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It's THAT time again!
Happy Friday, everyone! It's time for that weekly reminder to book your room at the Nashville Downtown Hilton for COLON PALOOZA 5!!! I realize everyone is busy with family, work, treatments, and life in general, but time is ticking!! We have a good number of folks reserved, but there are still a few limited number of rooms…
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Sores in Throat and Mouth from Chemo
Hello, My grandmother was just diagnosed with rectal cancer about a month ago. Her treatment so far has consisted of 5FU and Leucovorin for 5 days, Radiation for 6 wks, and then another 5 days of the chemo. She has gotten these terrible sores in her mouth and throat and is unable to eat or hardly drink anything. Dr. has…
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Double Lumen Ports
I am scheduled to have a double lumen port. Anyone have experience with 2 versus 1? Any problems or suggestions?
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Graviola info
I just had a PET scan and it looks like it's back in my liver and lung now. I had a clean CT scan a year ago. Had surgery in 2005 after dx of Stage II without nodal involvement. The onc did not recommend chemo. I do a liver biopsy this Friday the 13th! So I don't have the official dx or tx from the onc yet. Doing tons of…
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Sugar and Cancer
Hello Semi-Colons, I am posting an article about something very basic to cancer healing and could be all the difference in someone's outcome. It is worth the read. Just know I am always thinking of you all when I read these and want to share the knowledge. For some you have never heard this and others you know this is my…
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Ned
Hi all, I'm not around too much anymore...but just wanted to poke my head in to tell my good news. Got scan yesterday that was clear (well besides the usual little weird things that they don't seem to be concerned about). Yay! I'm at my 2 year mark from DX, so onc tells me that is real good milestone to reach. I was DX…
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CEA Level and Treatment
My dad is currently on avastin and 5 flu (??). His cea went from 189 in October to 57 in February to 59 in March. We are concerned about this two point increase; however, the oncologist is continuing the treatment. In the past (previous oncolongist), my dad stopped treatment if his cea level rose at all and had a pet scan.…
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Help re: diagnosis and scans
About 10 years ago I had an enlarged thyroid. I got a biopsy which was inconclusive, was told I needed surgery to have it removed, and got to spend what amounted to a couple months pondering the if I had thyroid cancer or not. Luckily, I didn't. Two years ago though, I had a total hysterectomy due to being diagnosed with…
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Please Help Me
I am a 41 year old married father of 2 (with 1 on the way). I just went in for a colonoscopy this morning due to some bowel symtoms that I have been having. After the procedure I got the shock of my life - the Doctor said that I had multiple (at least 40) polyps. He said he removed one of the larger ones (thumb nail size)…
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Mom has scan today
My mom is having a PET/CT scan today. Her last one was at the end of January and it showed progession. She has two mets, one on each adrenal gland. She decided not to do further chemo and instead she recieved Cyberknife treatments to both adrenal glands. The Cyberknife treatment was 4 weeks ago. She has been off all chemo…
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Prayers Really Needed
Just found out a co-worker who just returned to work from by-pass surgery just found out that he has cancer in the lymph nodes, back and also in the colon. I don't have any other information but waiting on more details. His name is Jeff. Please pray as much as possible.
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Good news for mom
Hello Everyone: Finally finished around of test from heart, bladder, colon and stomach from the ct scan results. Everything went very well. All biopsies came back negative (wonderful). But, however, there are 4 areas in the lungs we are watching (hopefully nothing). We start all over again with ct scans in June. I feel…
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You were right
I finally got my test results back and there was a change in my CEA. It dropped from less than one to what the lab termed non-measurable. Stacy, Kathi, Monica, and Betsy you optimists are always going through life with an attitude I find frustrating to understand and at the same time deeply admire. Thank God for people…
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chemo brain
Help- I think I'm going crazy! Just a preview- I am a 43 yr. old mother of 3 boys. I was DX stage 3 in Oct. 2005 and after a resection started treatments of oxaliplatin and xeloda. I finished my treatments in May 2006 and spent last summmer healing. I had noticed a bit of chemo brain (recently my sister told me that when I…
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DC SEMICOLONS - FREE FOOD & DRINKS!
