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Colorectal Cancer

Archives for March 2010

RECONSTRUCTIVE SURGERY FOR SCARRED BELLY
Anyone ever thought of this? a ex coworker had lipo suction and a tummy tuck and it looked amazing. my belly is lumpy and has a huge scar running down the middle and i will have another scar on my side when they reverse the ileo, and when they do the liver surgery another huge L shaped scar and so i was thinking has anyone…
Interesting but sad.....really
This morning I was looking thru the cancer awareness ribbons on FB. Did you know that there is a ribbon for "Stop Animal Cruelty"? That's OK, I guess but I haven't yet figured out where that has a place on a cancer awareness ribon. But here's the kicker: that particular ribbon has reached 628,753 folks on FB. Guess how…
Happy Parade Day
Happy Parade Day everyone!
Don't forget to wear Blue
tomorrow March 5, for Colon Cancer Awareness. Claudia
update on husband (Kapper48)
I am dropping a little note because Pat has been driving me absolutely crazy about getting on here because he wants me to tell everyone hi and wants to tell you all that he hopes everybody is doing good and he is thinking about you all. As you may have noticed, he hasn't been on here in quite a while. He's been in and out…
Tired of complaining?
My post today is about me. Not the members of this board. I decided on Monday that i needed to make some changes in my life. I have been living with colon cancer since Nov 2006. Now at Stage 4. I have been under treatment most of that time..But i am still here..And i have fought hard to be here.. And i finally realized…
got last xeloda refill today
Praise the Lord I got my last refill of Xeloda today won't start it until after my visit with the ONC on the 12th than take the last. Finishing on the 25th and party on the 26th with family and friends giving thanks where it should be given..I had a great team of doctors and surgens, hospital ,onc staff and they all ask…
My Scan Results are in....
******DRUM ROLL PLEASE****** I GOT ANOTHER ALL CLEAR...NO cancer, did you hear me NO NADA cancer....Jumping up and down can you tell. Thanks for all the prayers, good vibes, good thoughts...they all worked... I am so happy....Doing the naked NED dance over here in TEXAS...oops better close the shades done want anyone…
OXI-WOO-HOO
Today I went in for my 10th treatment of folfox, I got all the premeds and then came OXI and oh want fun we had. I have the oxi infused over 5 hours because of all the neuropathy that it causes. About 1/2 hour into it I started getting very hot, I turned "cooked lobster red" and then the itching and welts started. My…
Trilogy Stereotactic Radiation
Thought I would give an update on the plans to treat my anal cancer liver met. It has been a long four months. Turns out I was not a candidate for the resection, so my case was once again put before the tumor board at Moffitt. Dr. Sarah Hoffe, radiation oncologist, was eager to take on my somewhat rare case. From our first…
Cardio Reduced My Side Effects
I forced my self over the last two weeks to walk and even run on the tread mill. This seems to have increased and speed up my recovery from my last treatment. Am I sweating out the side effect causing drugs that are supposed to be helping me? Is that good or bad?
RFA question
Did you have MRI before RFA? Surg. Onc. just called and we are scheduled for MRI in March. They also had him sign a release yesterday for KRAS testing...
Coolvdub Where are you???
Where are you??? Sure miss you and hope everything is ok. Please let us know how you're doing. Think and pray for you often. Blessings, Debbie
Question for all of you about CEA
Hi everyone, John gets his CEA done when they do his Avastin infusion every three weeks. I always hesitate to call because well I don't want to here bad news. I call anyway and if I don't they will call us. My question is his CEA has gone up a little. When he was on the Folfox + avastin it was down to 7.1 and he took a…
For what its worth, yesterday marked six months of living with a bag
which is alot better than living with a painful tumor up my rectum. When orgininally informed I had cancer and where tumor was located, I told surgeon: "Great! Just snip it off" as it was at very end of anus; which, as was explained to me then, was in fact, the worst place as there would be no healthy margin of skin left…
I am a quarter of the way done....
I started my fourth round of FOLFOX today. I know I griped on my second round how horrible I felt, but in reality, each round of chemo seems more tolerable than the one before. I really do think that pre-planning is good. I take famotadine before I get heartburn. I also am taking Culturelle (a pro-biotic) to help with…
