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neuropathy update
Hi all, Wanted to give you all an update on the neuropathy cream I have been using. I have been trying to find an effective dosage after infusion of FOLFOX and Avastin. I used the cream before starting my chemo treatment last Wednesday. I didn't have nearly as strong of tingling and cold sensitivity as normal. I would say…
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Post Takedown
I'm 10 months out from my ileostomy takedown, and Im happy to say the insanity has passed. I was going up to 30 times a day for 6 months plus with incredible burning pain. Not hard to imagine why the burning! I have dialed in a pretty good diet. Can still have a few hours a day to work things out, but nothing like before.…
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Pet Scan Results - Not Good
Well, my dad got his results today and we do not have good news. Diagnosed 05/2002. Multiple surgeries. As of 6/06 - NED with a cea of 5.5. In September 06, pet showed multiple spots in liver (did not give number or size - find this odd). At that point cea was 55. CEA climbed to 189 by end of October, very aggressive. Went…
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NED after 7 months of chemo
I just got my CAT scan results and I am NED after 7 months of . I am celbrating tonight.
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Juicing
I was looking into juicing? I'm really not very good at eating all my fruits and veggies,and I've been looking into a juice machine and maybe a recipe book on all different kinds of juices. I don't how to start so I'll take any and all advice. Lately I've been craving sweets so I would like a healthy way of getting rid of…
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Still Dancing with the hunk, NED
I just got my results. It was the first time I went to the 6 month interval for testing and I was pretty nervous. Brief history, stage IV with mets to liver and left lung....stopped chemo in Oct. of 2004. My oncologist says I am only one of a few patients of his that has gone this long in "non-surgical remission", it is…
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TB positive
We've just found out that my niece was tested positive for TB.. and she is now awaiting her chest x-ray results. Should I be concerned with being near her, because of my husbands condition?
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Jen's girlfriend
Hi all. I am pleased to tell you that Carol is now back home and getting better by the day after her bypass surgery. For 3 days things were not looking good as the doctors were not able to get her lungs to re-inflate. Carol was on a respirator for all that time and my friend Gordon(Carol's hubby) was beside himself. The…
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Sponger and Katie
Soory I missed your recent post guys. Better late than neva. Jen and I checked out the "wedding bliss pic" and clearly you are both very happy. Katie...maybe I better send you some details on how to tie a "bowline" then all yah gotta do is keep him on a short leash! Sponger, bout time you stayed landlocked for a spell! Luv…
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Trouble sleeping
Hi, My husband has gone through soooooo much in the past 1.5 years. Chemo, radiation, surgery for removal of the rectum, colostomy, surgery for liver resection, now back on chemo, waiting for tumor to shrink for another liver resection, that he's been having trouble sleeping! Major trouble... He has not slept in 3 weeks!…
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afterchemo losing weight
Does anyone have any tips, web sites books that help with eating healthy and losing weight after going thru chemo?
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Where can you get financial help in North Carolina.
I've had this disease since 10/04 and still not getting disabilty. Waiting for a hearing for over a year now. It is putting alot of stress aaon my marriage. We are close to losing everything, my husband is doing the best he can, he is working 5 days a week, and odd job on the weekends. I've not been able to work and can't…
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Remembering Sweet Baby Girl Andrea
Hi Everyone, May 10th will mark the first anniversary of the passing of Sweet Baby Girl Andrea Elder. Please take a moment today and remember this truly special young women that we all came to admire for her courage, strength and determination in the fight. Andrea was one of a kind and is truly missed by all who knew her.…
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Intestinal Fistula?
Anyone had any experience with the development of an abdominal abscess and an intestinal fistula while on chemotherapy? My husband has been on camptosar and avastin since late November. He is now in the hospital (since Friday) recovering from an abdominal abscess caused by a tiny hole in his intestine. The doctors suspect…
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Fanny Pack???
Okay, today is the first day I have done outpatient chemo. I've been doing the inpatient deal on the weekends and decided I could not stand the feeling of being "locked up". This is my 4th treatment and I could not bear another weekend, especially with the beautiful weather. Anywho, I now have this "fanny pack" to haul…
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nose bleeding
I have a question has anyone had nose bleeding while going through chemo. I'm stage 3 with 2 nodes. I'm on my 4th treatment with oxy,leve,and 5fu. The last two treatments I notice blood when I blow my nose in the morning. It isn't like a bloody nose but any time I see blood lately I freak out now. I go to my onc on Monday…
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canada eh!
