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port problems?
I had a port placed for chemo treatment TC. The day after my surgery my bandage was not changed. No one told me to change it til day 2 I thought and so did my mom. Well when they went to go change it the site wqs really red and itchy. The nurse said I was allergic to the glue. Well its 9 days after surgery and I am still…
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Trip to MO today....
Had my MRI and Pet Scan. Saw the results online, but had to wait until today for MO's interpretation. He was very pleased with the results. I am not dancing with NED, but before starting chemo, I had bone mets in almost all of my bones. The pet scan shows that there are only 6 tumors left that are metabolic. And out of…
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TURMERIC
I have included turmeric in my diet. I make a paste of turmeric, black pepper and olive oil and use it as a sauce. I have also read in the book of Dr.David Servan-Schreiber - Anti-cancer A New Way of Life that drinking green tea mixed with turmeric is a a very good cocktail. I was searching the internet and came across…
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better bra for double mastectomy???
Does anyone have suggestions for a more comfortable bra (maybe postural criss cross type) to reduce strain on the shoulders and axillary areas?
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This gal's OUTTA here!!!
EVERYONE - I am stoked, deliriously happy etc. I got my mortgage and will be soon relocating to the east coast. Closer to NYC the city that lured me to the US in the first place. I can already feel it's energy, smell the variety of cuisines and have humming it's song for weeks now.. New York, New York. Time to pack up the…
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Just for fun, what is, or was, your career?
Like I said, just for fun and getting to know each other better - what do you, or did you do for a living? And yes, I consider being a stay at home mom a career. I am a teacher and have been for 28 years. I currently teach Kindergarten. Next? Nancy
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How do you feel on the first day of treatment?
My first day of chemo is coming up soon (T/C) and I was wondering if you notice any difference in the way you feel that day? I have heard others say 3 days later is the worst then it gets better. I have heard about the pain after Neulasta, but no one has said how they feel on the first day of treatment. Comments or advice?…
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Does any one know
where I can find some sites to pass on to a young woman (mid teens) who is going thru Chemo now for Desmoid (sp?) tumor. I have passed this site to her but she says that she isn't accepted to come the CSN. She is at a 'horse forum' I go to a lot. Anyone have any ideas I can pass on? YEAH I know she's not fighting BC but I…
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How often should I have a mamogram?
In December 2007 I had a lumpectomy for DCIS (ductal carcinoma in situ). No lymph nodes were involved. After surgery I had 45 radiation treatments, no chemotherapy. I took Tamoxifen for about 6 months and then stopped. I have been getting bilateral diagnostic mamograms every 6 months and see my oncologist every 6 months…
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Mammo done still scared
Hi all, Well, I had the mammo today and then had the ultrasound. Long day. They found a large and small cyst and enlarged duct. I have never had cysts before,so I am still worried. My family history has lots of BC. younger Sister, Aunt and 2 cousins. And me with my cancers, not BC, I am concerned. I thank you all for your…
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I think I'm going crazy.
okay, quick update because I don't post often (although I do read your posts often and pray for you all every day). I was diagnosed last June with stage 1 invasive ductile (something). I had a lumpectomy, 4 rounds of chemo and 35 rounds of radiation ending January 7. Today, I found a pea-sized lump in the same breast. I am…
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I'm going wig shopping!
On the pecking order of things to be upset about during breast cancer, my lack of hair really doesn't trump being alive, but I just sat down and cried about it anyway. I did, however, make a decision - and that's to get a wig. Even if I miraculously start growing hair tomorrow, it's going to still be several months before…
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Everybody on the bus sing with me now: "Everything looks cool"!
I was so glad you were all there with me today, seeing as how the radiologist had an emergency at the hospital this morning, and we had to wait half an hour for him to get there to read my mammogram. But when he finally did, he came into the room and said, "Everything looks cool." And I think he got a kick out of how you…
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This website has been so slow lately
that I've had to shut down my computer! I was just on it and the site could not be accessed! What's going on? It's not just one day - it's been the past week. Char
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Hair
So, I am 4 weeks post-chemo and my hair is growing. Yay! But it is coming in super soft and totally gray. How long until I can safely color it and have any of you heard from others that it's a good idea to trim down the "baby hair" to make it grow back the texture it once was? Bonnie
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For Chickadee1955
I just want to be sure you get this... I tried to send you a message, but it says your settings won't allow messages. So here's the info... Linda Reib 916-638-2508 Enhance is the name of her store 4811 Chippendale Drive, Suite 208 Sacramento, CA 95841 I would suggest you ask that she do your fitting, not one of her…
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To One In Sorrow....a poem by Grace Noll Crowell
Let me come in where you are weeping, friend, And let me take your hand. I, who have known a sorrow such as yours, Can understand. Let me come in - I would be very still Beside you in your grief; I would not bid you cease your weeping, friend, Tears bring relief. Let me come in - I would only breathe a prayer, And hold…
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Still So Tired 3 Weeks Post Chemo
Hi everyone. I finished chemo three weeks ago and I find I'm still fatigued. It doesn't take much and I get so tired, I am so tired. Just going out to run normal errands leaves me spent for energy. Has anyone else experienced this? How long does it last?