Great piece in NY Times about colostomy
Dana Jennings wrote a brilliant and inspiring piece in the NY Times today, "Life with a Pouch on the Side." I found it so moving, hopeful, and even humorous that I want to share it with you. http://well.blogs.nytimes.com/2010/03/02/life-with-a-pouch-o Always hope, Lori www.lorihope.com/blog
double posts
some times it will do 2 or more of them I have gone into edit and tried to make it go away and it always comes back...what am I doing wrong...
Treatment for nosebleeds
Better Health PEOPLE’S PHARMACY: Unique cure for nosebleeds 5:05 pm March 2, 2010, by AJC Q: I learned a procedure to stop nosebleeds. Determine which nostril is bleeding, remove the shoe from the opposite foot and, with the heel of your hand, give two good thumps to the heel of that bare foot. I have used this tactic many…
I am back
comuter finnally fixed, just want to say hi everyone hope everyone is doing ok, read a few posts, I have been without this computer for awhile but have been thinking bout you all and hopeing everyone is doing ok, and snommit Craig just want to say thanks for the cds sorry this thank you was sooo late I couldnt find your…
Neulasta (pegfilgrim) for bowel cancer
Hi to all, I am new to this discussion board and need some help finding information about neulasta (or pegfilgrim) for treatment of neutropenia associated with chemotherapy for bowel (colon) cancer. My mother has missed half of her scheduled chemotherapy sessions over the last three months due to low neutrophils. Her…
Kidney Blockage
Has anyone had surgery to remove a blockage in the kidneys or perhaps the tubes leading to the kidneys? My sister is now being operated on to remove a blockage in her kidneys. I am scared she won't survive this. She is barely recovering from her second colon resection 2/5, very weak, depressed, alot of pain and loss of…
Any experience with RFA
My husband may be a candidate for RFA to treat liver mets? Anyone have any experience with RFA? The onc. is checking with the surg. onc. and hoping this is a real possibility. Thanks for your help!
New to boards, Need direction, Stage IV, Long post
Hello! I am new to this site, these boards, and this is my very first post. Please forgive my lack of knowledge with terminology, etc. I have a couple of questions for you guys, and would love feedback, insight and suggestions. Background: I am 27 years old, and married to a great man. His sister is my best friend in the…
One Last Hope
It's been a very long time since I have posted anything. My aunt was diagnosed with colon cancer a year and a bit ago. She had a colostomy which didn't help and then a multitude of chemo treatments. I believe she has been on both the Avastin and Folfox (Sp?). Unfortunately 2 weeks ago she was told the chemo had stopped…
update
I have been given a new diagnosis, which both shocks and saddens me. I received this diagnosis from my wife. I suffer IBHS, or Irritating Butt Head Syndrome. When I inquired as to how long this condition has existed, she stated the underlying symptoms have been there for years, but only now have the symptoms become…
Donna...great
Donna, Great to see you're back...missed you! Hope all is well with you and your family. Have you seen The Lightening Thief movie? We haven't seen it yet... Take care and keep posting...
Update-post surgery decline-More Update
UPDATE-Scan shows blockage in her kidneys and they are performing surgery to remove the blockage. Has anyone experience with this? I just returned from seeing my sister (dx 03/09 aborted liver resection 2/5/10 and another resection 2/5/10 due to blockage) after two weeks of being home from surgery. Somehow in that short…
Colorectal cancer is the theme for PatientPowerRadio.Org
All this week, colorectal cancer is the theme for PatientPowerRadio.Org. Patient Power Radio will be streaming replays of popular Patient Power radio programs focused on colorectal cancer round the clock from March Listen Andrew Schorr interview colorectal cancer experts and survivors from March 1st through March 5th in…
Avastin after all clear??
Hi All, **** still has 2 treatments to go Folfori + Avastin and then he will have a CAT/ PET scan at the end of March. We are hoping and praying for an all clear. Today at the onc, we asked if he gets an all clear, what will the plan be. The onc said he may suggest Avastin for the the next 6 months to a year. Have any of…

Colorectal Cancer

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