Now that I have your attention... I wanted to send an invite out to the Washington DC-area SemiColons: This Friday (the 13th - yeah, I know...) I am having a Going Away/Clean Scans-still NED/Promotion/Meet the Future Mrs. party at Sine Irish Pub in Pentagon Row. Drinks and munchies are on me from 4:30 to 7:30 (the things I…
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Scan tomorrow
Hi Everyone. My husband's first scan after starting chemo is tomorrow. We are hoping and praying for some positive signs that the tumors in his liver are shrinking and no progression. I know you will all keep us in your thoughts and prayers and want you to know it means a lot to us as I believe prayers are the most…
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Anyone Hoarse with Avastin/Camptosar
My husband has been taking Avastin and Camptosar for four months. He has had dry mouth for some time but now he is having a problem with hoarseness. Anyone else have this experience? If so, any suggestions for what to do to relieve this side effect? Hatshepsut
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CSN HOME PAGE 2 OF OUR OWN
Check out Scouty and JaDot on the home page. Two mighty fine looking women!
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Previous Stage III - more GREAT news
Hi All~ A little background...My Dad was diagnosed with stage III colon cancer (4 of 15 lymph nodes positive) at the age of 59 in January 2004. He had surgery and they took out a foot of his colon and resected the remainder. He endured six months of FOLFOX. Fastforwarding to now...I am THRILLED to say that we just received…
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trying to start a support group
In Minneapolis where I live, I have not been able to find any type of cancer support group to attend. So... I am looking to start one. Has anyone done this, or does any of you attend any cancer support groups? I would be interested in learning from you. thanks Limey (Mark)
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NO REVERSAL FOR ME
I had my reversal scheduled for this Thursday. I called the onc today and left a message that it was scheduled. He called me back and told my husband that because I'm taking Avastin that if I stop I can't start again. I guess I'm on some type of trial. So it looks like another year of pooping in my bag. It was just an all…
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THANKS!
I'm new to this and have trouble navigating the system, but I want to thank all of you who responded to my request. I'm thinking hard about chemo this time and maybe using a holistic approach. Someone told me about a site called Cancerfightingstrategies.com and I was amazed at the testimonials some people gave. I hadn't…
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WBC dropping!
I had my "port" put in Friday. During the pre-surgery testing, I was told my white count had dropped to a 3 something. I go to the onc tomorrow and I'll have my blood work done Thursday for my chemo treatment this weekend. I'm curious as to what is done as far as medical treatment when the count drops and what precautions…
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Potential Cures Kept from Us
Hey all you awesome Semi-Colons! This is the latest article from a medical writer/researcher who raises an important issue of how drugs get patented and what is kept from US-- the ones who need them. At the end he talks about melatonin which is something that I still take every night that was prescribed to me for shrinking…
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oxaliplatin
Hello, I had my first clonoscopy at 55 (july 2004)and was diagnosed w/colon cancer. I had a sigmoid resection at that time and was given 5 Fu & Leuvocorin for 6 months. Which I completed w/o any major problem, other than bleeding nostrils. My Dr. recommended sigmoidoscopys yearly & told me a FULL colonscopy wasn't needed…
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IV line
On Wednesday I am having what is known in the UK as a "Hickman line" inserted under my collarbone in preparation for six months of Folfox. I had presumed this was what is referred to on this board as a "port" but I've just read something which suggests I may be having an old-fashioned and cumbersome device compared to what…
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Frustrated with the medical system
Well I'm 18 months after treatment and may still be NED from Stage III. I went in for the usual 4 month blood draw on Wednesday. Onc said my white blood cells were just about normal but that the platelets were still down but not so low to be of a big concern. Red blodd cells normal. The tests I was obviously concerned…
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still hurting after 1 year
Thankfully my husband got a positive report after his 1 year postop from colorectal resection surgery for stage I cancer, unfortunately his problems with painful and hyper-frequent trips to the bathroom haven't improved much. He has tried fiber, no fiber eliminating certain foods etc. Nothing seems to help. Does anyone…
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Scared and Frustrated...
Hi all, I've been absentee for awhile but I read posts here semi-regularly. My story briefly is that my (then) husband Chris was dx w/ stage II Rectal ca in April '03, chemo/rads/surgery ensued. He prevailed except for our marriage which deteteriorated in fall of '05. Speaking of which, I need a new tag name, chrisswife…
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Update - good news
Hello all. Her is a quick history: dx stage 4 colon cancer on 8/28/06. Colon surgery on 9/1/2006 removed 21 nodes, 1 positive. I had a CEA of 17. I had a 3 cm tumor located in right posterior lobe of the liver, by CT and PET. I went on 6 months of chemo (xeloda, erbitux, oxyliplatin) interrupted by a Thanksgiving pulmonary…