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Re; Kerry's news
I posted this for Kerry 'cos this reply has now dropped off the page.Geez...is that a relief gal...I was worried 'bout yah! Hope you don't mind.Just wanted to be sure everyone knows you are ok.luv Ross n Jen from Kerry;My doctor reported that I am doing "excellent". Hooray! My CEA dropped again, now it is 2.6 and he…
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colorectal cancer stuff
A dear friend sent me a packet of wonderful items for colon cancer. There are blue pins, bracelets, key chains, magnetic bows, beautiful pamphlets, etc. Just go to www. choosehope.com Best Wishes from a semi-colon
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Indians and Colorectal?
Hey all, I've been reading about how native americans have a higher risk for colorectal cancer. Was wondering if anyone out here is native?
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how do you stay strong?
Hello to all. How do you stay strong for your loved one when you don't feel strong yourself anymore? A quick recap of our situation is that Mike was diagnosed back in Sept. with stage 3. Had chemo/rad, then surg. in Jan. There was no lymph node involvement and they said no signs of it spreading. Of course we were to say…
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CP-3 Reminder
Hi Everyone, Another reminder that the final date for making hotel reservations is coming soon - April 6!! Colon Palooza 3 is April 27 - 30 in Austin, TX. Some folks are coming early to take a side trip to the Texas coast. Hotel: Marriott at the Capitol 701 East 11th Street, Austin, TX 78701 Reservations: 1-800-228-9290…
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colostomy recovery
My dad had a colostomy 2 1/2 months ago and is still having problems with infections and the past few weeks he has come down with a fever. He has to go to a wound center 3 times per week to stuff guaze up his bottom because of excessice drainage. His stomach gets red from time to time, and now this fever of 103. I am so…
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Need help - re: lung mets and chemo
Thanks to all that posted to my plea below. I felt like my friend WAS being pressured into this decision. They need to move fast - CT results showed mets, several now, in liver and some in lung. Doctor could not tell me how many and how big! The new trial that they just threw at him (after he agonized and signed papers for…
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wedding was great!
Hi Everyone, I hope that you're all doing well. Just thought I'd share that the wedding was great! My daughter looked beautiful, everything went smoothly and all the guests seemed to have a good time. To answer some questions from my previous post, I have 4 more children to marry someday, hopefully not soon, sons who are…
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a stupid topic???
Maybe this seems strange to some of you, but I was wondering if there is a place that sells colon cancer awareness "stuff". Everywhere I look there are items for breast cancer, pink ribbons, M&M's, shirts, hats, etc. Not that I have money to blow or anything, but several of my friends have asked, and I am curious too. All…
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IT'S BEEN A LONG, LONG TIME ADDENDUM
Stacy girl...how the heck are you? Been wondering about you too along with so many other folks (Emily, Sponge, Kanga, Nanuk, too many to mention). Hope all is still well with each and every single one of you and I just know it is. Thanks for all your kind words. October in Halifax....haven't been there in years, not since…
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Rectal bleeding from hemorrhoid 1mo being off Xeloda
Hi all: My father (Stage 3 colon cancer and 3 out of 16 Lymph Nodes positive for metastatic adenocarcinoma) was working outside this past Sat sitting on grass painting the fence. He experienced some rectal bleeding from a hemorrhoid when he came in. He says it stopped bleeding right away. This really worries me. He had…
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our palooza host
I know our dear Kerry is off to Houston today for tests. I think the tests are to determine the extent of benefit from her 6 weeks of radiation. Kerry....come back to us smiling darlin. Jen and I want so much for things to work out well for you. It's 3.00am here now and you better believe that my insomnia has a lot to do…
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Sugarbaker Protocol
Hi, I am new to this site! My husband has colorectal cancer, and has so far had his large intestine removed. We are now awaiting more surgery, in Canada they are calling it the "Sugarbaker Protocol" It is where they remove seeds from your abdomin and then do hot chemo flushes for 5 days following. Has anyone had this…
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Uplifting item for women
Hi everyone, I don't usually post but wanted to reach all the women here with this. (sorry guys) Flaw In Women By the time the Lord made woman, he was into his sixth day of working overtime. An angel appeared and said, "Why are you spending so much time on this one?" And the Lord answered, "Have you seen my spec sheet on…
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colorectal seminar
Sorry guys to be so late in responding. I check my email as often as I can. First in response to some of the posts that were on the first posting, this seminar was sponsored by Piedmont Hospital in conjunction with Pfizer and some other, however all the speakers with the exception of Steve Bartkowski were from Piedmont…