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Today is Shaggy 420's Birthday!
Best wishes for a wonderful day filled with great surprises! Celebrate! much love, Jenny
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I have a surgery date
I will have a bilatral mastecomy with left nodes removal on Tuesday, April 26. I am scared and sad, but I will take all of you into the OR with me. I know that you will be there holding my hand and praying for me. I don't want to stay in the hospital, so my doctor agreed that if there is no problems that I could go home…
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5 Year Cancerversary & Pregnancy
So............the day I thought would never come is almost upon us. Five years ago this May I could only dream in terms of "5 years from now" my life will be back to normal.......hair long again, off medication, breasts reconstructed. And now that I'm almost there....I don't even know how to feel. I was young when…
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Are mouth sores common with T/C?
I am just wondering how common this side effect with Taxotere and Cytoxan is? I will be starting in a couple of weeks and I think I am dreading the thought of mouth sores more than anything else (besides nausea but that can be controlled or so I am told). Is there anything you can do to prevent them, or relieve them if…
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Hershey, PA Reunion - Saturday, October 29, 2011
I have finalized the group rate with the Hershey Lodge. The room rate is $189.00 plus tax for a total of $209.79. They will honor this rate a few days before and a few days after our date. If you are interested in staying there, please call them at 1-800-533-3131 and refer to the CSN Sisters in Pink Group. I have 10 rooms…
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New to CSN - chemo guidance
I was diagnosted with breast cancer 1/2011. Had a double mastectomy 2/14/2011. Diagnosis HER2 NEU POSITIVE (stage 2b or 3a). Chemo regimen started 3/2011. AC - have had 2 treatments so far. I have 2 more to go. After these 4 of the AC I will then have Taxol and Herceptin for 12 weeks. Then after that I have Herceptin for…
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Oncologists this am (2 of them)
Was taken off tamox just about month ago due to side effects of med! (bleeding well after menoupause) MY hormone levels were rechecked and for sure past meno...yet recenlty..past 3 mths of so had some bleeding (like period) MY one Dr out sick today (the day she was going to prescibe a new med) so I saw a Dr I have never…
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~~~~Let's All Light The Way For Aortus and Moopy~~~~
I want to show my support for Joe's road trip, not only by lighting a candle for Moopy, but, by lighting the way for Joe. So, I am turning on an outside light Wednesday and will leave it on 24/7 until Joe reaches his destination. Hoping that with all of the pink sisters leaving a light on, that Joe will not only see the…
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Goodbye mama...(my tribute to her)
My mom was not just my mom, but a friend as well. She listened as I struggled with different things in my life, always being my support. And then, when I met my beau, she opened her arms and heart to him and his family. She certainly had her down periods, but she always sprang back from each with great optimism and a…
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I can't shake this feeling of doom
It has been a year since diagnosed with stage2b breast cancer and went through all my treatments and everything seems good. I should be happy, right. I was briefly but I am back to crying all the time. I can;t seem to function.I need to go to school and I can't seem to get myself to stop crying to get there. Why is this…
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Arimidex Angst
Hello all, I have much anxiety over taking this Arimidex. I started it yesterday and am already obsessing over the side effects. The one I am most concerned with is the joint pain. I am sensitive to joint pain, as I had it all during chemo. It was the taxol and the neulasta I received after each round of chemo that caused…
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Road trip Wednesday afternoon
Wednesday afternoon, after we get Traci back from her next clear mammo, I am leaving on another road trip. I am bringing Moopy's cremated remains up to Winona, Minnesota, where they will be laid to rest in St. Mary's Cemetery, next to my Mom's grave. Dad and I will be there too, by and by. Moopy directed me last year to…