Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Archives for May 2009

Ileostomy Reversal...OMG!!
Hello everyone!! Well, it finally happened...the ileostomy (for some reason i no longer remember how to spell that word!) has been reversed! However...i'm not all that thrilled about it at the moment, or at all. Tiny, if you read this...i know you know what i'm talking about. And i really don't want to scare anyone who is…
Any one that has taken Camptosar
Anyone taking Camptosar Hi my father just had his second treatment of camptosar.Both times that night when he went to bed he has woke up in the middle of the night freezing and almost like he was sweating ice. When I went to change his bed close they were soaked with really cold sweat. His body felt like a freezer,it took…
Oxiplatin Side Effect
I please need people to tell me about this oxiplatin chemo drug. I am so nervous about starting this and my reaction to my doctor telling me it is just a nusance drug only and all the concern I have heard about all the side effects from you scares me. Please all of you give me your personal opinion to what you think about…
neuropathy
Hi Everyone, I've been reading on some other posts about Neuropathy and am hoping to get more input. **** will have Folfox treatment #5 tomorrow and he is still tingling from #4 two weeks ago. I am the one who has read about all the side effects and I don't mention them to him until he brings them up (he read the pamphlets…
life after chemo, radiation, and surgery
Hi, I'm new to the site. My husband was diagnosed with colorectal cancer in 2007. He had the chemo and radiation before surgery. They removed part of his colon, did a J-pouch and reconstructed his rectum. He had an ielostomy for 6 months and was re-connected in Dec 2008. He has improved but some days he has the constant…
Question about returning to work
I was wondering if and when everyone returned to work after either their colostomy surgery (APR surgery) and/or after liver resection surgery? I do accounting and I am planning on returning 3 months after the colostomy rectal resection surgery and it will be 9 weeks after my liver resection surgery. I am just wondering if…
Fatigue
Hi I have not posted in a long time. The last time I had a chemo treatment was in late Feb 2009. I had been on several regimens since Feb 2007 when I was diagnosed. My last regimen was irinotecan and xeloda from Nov 2008 until I stopped in Feb 2009. Avastin was also supposed to be included but I kept having severe…
Good News!
We just came back from our follow-up appointment with my husband's oncologist and I'm relieved and happy to report that last Thursday's scans showed no sign of cancer. My husband was diagnosed with stage 3 colon cancer in 2006 and later the staging was raised to stage 4. Happy happy happy day! Hatshepsut
FRIDAY RIDDLE ANSWER
This week's winner was Phillieg. The answer was within his second response. RIDDLE: If there were no food left, what could people do? ANSWER: Country people could eat their forest preserves and city people could eat their traffic jams.
rashes...are these something you experienced??? (post 2nd chemo update)
Hi again, My mom got done with her 2nd chemo last monday...as expected she was down for a good 3-4 days, bounced back incredibly around thursday night and now, she feels as if nothing happened...all good news and I really hope her reactions with chemo stay manageable..so far, severe headache, high blood pressure, and some…
Hi to All, I am also a newbie
What a blessing to have found you all. I am also a newcomer. My surgery was about 3 weeks ago. What great advice I have already found here, you all are wonderful. I can affirm the information on taking it easy was so correct. I tore my internal incision by being too active too soon. So PLEASE take it easy.. I have a…
I'm a new comer.
Hi, everybody. It's nice to be a member of the group. I read some of the posting, and I found them very informational and helpful. I also have Stage IV colon cancer, and I finished my chemo treatment about two month ago. I'm now dealing with the very severe side effect of numb hands and feet, even legs. I took Nuerontin,…
Getting My Port
Tuesday is an unscheduled visit to the surgeon. I had called his office with some concerns as to what I am feeling down in the rectal area and he called me back Friday night and is going to get me in two weeks early to take a look down there. It feels like something is stuck or coming out. Don't know how as I don't have a…
Gas control
I get gas and it is loud I use the bag without a filter it helps odor control has any one here use beno the gas control pill they show on TV the stores sell it.I want to know if it helps control the gas.I do not get many replies but a few would help.
Uncover the Cure!!