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What's so wonderful about this board
I just read a few posts and the replies again. WOW, you guys, what a plethora (sorry, movie fan) of informed posts! Example: musiclover's post re: is this normal w/friend's stool spillage. Another: the protective spirit of the group, with this latest controversial post... I REALLY love you guys!!!! (Maybe the oncs and the…
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Quick! Avastin/Xelox vs Avastin/Folfax or Folfiri
I wish I had asked this earlier since I am sitting in the doctors office right now with my friend as we await the results of the last CT. Seeing that we are in the chemo ward, I imagine the doctor wants to start him ASAP. He's alread signed papers for the trial of Xeloda/Avastin/Oxy. but at the last minute he threw another…
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One down - 11 to Go
Hope you all don't mind if I use this forum to get my experiences written down. It seems like a catharsis of sorts. I am a stage III, had surgery, and put on the FOLFOX-6 regimen. By the time last Monday rolled around I confess to being VERY nervous. Once I was "hooked" up via port and the Oxy and Leucovorin were on their…
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Complimentary/Alternative Medicine
This is the most comrehensive and informative site I have ever seen; the writer/creator of the site is a colon cancer patient, and created the site at the request of his nurses/medical staff. Any cancer patient who has been overwhelmed by the amount of information on the Web and it's lack of organization will benefit from…
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surgery Tues
Hi everyone... sorry I was gone for so long. Had serious computer/internet meltdown - but I am back. My surgery is this Tues. I am actually ready to have at least 2/3 of my right lung removed! I went hiking all weekend and feel so good. (I LOVE chemo breaks). I am eager to see how I feel post-op. The surgeon said I should…
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Supplement Overdosing???
Hi all, I just finished chemo and am desiring to start back on some supplements. I get really nervous about taking supplements...well taking any pills in general. I see a Naturopath at Seattle Cancer and Wellness Center. She has told me about a variety of things I can try. I have bought all of them (ouch! says my…
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In The News......
I thought some of you might be interested in this.....Susan. Colorectal Cancer Can Be Treated With Irinotecan, Oxaliplatin and Raltitrexed NewsRx.com March 30, 2006 Colorectal cancer could be treated with irinotecan [Camptosar (C)], oxaliplatin (O) and raltitrexed [Tomudex (T)] (COT). According to recent research from…
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Early Chemo
Hi all. One more question. My FIL had his first chemo treatment using the Folfox and avastin. He was really ill from all of it (much may also be stress I'm sure). But, he had to be hospitalized to be rehydrated via saline IV. Since this is his first treatment, does it get better? I've read some suggestions here that the…
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maybe someone with an ostomy can help
My surgery in Feb included removal of my rectum and sigmoid colon and a temporary ileostomy. Nearly 8 weeks later the only pain I still have is in the (former) rectum area where they attached the colon to the anal sphincter. I still need to take pain meds (oxycodone) daily. Everything else has healed with no lasting pain.…
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Avastin used alone
Has anyone been treated with an Avastin-only regimen? I know someone that did this, but I cannot seem to get in touch with him lately. I'm curious if this is an effective treatment to use Avastin and no other drugs. Rodney
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into the belly of the beast
well, I'm off to my 1st day of work since surgery on Feb. 10th. I don't know how I'm going to fit both naps in! I haven't spent a whole day awake in weeks. Fortunately my co-workers are a great bunch, just happy to have me back. Of course now I have to tell them that I start chemo next Friday! Wish me luck.
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Is this normal?
My friend Mark has an iliostomy since his rectal cancer and now is having an odd symptom. He's passing some stool from his rectum - not a lot but I'm surprised there is any since that part of his body was sutured. As you can imagine, this is messy and he has no control over it. I've emailed his doctor but wanted to see if…
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Father passed away
Good evening, I've not been posting a lot lately, my dad was really sick and lost his battle with cancer on March 30, 2006. Thank you all for your prayers, and I continue to pray for you, as you fight or watch others fight this horrible disease. This website was very useful for me. Thanks again for everthing. Julie
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Post-Chemo Monitoring
Hi, I'm in the middle of treatment number 8 of FOLFOX and am planning to ask my oncologist the next time I see her about what kind of monitoring she'll plan to do after chemo is over. (I had stage IIIA cancer of the sigmoid colon, 3 nodes positive, and had surgery in 10/2005.) Before I talk to my oncologist, I'd like to…