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Gamma Knife while on Avastin
My daughter has been told she needs Gamma Knife for an unusual spot found in the middle of her brain. She is currently on Avastin for the tumors that are in her left frontal lobe. The Avastin is working for that area, but not for the new one. My question is has anyone gotten Gamma Knife while on Avastin? If you have please…
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33 year old female patient from Greece
Dear all, the time of my life to find someone to share the rest of it came last August. Then in the deep blue sea and sky of the Greek Island of Santorini i proposed to my girlfriend to be my wife. I proposed to her on a big rock emerging out of the beautiful sea during the famous sunrise of Santorini. She said yes with…
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Caregivers who have dealt with GBM
My sister-in-law is going through GBM and I am a TNBC survivor. I am with my brother and my sister-in-law almost everyday staying by their sides. I am trying to deal with being in that place between acceptance and denial. Its terrible. I wonder if there is anyone out there that can give me some idea what to expect going…
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Help Please
Hi everyone i am new to this site and looking for any help i can get. 4 years ago i was admitted to hospital with tingling in my hands and legs and complained of a poor memory and seizures, they then found a 2.5cm lesion in my left frontal lobe. The neurologist classified it as a low grade glioma and suggested its been…
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CSN study
Please excuse the long post. A number of members have posed questions on the discussion boards or emailed me for more information about the CSN study that has been underway since November 2013. I thought it might be helpful to post the most common questions and my answers. What is the CSN survey? What is its purpose? The…
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Information please!
I have a friend who is in the hospital after surgery for brain cancer. They were not able to get the entire tumor And are now doing chemo/radiation. I dont know which actual cancer she has. However: she is soo confused, can't walk, and remembers some but not others. And so anxious. I don't know the stage, the cancer was…
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inoperable glioblastoma, having palliative radiotherapy
My mum has recently been diagnosed with glioblastoma, inoperable since it is in the corpus callosum. She's been offered palliative radiotherapy, 36/10 ie 10 days. Anyone here have experience of how effective radiotherapy will be at slowing growth? She's not having any chemo, and is coping amazingly with radiotherapy. Dex…
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Dizziness problem
I had dizziness problem 3 years ago. No problem being found through brain/neck MRI/MRA. After using CPAP, the problem went away. Now, it reoccurred and CPAP couldn't solve it. I have been told that 90% of the dizziness problem shall be related to brain/ear. Does anyone know a good specialist for inner ear or brain…
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Son 23 diagnosed with Grade IV Glioblastoma; need some advice
Since our son was diagnosed on 12/19/13 we have been trying to read up on as much info as possible regarding treatment etc. The surgery to removed as much of the tumor as possible and we have been talking with the oncology drs re: chemo and radiation, and possible drug trial in Seattle. Our son is still at Prov and will be…
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Glioblastoma multiforme grade IV
My husband was diagnosed with GBM IV on Sept. 11 of 2013. Had the surgery Sept. 17. They removed 80 to 90 percent. Radiation for six weeks along wth Temador. first MRI was done a week after completion of radiation. Showed growth but they said could just be swelling. in a clinical trial and just finished his first five days…
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oligodendroglioma/ surgery not an option
31 year old male with the fun brain tumor :) I am took temodar for 9 months, even though I had both chromosomal depletions, it did nothing. I stopped. I refused radiation, They can not operate because of the location. I am on keppra for antiseizure medication. Anyone have any success stories? I was diagnosed about a year…
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Brain Cancer Survivor..??? 21 years old
I'm feeling a little at lost and would like to explain my scenario to those who also understand what im going through. 7 years ago I experienced consistent headaches. The dotor suggested a CT. Nothing so we followed up with an MRI and a referral to a neurosurgeon. His opinion was its a "smudge" lets monitor it for changes.…
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headaches sending me back to the NO
I called my NO yesterday because I've been having worsening headaches for the last month and now they are nearly constant. My next MRI was supposed to be in April but she is having me come in next Thursday to have an MRI and see her. I'm a little nervous. She told me intitially when I called yesterday that she is pretty…
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headaches
Hello everyone my name is Amy. I was dx in october with a mass in the frontal lobe. I had a crainiotomy 3 weeks ago, I know its a high grade glioma, will hopefully get the final results tomorrow. I was weaned of the dex last monday was the last time I took it. Before I took maybe 1 500mg tylenol a day for the HA, now im…
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Ultrasound Surgery
Good morning, My wife suffers from a grade II astrocytoma in the left temporal lobe. The tumor was resected in 2010 and returned in 2012. Radiation therapy was completed in February 2013 and the tumor appears to be stable but is still quite large. I recently viewed a video from TedMed which featured Yoav Medan explaining a…
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Oligodendroglioma grade 2
Hi, my name is Ashley and I am from Portland Oregon. I never thought I would have the courage to talk to others about what I am going through. It has been almost 2 years since I had a seizure then surgery where they took out about 98% (or so) of my Oligodendroglioma grade 2 tumor. It was in my left temporal lobe and the…