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Tamoxifen helped other disease...anyone else?
I have had ulcertive colotis for 22 yrs...while on tamoxifen it was great..no issues...i recently went of tamoxifen after 5 yrs (in Aug) and my colitis started back up...mild right now... No side effect from meds other then hystercomty due to enlarged uterus. Anyone else have other disease or medical issue? Denise
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Age and Tamoxafin
Good Morning I was wondering if the side affects for the Estorgen + club taking medication is worse for those who already have underlying Arthritic conditions. I have been supporting a woman who is 87 and had stage 2 and lumpectormy with Tamoxafin now since suffering so badly. I she is not better seems a littel worse since…
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FAQ about CSN survey
Please excuse the long post. A number of members have posed questions on the discussion boards or emailed me for more information about the CSN study that has been underway since November 2013. I thought it might be helpful to post the most common questions and my answers. What is the CSN survey? What is its purpose? The…
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Today is Natly15's Birthday!
Best wishes for a wonderful day filled with lots of happy surprises! And a healthy year ahead! much love, Jenny
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Allergic to Taxoterene
In the morning I start prednisone, step down 4 mg. dose for 6 days. Had my labs today, white cell count down some, can't eat fresh fruits or veggies. I had this itchy rash, nurse got my onco, she said I am allergic to chemo, we're changing in 2 weeks anyway. So, now it's prednisone. Hope I do better with the taxol. Never…
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Mammogram on Thursday - Update!
Well, here it is time for my yearly mammogram. I am 3 1/2 years post treatment but still dreading getting it done. I am sure there is no cause for alarm but somewhere in the back of my mind the fear is always there. Some people may think it's silly but I don't know if it will ever go away. Hugs, Georgia
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Prickly skin at times
Four to five months past chemo and several weeks ago I started having my skin breakout with a prickly feeling. It is there for a couple of minutes then goes away. Sometimes if I get anxious or warm is when it happens. Found a bit of info on the internet but wondering if anyone has had this and what they did for it. jean70T
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Today is Different Ball Game's Birthday!
Happy Birthday! Hope you have a wonderful day filled with fantastic surprises! much love, Jenny
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Anyone Familiar W/Hotels Near Mayo Clinic in Rochester, MN?
My appointment w/the Mayo pulmonologist is in early February. I need to book a hotel. Mayo Clinic sent me some information on hotels nearby (I guess almost all offer a shuttle service to Mayo's door), but I have no clue. Has anyone used the hotels near Mayo Clinic in MN that aren't too terribly expensive? (BTW...Brian…
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biotene toothpaste and mouth rinse
This stuff is great. Picked some up this evening and used it, my mouth feels sooo much better. it's not expensive either, about $15 for both. Pretty good sized. Oh, that was at my local Kroger, Walmart has it, too.
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Today is our lovely Vicki Sam's birthday!
Happy Happy Birthday! Best wishes for a day filled with everything you love most! Vicki keeps track of all our birthdays now and today we get to celebrate her! Much love today and all year! -Jenny
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PINK Bus tomorrow afternoon
I am heading to my Med. oncologist tomorrow...Just had blood work last week. *and surgeon-so hopefully she will agree to go ONCE year now that this week is six years since BC all started...sighhhhhhhhhhh hope you can ride along...appt 12:30 Denise
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Dawne Texasgirl10
Dawne has been in the hospital 2 time since New Years Eve. She came home on Friday. The Dr has told her there is nothing more to do. She is swollen, her heart is weak and in congestive heart failure. Her kidneys are not functioning well. Hospice is coming in. I saw her yesterday, she is very weak and tired but she is still…
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Diet .. Joke for Sunday
I don't know what the heck is wrong w/ me but... I have been eating like a pig lately... I think my hormones are out of wack! May be I should try this diet...what do you think? >> This is a specially formulated diet designed to help women cope with the Stress that builds during the day >> >> Breakfast >> 1 grapefruit >> 1…
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I was not prepared for the pain I went through when I was being prepted for lumpectomy surgery. Anyo
I had my surgery on Jan. 9,2014. I had to be at the hospital at 7:30 am. After they got my vidals and put an IV in my arm, I waited for another 2 hours before the next step. Which was a mammogram . Which are very painful to me. As I was waiting, the surgen came in with a tray covered with a blue cloth and gave it to the…
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First chemo done begin new regimen Jan. 28th, need input
On the 7th I took taxotere, herceptin and perjeta, have been doing pretty good. drinking lots of water as everyone advised. I have bone pain and muscle pain but bearable with prayer. BUT, she decided she is switching me to Taxol (and I guess still the other 2- herceptin and pejeta not clear on that yet). anyway, she gave…
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Halfway through chemo
Hi, everyone, I just joined the forum. I was DX on Aug 1 with Stage IIa, 3.2 cm IDC, underwent a bilateral mastectomy, no nodes involved, clear margins. Currently undergoing the AC-->T chemo regimen. I tolerated the AC (4 doses at three week intervals) with the help of Emend. Started Paclitaxel on Monday and boy do my hips…
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Prayers needed please
please Pray for my friends mom.She is having surgery today for Breast Cancer.Thank you.