Operated on January 2006 stage III rectal 2 nodes involved. Completed Folfox/radiation October 2006 I've had a 1 complete CT scan in November 2006 and 1 lung CT scan done in February 2007. Went for my check-up with my oncologist yesterday (may 2007). Blood work taken - results not yet reported. There was no mention of CT…
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New here...
Hi, I'm new here as a member, but have been reading posts for about 3-4 months now. My husband (44) was diagnosed in October 2005 after being treated for hemmorhoids by his family doctor for over a year! He was diagnosed with stage 4 cancer as it had spread to his liver. Right away he began 6 weeks of radiation along with…
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Anal cancer and long term pain
I am a long term anal cancer survivor. I was diagnosed and treated in 1998-1999. I had 5FU and Mytomycin-C and 5 weeks of radiation treatment. Now I have muscle pain, stiffness and limited range of motion in all of the areas that were radiated. Has anyone else experienced this type of situation? Please reply. I am very…
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Issels treatment
Is anyone familiar with the Issels treatment being done at the Issels Medical Center? There was a testimonial at their website www.issels.com by a CSN member. If you check it out, please let me know what you think. Thanks!!
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just needed to dump this off my chest
Hi all. just wanted to get this off my chest. I am having a crappy crappy day. I am sick and tired of chemo, fed up with tip toeing aroung issues at home and frustrated as hell with my partner an the total lack of concern and support. It feels like I may be single after 19 years if this keeps up. I know we drive our own…
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Chemo treatment
I am a new member. I was just diagnosed with colorectal cancer (stage 3b) in April and had surgery a few weeks ago. I am starting chemo on May 21st. I was shocked to learn that I have colon cancer, partly due to the fact that I had breast cancer in 2003 and have been under the care of an oncologist. I had surgery and chemo…
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BobKat!
here's a quick wedding photo from yesterday! http://www.acscsn.org/view/viewer?object_id=csn:rel:feworks234902341001178549248 We tied the knot yesterday - what a BEAUTIFUL day! Each of you were there in spirit and in our thoughts. Thanks for your kind words, Kathi and all who replied to your post! - SpongeBob & USAKat
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Last Call.......
Good Monday Morning, Everyone! Appears we are down to the wire for Colon Palooza 5. The rooms have all been taken, but if anyone is still interested in coming, you can still get a room for the negotiated price of $ 159 until THIS FRIDAY, May 11, 2007. Call the Hilton, downtown Nashville, 615-620-2150 or e-mail your request…
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Everyone who watched raise their hands
I really hope that everyone got to see the special "Living with Cancer" which aired last night on Discovery. Between all participants, so many things were said that I have been unable to verbalize, and it was somehow very liberating to have it all out in words. If you did not get a chance to see it last night, it airs…
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Simple Question
I was dx with a bad sinus infection on 2 May 07 and declined antibotics because I was on them for about 6 weeks and they increased in my liver counts. I have been off of them since 11 April 07, but my symptons are not getting better. Has anyone had a bad sinus infection with sympstons that mimnic a bad cold? Sore throat,…
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Is FAP & Gardner Syndrome the same?
I have been looking into yahoo groups for support and I found 1 gardner syndrome and they are saying that they are the same. I'm very confused, can someone help?
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Ted Koppel's Cancer survivor tv tonite
For those interested, just a reminder that Ted Koppel is doing a tv documentary on cancer survivors tonite on Discovery Channel at 8pm. I know that one of the features of the show will be his friend Mr Sievers. It's important to know that when Mr Sievers was filmed, he had been newly diagnosed and had not had many of the…
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update--- stress at altime high
As I have been reporting my dad is in real bad shape. Today however he has worried us like no other day. We live on a small farm where we built a house 2 years ago to be closer to my dad as he got sick. We live about a quarter of a mile from my parents. Today my mom had to go to town and I went and checked on my and found…
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2 years today...no CRC!!!!
It was 2 years ago today that I awoke from my resection surgery to the news that none of the stuff they removed looked like it had any cancer. Subsequent lab results confirmed this!!! So, doing it for me... YEA YEA YEA YEA YEA YEA YEA!!!!!!! NAKED HAPPY DANCE!!!!! Hugs, Kathi