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Going to my 1st Relay for Life
I am finally able to go to my 1st Realy for Life 5-18-2007. I was diagnosed with rectal cancer in late Oct. 2004 and every year since have had just had surgery or was recovering from it. So this is a BIG day for me. I will have my husband and 4 children by my side when I walk the Survivor walk. I am planning on walking the…
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The cancer is back...
Hey everyone....I havent written in awhile but had a PET scan yesterday and it came back that the cancer is back...it showed up in my lungs. I have heard of it coming back in the liver but not the lungs...has anyone had this happen?
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Update
God is good....the nurse just called....No new tumors...same old small tumors on my psoas muscle...believe or not I was hoping for a spontaneus remission, but I will celebrate this...I have an appt. with the Dr. next Tuesday...I supposed to discuss surgery...I'm on my way to meet NED again....Thanks for your words..they…
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Looks like a party!
Good Morning, Everyone! Well, I just got confirmation from the Hilton Downtown Nashville that the following have reserved their rooms for Colon Palooza 5 to take place Sept 12 to 16 in Nashville, TN. Ying (JADot) Lisa & Andy (Lisa Rose) Bob & Katie (SpongeBob & USAKat) Lisa (scouty) Kerry (Kerry! lol) Betsy & hubby…
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Chemo-brain
Hello all, A few questions: At the end of October, 2006, I finished chemo (Folfox). Since then I have noticed a substantial decrease in my memory. For example, I have a difficult time remembering recent conversations, and I often confuse words, both in writing and while speaking. For example, a few posts ago I meant to…
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scared
I called my nurse to see if she could give me the results of my pet scan.She didn't. The last time she did this it was bad news. To refresh your memory, I have been on chemo for 6 months trying to get rid of 2 smal tumors in the psoas muscle. The chemo shrunk one but the other grew a little bit. The pet scan was to…
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first time to any chat room...
Hello .... I have had small cell colorectal cancer twice -- initially in 2/03 and then a return of cancer in 2/05 to the outside of the rectal wall. The first time around I had chemo (carbo platin and VP16) and radiation. The second time I had surgery with internal brachy (sp?) radiation, then two sessions of chemo. I…
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GOT SOME GOOD NEWS
Say my surgeon on Monday, 14 May for a follow-up visit to my colon reconnection surgery of 27 Feb 07 and I FINALLY heard the words I have been waiting to hear. YES I CAN BEGIN WEIGHT LIFTING. Hurray. I will be gym shopping this weekend.
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Interview with Stage IV survivor.
Hi! I just wanted to share this radio interview with you all. My friend Suzanne who is an 8 year Stage IV survivor with metastatic disease was interviewed. It may be of interest to some of you because she discusses SirSpheres, helpful websites, etc. Cheers, Susan…
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Really rough nite for us
Sadly, our 11 year old faithful German Shepard, Shadow, died tonite suddenly. I guess it was better that she died at home with us then having to bring her to have her put down. Right now , my heart is very heavy . She was primarily my husband's dog and devoted to him and he is taking it very hard. In all these years I've…
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Holistic Medicine/Doctors
Mary from WI is back! Hi online family... I hope each and everyone of you are safe, happy, and feeling good today! ; ) Also, I had some questions regarding "holistic medicine/doctors" and "juicing so... (and I am asking all of these questions for my mom recent post titles: "My Family Letter -is my mom dying everyone?") -…
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upcoming scan
Hi all, As many of you know I have started to be a bit more active lately on the board. What you may not know is that I also post on another board called Gay Men talk about Cancer. I mention this for two reasons. First if you know of anyone that this board may benefit please direct them there. Also I have a PET scan next…
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Free Greensboro, North Carolina Patient/Caregiver Seminar
Conversations about Colorectal Cancer: Finding HOPE (Healing. Options. Peer Support. Education.) in your Community presented by the Colon Cancer Alliance are free one day seminars intended for colorectal cancer survivors and caregivers. These seminars will offer information about the latest treatment advances and give…
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Latest Update!!!
Hi, Here is the latest updated: I talked to both of my parents and I am very upset. My dad told my mother today that he thinks he is going to cancel his appointment with the new Dr. I was really talking to my mom on the phone and she told me that was what dad had told her today, so she told me which intern upset me. Then I…
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CT Scan/ MRI APPROVED!!!
Finally, my scans are approved, and scheduled for tomorrow (Tuesday) and Wednesday!!! The insurance gal called this afternoon and had the imaging center on the other line...set both up...so, now we can get to the 'bottom' of this..heeheehee! Thanks for all your good vibes and well wishes! Hugs, kathi
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How do you stand insurance issues?
