John has helped me and cared for me for the 20 years I have had it. I can still do a lot but I am in a wheelchair…
Surgery before chemo...only option?
Hey all! Obviously, I cant get this horrible news of my moms cancer off my mind and I have one thing in my mind bothering me. The colorectal surgeon told us last week that she would need surgery before they start chemo if in fact the spots on her liver are cancer. The reason behind this is the tumor on her rectum is…
Portal vein embolization
Does anyone have any experience with preop portal vein embolization? My husband is scheduled for this procedure in a couple weeks. Any advice or experiences would be appreciated. Thanks
An Interesting Site (Especially for Californians): www.hospitalbillhelp.org
This is an interesting site. The site is directed at California healthcare consumers but the sample letters and other bits of information might be useful to people in other states: Link: HospitalBillHelp.org Hatshepsut
RECENT CANCER SURGERY
Since this is my 5th cancer surgery, I didn't know which subject to start with. I am a survivor and am still working way past retirement....I have been diagnosed with the genetic mutation gene. Finaly after 20 years, because of our family history the last hospital said .. you need to be tested for the mutation. Had I known…
Update-my husband has finished all the treatments
Hi my dear semi-colon family, This is really exciting for us.With the 5-fu pump disconnected yesterday afternoon,my husband officially finished all the treatments. The day before yesterday,all the nurses in cancer center knew it was my husband's last treatment,they gave us a booklet"life after cancer treatment"with their…
Reading Room - Reduce Your Colon Cancer Risk
Reduce Your Colon Cancer Risk Published: 02/26/2010 Colon cancer is the third most common cancer diagnosed in both men and women in the United States. It is also one of the most preventable. You can significantly reduce your risk with regular colon cancer screening, and by WATCHING YOUR WEIGHT and being physically active.…
Thank you for your purchases of Colon Cancer Bracelets
Hi Everyone, I want to thank all of you who purchased the blue Colon Cancer Bracelets. I sent a check to the American Cancer Society for $50.00 and one to the Colon Cancer Alliance for $50.00 today. Thank you for your support. I still have 15 bracelets left if anyone wants to buy one (laddavis@bellsouth.net). This will…
Hello,
I have not been on site in many months...it is coming up on the six month aniversary of my beloved siter Peg's sunset :) i am working, functional I suppose....but inwardly disoriented and so very broken hearted. The family has done all the major holidays since Oct 11, 2009~another one this week. i hurt so on her birthday…
SIDE EFFECT FROM CHEMO - 'CHATTERING TEETH SYNDROME'
I would like to make contact with anyone who has had a reaction to chemo which I describe as 'Chattering Teeth Syndrome'. This is important to me as the medical personel at the Cancer centre I attend in Perth, Western Australia, have never heard of it or come accross this side effect. I have Mucanous Adenocarcinoma Stage…
A Little April Foolish Diversion
Enjoy... This Too Shall Pass Rob; in Vancouver
ACS Email. Did anyone else receive it?
I received an email from the American Cancer Society Cancer Action Network. It talked about an 8 yr old kid who had maxed out their lifetime health insurance. Now, with the new changes happening, she will still be able to have coverage. I was just wondering if anyone else got the email from ACS. -p
Pluckey
Thinking of you and hoping you are feeling well. Hope to hear from you soon. Hugsss! ~Donna
Found a way to take Modified Citrus Pectin
I've found a way to take the Modified Citrus Pectin that is pleasant. I mixed it in applesauce. I can't taste it and there is no powdery texture. :-D
B9 but still looking
the scrapping they did the bio with came back neg for cancer , but my ONC said he is concerned that they may have missed something and he wants to do a needle stick bio next week just to make double sure there was nothing missed so that is what we will do and I got to tell you I know they are going to find nothing there…
What is your happiest childhood memory?
Everyday I post the "Question of the day" on Facebook. Todays question I thought might be a good one for the board. What is your happiest childhood memory? During the summer when my brothers and I were kids we would take off for the day on our bikes and find all kinds of things to get into. We’d ride for miles without a…
Tell ya what I'm gonna do....
If you order before midnight tonight, you can have the miracle PYRO-ENERGEN for ONLY $1119. That's right, ONLY $1119. — PYRO-ENERGEN is often imitated but never duplicated — “It's a good thing that PYRO-ENERGEN is copied by some crooks. It's a sign that our product is excellent and effective.” -- A Breakthrough in…
Colonoscopy prep with Gatorade is great
Colonoscopy prep with Gatorade is great. It really was a big difference from my last 3. Had the colonoscopy and they found one polyp that I was just told was benign. Also told my next one will be in 2 years!!!!!! Music to an old man’s ears. Now I can get the port out. They also told me there is yet a new way to prep. You…

Colorectal Cancer

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