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FEARFUL AGAIN
Hello everyone. Sorry I do not write often but I do read the messages. Brief hx. Stage 4 Colon cancer dx. 8/03. Most recent petscan was Dec.06. Most recent surgery was March 07 for completion of the removal of the rest of the colon which was inflamed. I was left with an illestomy on the right side. I have been out of work…
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CAT scan results...
Hi everyone, Just want to let you know that my dad continues to be NED! He has been off of chemo since September of 06 for stage IV CC that spread to his liver. Thank you to all those who prayed for him. Prayer has really gotten us through the last year and a half. God bless you all, -Lee-
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10 down, 2 to go
Hi. I wrote a couple of weeks back when I had just 3 Folfox sessions to go, and suddenly I was scared to death after being really, really strong up til then. Thanks to y'all and some good friends who listened and prayed, I went in and I am back to whatever normal is. Now, I have only 2 left. I see my doctor before the next…
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New and Needing Guidance
Hi, My mom has been in the hospital for 2.5 weeks. She went in with extreme fatigue and a 25 lb. weight loss (she is now 100lbs). She hid this well in order to care for my dad. Finally, her bp was 70/30 at and she could't stand. The doctor hospitalized her and right away suspected cancer. She was so malnurished that when…
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Foundations of Healing: "The Will to Live"
In "The Mapmakers Wife", Robert Whitaker tells the inspiring story of an 18th century Peruvian woman who makes a remarkable journey from the Andes Mountains down the Amazon River to be reunited with her belved husband Jean. Isabel Godin left her home in 1770 with a large party which included her brothers, a nephew, and a…
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Lung Biopsy Part 2: NED!!!!!!!!!!!!!!!!!!!!!!!!!!
Can you believe it!? We went in Tuesday for the surgery. We had decided to do the chemosensitivity Assay testing of the tumor, so I went into the OR with the collection kit and Fed Ex package in hand. After the surgery the surgeon came into the waiting room, handed my husband the collection kit and said "looks like we…
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sad news to report
Many of you remember and have asked about musiclover and Mark, and I'm sad to report that Mark passed away in February. I hesitated to post this news, and I hope musiclover doesn't mind that I am doing so, but I know many of you have been very worried and concerned. Musiclover was with Mark when he died, holding his hand.…
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For IIeana and all newbies.
Hello, I am now in my 14th year since stage 4 Colon Cancer, amd am NED. A brief history. 1993 Dec. Diagnosed with Colon Cancer. Hemicolectomy and wedge resection of large liver met Dec 20th 1993. I had 52 weekly infusions of 5fu, plus levamosole every second week for 3 days. Next year I had a partial mastectomy,…
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REMEMBER ME?
Hey there, y'all! I've been away, but I'm back! Writing you from my stateroom in the mighty Coast Guard cutter DALLAS (but I can't tell you where we are because then I'd have to kill you) We've been at sea for almost two weeks now. Hard to believe... I guess I still have my sea legs because we went screaming into 20…
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NED and I have a trial separation!
Just got back from MD Anderson and the news is not AWFUL, but not good. Three months ago, NED and I began a beautiful love affair and now we are on the outs. We have decided that a temporary separation is in the works for us. My lymph nodes are showing signs of activity. I have englarged nodes in the abdomen (mesentary),…
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Here we go again...sort of
Hello All, I had a biopsy done 2 days ago, and my gynocologist called me today & told me that I have early stage uterine cancer. Although it took the wind out of my sails since I am still dealing with side effects from the Folfox (Stage II colon cancer), I was not really surprised, since the gene that bestowed the colon…
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It's a good day!
Hi all, First I want to say " THANK YOU" to all of you for being there when I came here 6 months ago. Today was my husbands last chemo treatment. He got thru the 6 months with very little problems. He is tired but he worked thru it all. I can't thank you enough for just being there. I didn't post much but have looked in on…
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so sad..again :(
Hi all, Well, as some of you know, my husband Mike was dx. at 39 with stage 3 in Sept. '05...extremely happy to say he is NED and doing WONDERFUL!! I posted last month regarding my mom...dx. in Oct. '06 with bladder cancer, they removed one kidney, ureter, and cuff of bladder. We were told it was a very aggresive form, but…
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Free Denver, Co Patient/Caregiver Seminar
Conversations about Colorectal Cancer: Finding HOPE (Healing. Options. Peer Support. Education.) in your Community presented by the Colon Cancer Alliance are free one day seminars intended for colorectal cancer survivors and caregivers. These seminars will offer information about the latest treatment advances and give…
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More questions re: Folfox
My oncologist has just returned from the ASCO conference in Chicago saying that from now on all his patients will be doing nine cycles of Folfox as standard, instead of 12. He said that at the conference there was a presentation on Folfox which showed that the survival benefits of Folfox were still present at six years for…
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bud's book of the month
Tomorrow by Bradley Trevor Greive
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Need Help with my emotions!!