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Off Topic: Info if you've ever had a stroke or have a loved one who has
I've been in the hospital for the last two days and wanted to share some important information I found out the hard way. I had a moderate brain stem stroke this time last year. The accute symptoms have resolved with time and rehab, but I'll always have a balance problem. A few days ago I felt a wave of vertigo, just like I…
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I'm 'normal' and 'routine' again!
I went for my yearly diagnostic mammogram on Monday, and was told I was no longer 'eligible' for it....that I am having no problems, and that I need to be on 'screening' mammograms from now on. The gal at the radiology place was VERY quick to say we needed to reschedule, but you know me...I had to call the back office of…
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Every muscle in my body aches since starting the anti hormones...
Didnt notice any se for the first couple of days, but then every muscle in my body started aching, so I finally looked at the list of s/e that came with the script. The muscle and joint pain are se. The med is Letrozole. I thought if I didnt know the se I wouldnt get any, wishful thinking. Can hardly get my arms over my…
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Just took my last Aromasin!!
Hi Everyone. I am happy to say that I just took my last Aromasin. I took tamoxifen for 2 and a half years and then after my hysterectomy I took aromasin to complete my five years. I am excited, yet scared to death. Although I hate the joint pain, hot flashes, and the overall feeling of being 20 years older than what I am,…
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Tamoxfin-were you told up front to check reguarly????
Just curious-when I started Tamoxifen (finished my 5th year in Aug) WERE YOU TOLD by oncologist to have internal ultra sounds (not sure of official name) every 3-6 mths? I went to my reg gyno check up and no mention of it. My next appt with oncologist said why didnt' gyno check for enlarging of uterus? I contacted my LONG…
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swollen vein under right arm
Hi, it's been a while since i have been on this site. i finsided my treatments in March of 2013 and yesterday i noticed that i have a vein in my armpit that is swollen. it is on the same side that i had the cancer and had the nodes removed. is this normal? I am freaking out a bit but don't want to call the doctor and seem…
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Litttle Irritated With Mayo Clinic in MN
Well, I got an appt made for Mayo in February with a pulmonologist. My clinic and a Mayo clinic rep. were on the phone with me at the same time. When the Mayo appt. staff told me she would be mailing me out a packet of information, I asked if they sent me information on the doctor I will be seeing. I told her our clinic…
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End of rads. . . End of treatment
Hi all. . . I'm brand new to this particular community . . But have already enjoyed reading the posts from so many interesting people. I find myself finishing radiation this week, which will mark the end of 8 months of treatment for me (aside from the tamoxifen, etc). I'm scared, happy, worried, elated, mortified, anxious.…
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new 3 word story for the new year!
2014 started out
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Breast surgeon suggested
Plastic surgery to even up my left side after two lumpectomies in 5 yrs-i am small breasted but left side way misformed-I have phonbia big time of stitches (passed out in DR office one time having stitching out of finger -post surgery and close to passes out then stitches "2" out of my leg recently. I really scared the Dr…
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This is my SIX year mark-when it all started
HI all and Happy New Year. I went last week to see my surgeon (scar tissue scar just over a year ago) I had mammo and check up-ALL IS well and NOW I can wait ONE FULL year before my NEXT Mammo. I have been waiting to graduated to ONE year. I see on oncologist next week-regular check up and follow up on blood work. HAPPY…
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Happy New year 2014
Hello again sweet pink Sisters, it's been a while since I stopped by. I'm so sad to lose "MyTurn Now" she was very supportive when I was going thru treatment. Each day I realize just a little more how much I hate this stinkin disease. We have lost so many sisters since I joined this group back in September of 09. I'm…