Hi - So I just checked my insurance online and my 4/11 PET scan was "denied"! Reason - this charge is not one your provider is allowed to bill! OK, this has to be a clerical error (perhaps an error on purpose?). Why do I need to go thru this stress. Can't talk to a human until during the day tomorrow. I absolutely HATE…
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New message - nowhere
Hi all - I posted a new message - it didn'g show up anywhere - just trying this as a test. Anyone else have this happen? Betsy
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Dancing the happy dance!
Hi all, Well just got back from my onc.. and got the results of my PET/CT that I had done last Tues.. once again, God has blessed me.. and I am NED. I was dx in July 2003 with Stage IV that was on the outside of my colon and spread to my ovary. I had surgery, a colonostomy for 18 mos. which I had reversed. And 5FU and…
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My family letter - is my mom dying everyone?
HI ONLINE FAMILY, AS I SIT HERE AND BALL UNCONTROLLABLY... DON'T KNOW WHAT TO THINK OR HOW TO FEEL. WE JUST CAME BACK FROM MY MOM'S CLINIC APPT. SO; PLEASE READ BELOW... I JUST WANTED TO GET ANYONE'S THOUGHTS, OPINIONS, SUPPORT, WHATEVER ON THE NOTE BELOW THAT I JUST GOT DONE WRITING TO MY FAMILY REGARDING MY MOM SO...…
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cancer and radiation treatment
I am a long term anal cancer survivor. I was diagnosed and treated in 1998-1999. I had 5FU and Mytomycin-C and 5 weeks of radiation treatment. Now I have muscle pain, stiffness and limited range of motion in all of the areas that were radiated. Has anyone else experienced this type of situation? Please reply. I am very…
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To ahamilton2/Question for You
Hello: I am writing to you because I saw your response to someone about your stage IV colon cancer. My dad has stage IV. He was diagnosed in 2002 (multiple surgeries and treatments since then). One of our surgeries took place at Johns Hopkins so we are familiar with that hospital and love it. Until September 06, his cea…
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hello everyone from the sunny....
Hey Guys, Wanted to check in. I am in the sunny Caribbean on a cruise with my family. I am celebrating my 3 years ned. I wish you all could be here with me. To all newbies there is hope, I was stage 2 May 04, colon blocked had temp bag than resection,6 months chemo. Attitude and a lot of faith a big part of beating this…
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Getting a LITTLE mad...and sad....
Well, tomorrow will have been a week since my onc asked for a CT Scan...STILL no word!!! On Thursday, I called to ask if anything had happened, I was told "Nothing yet...But it was ONLY Monday"....sigh....I patiently explained that 2 hours after leaving the office, I had a raging case of canceritis, and I had it in my mind…
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And So It Begins
Hello everyone. Although I have not posted, I have followed this board daily. All I can say is wow I feel very informed. Thank you. Thursday my Father will undergo his colon resection. We are praying that the surgeon will be able to do the surgery using the laproscopic method as my Father will have a much shorter recovery…
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This is all new to me.
At the age of 29 I was diagnosed with colon cancer. 6 months ago, I was given a clean bill of health but recently learned it may have spread to my uterus. My sister found this site for me and encouraged me to sign up and ask my questions here. The truth is, I know so little, I don't even know what to ask. I would love to…
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bleeding..
Well..I'm back from my mini vacation to Puerto Rico !but something happened twice while there...I bleeded after #2...I was kinda constipated...actually it hurted a lot....hemorroids, maybe ??? Scouty, Kathy...glad to hear about your results !!! My pet scan is on Tuesday...pleaseeeeee send some good vibes to texas... Thanks…
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oxy side effects
hi everyone, just a question about my folfox treatment. Ive had three treatments and my forth on Monday . it seems the sensitivity to cold lasts longer with each treatment. the last treatment lasted ten days. the first two treatments lasted about five days. I wonder if it something I'm doing or not doing or is it normal to…
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3 weeks off chemo and walked 5K
I just wanted to give hope to others. I was dx in Oct 06 with stage iiic colon cancer, just finished up 6 months of chemo and today walked in the Soleburner for Cancer research in Appleton, WI where I live. Yesterday got my NED results. Yes there is hope, keep praying and think positive.
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for newbies or stage 2'ers
Sorry I have not been around to answer some questions guys n gals but I thought a little reassuring comments might be worth a mention. My profile briefly; Dx'd stage 2 aug. 03 with sigmoid cancer, 3/4 blockage, surgery for high anterior resection, 6 months chemo(5FU/ leucovorin). Status now; NED( no evidence disease)…
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To all the Moms & Daughters & Sons
Happy Mothers Day. I know that for many of us, the day will have it's joys and sadly it's sorrows. To those who have experienced the loss of a mother or child, I sincerly hope your wonderful memories will make the day a good one for you. I still miss my Mom a lot, (especially now ) although it's been almost 10 years . She…