I thought you'd all get a kick out of this fundraiser for "cancers below the waist" :) It makes me smile and although I can't run or walk the route, I am going to see how I can get involved this year. The Underwear Affair 09 Vancouver - Uncover the Cure Those crazy Canadians! What will they think of next??? :) This is a 5K…
SURGERY DONE.... OUT OF HOSPITAL
Hey Everybody...i am finally home after 9 days in hospital. Doc removed right ascending colon. He also took nodes, some small intestine and found the tumor had gone to the outside of the abdombin wall. He said he did get all the tumor. It was very large and had evidently been growing there for years. That scares me. He…
BUZZARD
Hey Buzzard come back to us please we miss you!!!!!!
12th Folfox treatment done, I am done with chemo for good I hope
I had a pleasant surprise, I had always been thinking I had to take 13 treatments of Folfox but the Oncologist came through and said this is number twelve and I think we should stop, wait a couple weeks and we'll get some labs and a couple more and another PET scan. I am of course pleased, but it's a shock for everything…
Gallstones
Just wondering if anyone has had a gallbladder attack or had it removed??? I never had problems with it until I was on my 10th treatment. Just wondering if one has anything to do with the other..Also if anyone knows of any home "cures" for gallstones I would like to hear from you...Thanks JULIE
Vitamin B6 and Xeloda hand - foot syndrome ?
Hi all - Has anyone tried Vitamin B6 while on Xeloda? And if so, do you think it helped with hand/foot syndrome? I've seen "info" on the net related to this and also saw a clinical trial testing it - using 100 mg. Being a water soluble vitamin, it seems it couldn't hurt, but I am really wondering if anyone knows more. I'll…
NED...Happy Dance
Dennis had his CT Scans done Monday and we went to the oncologist today. NED, Happy Dance time, scan looked good. We still have to keep a good eye on on a abdominal infarenal anuresym that he has about 3.9cm but they said it looks stable. We are both so happy about the scan. Thank you all for your support. Diagnosed 1/5/06…
vitamin D- updated with a question
UPDATE: I added a post on the bottom here stating that I just got my vitamin D level test back & it's very low. For any of you taking vitamin D supplements, do you know about certain types, brands, etc. that are better at absorbing than others? Please read below & let me know- thanks in advance! Lisa…
For All Mothers
Before I was a Mom, I never tripped over toys or forgot words to a lullaby. I didn't worry whether or not my plants were poisonous. I never thought about immunizations. Before I was a Mom, I had never been puked on. Pooped on, Chewed on.Peed on. I had complete control of my mind and my thoughts. I slept all night. Before I…
CSN Beta Site
I received a message from CSN today. "We haven't seen you at Cancer Survivors Network since Aug 09, 2008, and we miss you! Please come back and visit us soon at http://csnbeta.cancer.org." It looks like the link points to the beta site of CSN. The messages there are old, like in 2008. Someone received the same email…
FRIDAY RIDDLE
RIDDLE: If there were no food left, what could people do?
Farah Fawcett
I just read on yahoo that farah fawcett isn't doing to well. Apparently she wasn't able to beat her liver mets. That is a shame. I remember having her poster on my wall almost the entire decade of the 80's. I only took it down when I was given a poster of heather thomas from the fall guy. As a matter of fact the very first…
well #5 kicked my you know what
man i dont think i have felt this bad yet,#2 was bad with vomating but i have gotten that under control.tuesday before i left the onc office my lips were tingling and i felt bad when i walked out of there.this morning i got up at 8:30 my lips were swelled alomg with my throat,its times like this when i just want to say the…
What's with Anonymous?
Does anyone else see this in the posts/comments section? There are posts by Anonymous but when you look at the topic, nothing seems to have been written. Am I the only one seeing this? A voice from beyond maybe?
Update
History: March 05 colon cancer IIIC, surgery & chemo 06 & 08 had two recurrences with single solitary tumor on liver, both surgically removed plus post surgery chemo 09 Jan CT showed 0.5cm nodule in lung, wait and see Latest CT (5/4 09): every thing is normal, the nodule is unchanged. Although I don’t write often, yet I do…
Diagnosed 4/8/09 with BOTH Adenocarcinoma of Rectum and Adenocarcinoma of Esophagus. Started Chemo
I'll be posting on this board and the esophageal board as I've got both. On April 7th, 2009 I had rectal bleeding from 7pm thru 5am prompting my visit to a gastroenterologist on the morning of the 8th. I had dismissed prior blood in stool as being related to hemorrhoids for over a year. Aside from an obvious need for a…

Colorectal Cancer

Discussion List