I am not sure how to start this so I am just going to start writing... I am just so full of emotions right now I could just scream, I could not even think for a minute what my dad is feeling right now having to go through all of this. I feel so bad for him and he is just so tired, I just hope he doesn't give up. I know…
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Test results from Dr.
Hi All Semicolons, Just wanted to let you know my Oncologist called me this evening about the Pet scan I had today; I also had a CT with contrast. The radiologist called him and said I have a 1cm spot on the base of my right lung. My oncologist called my surgeon and they discussed what to do about it. My surgeon only does…
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First time I hear "curable" from a Dr.
Hi ! I went for a 2nd opinion today. Talked to an Onco/surgeon so he has experience doing this type of surgery (psoas muscle masses) Well...I have a smile on my face...He was just talking to me and asked me when I was Dx..I told him 2 1/2 years ago....he told me (like we know) that after 2 years we have a better much…
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To Jose- CSN Guy........
Is there any way to keep the "treat cancer" person from putting their multiple advertisements on the site? Can their IP be blocked? Thanks, Heather
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Chemo and Surgery
Good short article: http://my.earthlink.net/article/hea?guid=20070605/4664dfc0_3ca6_1552620070605-1541249441
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More on Sir-Spheres
My friend Suzanne sent this to me, so I thought I'd pass it along. I hope you find it helpful. -Susan H. Emerging Trends in Radioembolization Using Microspheres: A Clinical Workshop Highlights Latest Research and Data Regarding Treatments for Advanced Liver Tumors Sirtexs SIR-Spheres® Microspheres featured at third annual…
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LONG TERM SURVIVAL!
Hi all! I've noticed a lot of new visitors and posters on the board. Great to see you here (Sorry about what brought you here...but you HAVE found the right place). I am a 44 year old who survived stage 3 rectal cancer at the age of 36. Now, eight and one-half years later, I am living a wonderful life and remain cancer…
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sorafenib (Nexavar)???
Does anyone know if the new study about the drug that helps liver cancer also will help those with seconday liver cancer (liver mets)?????? Here is the article below. Maybe they have not tired it yet on those with liver mets. For the first time, doctors said Monday they have found a pill that improves survival for people…
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Comments on my dad's new Med's
My dad will be taking leucovorin, irinotecan, fluorouracil (injection) and avastin. If any of you have taken any of this, please let me know how it worked for you. The Dr. was great and sat with us for over an hour and talked to us about what didn't work the last time and what he thought would work this time. Let me know.…
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Rising CEA and PET scan
Hi All Semicolons, I was just wondering how much of a rise in CEA is needed to order a Pet scan. Mine went up in April so my Oncologist order a Pet. It showed nothing, so we retested CEA last week. It almost doubled, so now he wants another Pet scan. I'm not sure it will be approved by my insurance. The last one is still…
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Going to Alaska...maybe a song...lol
Leaving EARLY (6:30am flight) tomorrow to fly to Vancouver...7 day cruise.... Take care, all....sigh...7 days WITHOUT a computer.... Hugs, kathi
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My Father's Path Report
Well the report was released to my Dad's GP and it appears that the lesion found during the re-section was 4mm's wide by 2mms deep. The deepest tissue that it penetrated was the sub-mucosa and it was classed as a low grade lesion. The home care nurse was in this morning and she works as an oncology nurse in addition to…
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First chemo ever...
Dear friends, I'm having my 1rst dose of chemo (FOLFOX) on tuesday. Needless to say I'm a bit worried. What shoudl I expect? will I feel anything? I will be going home with a pump. What about that? how do you deal with it? Would love to hear any insights! Thanks, Christele 36 yrs old, stage IV, 10 mos old baby
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Upcoming CAT scan...
Hi everyone. Hope you are all doing well. I read your posts almost everyday and always keep you all in my prayers. My dad is going for his follow-up CAT scan on Monday. We will be getting the results the following week. This time is always an anxious time for me. He has been NED since September and as I mentioned before,…