Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Breast Cancer

Archives for June 2009

Hey to all my old friends from Sassy Sally.
I have tried to chat with old and new, but no one is ever in chat. What is up with that?? When I first logged into chat, no matter what time it was there was always 10-20 people in the room. Now there is no one at any hour it seems. I hope you are all well. Wanted to say " Hey" to all. I miss you all. write me soon, or…
Shark Fin needs Postive Thoughts and Prayer
Hello All, my newest grandchild Ava Lynn (AKA Shark Fin)is in the hospital with what they told my daughter is a critical case of jaundice. She is under a light with blinders over her little eyes. Her parents will be taking shifts watching her and making sure the blinders remain on, if they come off it could damage her eye…
Recent Diagnosis_What's Next
I got my diagnosis in May 2009. I was shocked becaused I thought I had done all the right things (yearly mammograms, monthly self brest exams, etc.). I discovered the lump in my right breast on Mother's Day. The following week I had a diagnostic mammogram at 8:30 am that did not show the lump me and my gynecologist was…
Not any better off...Anyone care to vote?
Well... let's see... I sat there with the Onco.. who seemed nice enough... took over an hour with my husband and I... seems that my case is one of those right smack dab in the middle of what treatment plan to use... no right or wrong... just smack dab in the middle... not enough statistical information to push us or make…
How long does one need to see the rads dr?
I completed rads in Aug of 2006. My radiologist still wants to see me every year. Today, I asked the receptionist (probably a dumb choice) why I need to continue coming back. Her response,"You're never really cancer free and this is just part of your medical plan." Like I said, it was probably a stupid thing to ask the…
I wonder: can you go from er positive to er negative DURING treatment?
I am just wondering: If you are postmenopausal, previously treated with tamoxifen, and then get a recurrence that is er positive, will it STAY er positive throughout the treatment? (Femara?) If you continue on the aromatose inhibitors after the main treatment, is it possible for the aromatose inhibitors to stop working,…
Tamoxifen - Long term - Not good results?
I read a post where someone stated that tamoxifen studies for long term were not good. Does anyone know why or where they read that? I always wondered as they only want you on it for 5 years. I always thought, why just 5? Why not your lifetime? Thanks!
Numb Toes
Has anyone had numb toes from chemo?
Have any of you heard of
Ganoderma? A friend just gave me info about it....i know people try to be helpful, and can become overwelming with good advice, but wondered if any of you had heard of this one. Thanks! Jeanne
my update wiped out again!
This is the fourth time i have tied to post you all and let you know how much i missed you. My computer at home is not working until i fix it and my message keeps dissapearing. It is so frustrating. I have my daughter Jamie here and we are having so much fun. taking her little dog Burkley for walks, going to movies and…
Teena had 1st rad
First of all ... thank you all for the good wishes earlier ... for me ... and Kim ... on our first day of radiation. I got tears in my eyes reading the posts ... and knowing that so many of you care. It was a warm-fuzzy feeling I guess I needed. Long distance hugs! The treatment went just fine. I think I was side-tracked…
1 more treatment next Wednesday!!!!!!
I have been looking forward to that last treament day!!!!! Its been a long bumpy road to that day. I have learned so much about myself that I didn't know I had in me. This site has helped A LOT. I might not said much but I surely did read the posts. I thank each and everyone here. HUGS Darlene
Do acupuncture, reiki or massages help with the chemo and radiation?
Hello All, I am new to this group. I am 33 and was diagnosed with bc in May. It took a while to accept this fact but had to move along. I am in middle of my chemo right now. I wanted to know if reiki and acupuncture help with your chemo and radiation? It is not covered under the insurance and can be expensive, so was…
WOW... THANK YOU!!!
Thank you all so very much! I WAS stressed, I'm not here to stir things up and think I can provide some input from a different perspective.I know YOU certainly have been an inspiration to me. One of the posts in response also made some sense. She thought maybe CSN did it and now that I think about it, it have triggered an…
A bit of a chuckle
