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PXA to leptomeningeal metastases
My wife was diagnosed with pleomorphic xanthoastrocytoma which was discovered and resected back in dec 2012. All jan and feb she was having neck and back pain. Finally they all agreed it had metastasized in her spinal fluid. She received whole brain and spine radiation for 6 1/2 weeks. That ended about a month ago and…
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What is the Anaplastic astrocytoma(gemistocytic) Survival rate after surgury?
Age-59 Sex-Male HISTOPATHOLOGICAL STUDY AFTER BRAIN TUMOUR Specimen : Frontal SOL Clinical Note : High Grade glioma Gross : Multiple soft tissue bits,5 ml in volume Histopathological study : Section show a diffusely infiltrating astrocytoma composed of gemistocytic & fibrillary astrocytes. Moderate nuclear…
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Whole brain radiation
Hello fellow cancer patients. I have stage 4 uterine cancer - grade 3 uterine papillary serous carcinoma- battling since 2008. This is my second recurrence which has settled into lymph system. I had 4 months of Doxil chemo which failed and ended up fear death in Jan with massive fluid in both cardiac & pleural cavities.…
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Survivor Term
Here is a general question for the board, at what point do you consider yourself a cancer survivor? After surgery? chemo? radiation treamtnet? I have had a tumor removed from my brain and I am about to start chemothepry to hopefully clean up the resection. I am just hestiant to use that term since I know I will always have…
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Gliadel Wafer, infused with carmustine
First of all...Thanx to all !! I have stage IV Non Small Cell Lung Cancer, But I"ve had Brain Mets lately. I know you at least... and if you have family involved, they are going throught the crap too . Long story short, the doc's want to use Gliadel Wafers on brain mets, infused with Carmustine chemo... after brain surgery…
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Muscle twitching
My father is 56 yo and Here is the summary of events: Diagnosis: January 8, 2013. GBM Grade 4 (37 mm x 22 mm x 10 mm) Left frontal lobe Biopsy results: EFAP: Positive, Cytokeratin (AE1/AE3) Negative, p53: (1+), KI-67: %28 Surgery: January 24, 2013. Established mass was tracked down to ventricular holes and completely…
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Anyone involved in a clinical trial?
My mom was diagnosed with gbm in January 2013. She is 64 and doing quite well phsyically and mentally. She is almost complete with her 6 weeks of radiation/temodar. She qualified to be involved in a clinical trial. CDX-110. We have done a lot of research on it and it is something we are moving forward with. She will…
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MOODS
GOOD MORNING EVERYONE I AM GIOBLASTOMA LEVEL 4 NEWBEE. I AM TAKING KEPPRA AND DOING A DOSE OF TEMADOR 400MG 5/23. HAS ANYONE HAD ANY VIOLENT MOOD SWINGS WITH ANY MEDICATION? I AM NOT A VIOLENT PERSON AND SCARED MYSELF TO DEATH WHEN I WOKE UP SATURDAY MORNING AND REALIZED THAT I DESTROYED THE GARAGE AND KITCHEN IN MY HOUSE.…
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Anaplastic Astrocytoma Grade 3 - 15yr Survivor
Any other long term survivors on here?
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Monument 10K Richmond VA
I walked my first 10k today in support of my Dad who is in the fight for his life with GBM and Brain Tumor Awareness . I happened to notice a group of women in front of me with black shirts on and a message of "Care for your Brain". I approched them and met a wonderful lady who is a year out with the same dx. as my Dad and…
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"It is better not to Shrink then to Survive" My personal thoughts & experiences with my Inoperable
I originally posted this in a seperate topic under a thread, but I thought posting it as a seperate topic my be helpful to more people, SO here she goes... I am a 29 year old, single mother, RN from Alabama & was "officially" diagnosed with a Low-grade Glioma on my brainstem on February 27, 2013. However we have gone back…
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Where is everybody???
I joined in 2010 due to my husband's Anaplastic Olio grade 3. I never see the people that were here when I joined post anymore. Several of you would follow Cindysuetoyou and it seems that everyone I was familiar with no longer post. Praying everything is going well for all of you.
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My mother had cervical cancer that spread and she now has a brain tumor
Hi there: My mother had stage IIIB cervical cancer (she's 76) and a tumor the size of a grapefruit, as well as activity in one periaortal lymph node. She was treated with radiation, brachytherapy, and chemotherapy (Cisplatin) last summer and fall. Her PET in November was clear. Her PET in March indicated that she now has a…
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I am a survior what can you do??
Today, I ran a 15.28 minute mile. And I am a survivor of brain cancer.
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I am a survior what can you do??
Today, I ran a 15.28 minute mile. And I am a survivor of brain cancer.
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CNS lymphoma prognosis, median survival time, and relapse statistics?
Hi all, I am new to this forum. I am from Stockholm, Sweden, was born in 1944, and I was diagnosed with CNS lymphoma in March 2012. I got three treatments with cortison, cytostatica (methotrexate and others) and antibodies, and so my tumour vanished. My bone-marrow stem cells were then harvested and frozen, and in August…
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Dizziness as early symptom?
Did anyone here have dizziness as a primary symptom? I had my tumor removed about a year and a half ago, only doing MRIs every three months right now and all has looked good (last in January, next in May). My initial symptoms were headache/vomiting and eventually progressed to vision problems. I've had zero symptoms since…
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Clomipromine
Has anyone tried this drug to fight brain tumours?
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Is a Biopsy Worth It?
BACKGROUND: My wife had a "probable" low grade glioma which was never biopsied due to its hazardous location in the medial left temporal lobe. She rcv'd radiation in Nov 2009 and the lesion shrank 50% (26 to 13mm) and stabilized. Had MRI every 4 months ever since and last one was Nov 2012 with no noticable change in size…