Okay, by now you all know I am a grandma again to little Ava. Now take a look at her photo and notice the little bit of spiked hair which happens to occur naturally. Her brohter's say she has a "Rocker hair do" and her Papa has given her her first nickname.....SHARK FIN due to the bit of spiked hair. So our adorable little…
Fighting! How?
I told my sister that I did not feel like I was fighting. She told me when I go to the doctors and fallow through I am fighting. Tell me how to fight!!
gettin out of bed
Does anybody have a suggestion how to get out of bed from laying down? I had a bilateral mast 6 days ago and it hurts so bad to get out of bed. I roll over to my side but when I try to use my chest or arm muscles to get up, the pain is unbearable. Any ideas for me? Thanks
Relay Update
Hi Everyone: Sorry I haven't posted but have been extremely busy at work. I went back to work full time about 5 weeks ago and I feel overwhelmed. Thank God, my husband knows how to cook because he had to step up to the stove. LOL. Anyway, really was awe inspiring like always and you know for a fact that I had tears running…
wigs (itchy, comfy or sweaty what helps)
I tried on wigs today for the future bald head courtesy of cancer chemo. I found one but I think it will be a long summer of discomfort. Will it be itchy, comfy, sweaty? what will help?
Tomorrow... T meets Dr. Onco
Well, tomorrow at 3:30 (that would be central time) it will be T meet Dr. Onco.. how do I feel about this? Aprehensive, pensive, anxious.... let's see.... no, ... no... and nope. What's wrong with me? For two days I couldn't quit crying, since May 20th I've been terrified, scared, sad, pis**d off, over whelmed, I was…
TexasTwister50 and maryannrogers
Shout out to the two of you! TexasTwister starting chemo and maryannrogers going into surgery. Want to wish the best for both of you and please let us know as soon as you are able how it went! Love and prayers, good wishes, vibes etc. Take care! =^..^=
Why do you call a lumpectomy a partial mastectomy?
My surgeon said I had a lumpectomy. I have a really small incision because I had a very small tumor. So, why do some of you call your lumpectomy's, partial mastectomy's? I don't understand that. Is there some reasoning to that? Thank you!
New here with questions about Radiation
Hi, I was diagnosed with DCIS, High Nuclear Grade, non-comedo; had a lumpectomy last Friday, now I'm waiting for the final pathology and maybe radiation. There is an extensive family history of breast cancer, although no one is positive for BRCA 1 or 2, and the biopsy path reported the DCIS, atypical hyperplasia,…
Just diagnosed with stage ll breast cancer
Since i was diagnosed 2 weeks age I feel like everything is put of my control. Tests ane more tests with friendly and not so friendly people. There are so many loose ends I don't know what to think. I know I need a double mastectomy and chemo. I just don't know when. The waiting is driving me crazy!! My first reaction was…
Port is in
Ouch !! Hurts a bit. Did not feel anything when it was going in. I was in and out through the procedure. Everyone was super nice, glad another step is over. I guess they did not want the Left side girl to feel left out of everything. Thank you all for all the support, and getting me through another step in this journey.
talked to doc feeling much better :)
thanks all for responding to my "curious" post. I talked with mr doc at length today and she said there are new trials that show when a tumor is responding well like mine is radiation may resolve the problem. Her words were that i would be on "tomixfin for many many many years to come with close monitoring by her". If my…
Teena and Kim ** Good luck with Rads tomorrow!
Teena and Kim, good luck tomorrow with the start of your radiation treatments! My advice, use the cremes the radiation oncologist gives you and get lots of rest! You will do fine! Hugs, Jeanne
Post Menopausal - Start bleeding again?
Has anyone here been post menopausal, taken tamoxifen, and, then started their period again? I read where that has happened to some. Thanks!
Radiation, another question
Hey guys, I have a question... Those of you who have had the rads already, were you exhausted? I have a hubby, three kids age 6,4 and just about 2 and dog and cat. I live one hour away from the hospital and have my sisters and dad taking turns babysitting for me. Or, my parents have offered to keep us at their house for…
Moopy & Aortus-with all 3 canines in tow-FINALLY moving to St. Louis today!
Our dear friends Moopy and Aortus - with Eefy, Yongy and Anubis(*) along, of course - are on the road today, heading towards temporary relocation in St. Louis. Wishing them safe travels! Moopster's 2nd rads simulation is scheduled for Wednesday; hopefully, her treatments will begin on either Friday or Monday. Good luck and…

Breast Cancer

Discussion List