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Gone 3 Years
I never thought I would find myself here browsing stories, but here I am. It is coming up on the 3 year anniversary that my Mom has been gone. I remember the day all too well. Everyone that I have talked to has told me it will get easier with time. 3 years in and I feel the same as day one. June 09 we found out my Mom had…
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4 Month Follow Up at UAB
I had a four month follow up yesterday, and my MRI still shows the tumor site is stable. Praise God!!! I have been telling them that I have no energy, and my Primary Care Dr started giving me B-12 shots and I also take a B-12 vitamin every morning as well. UAB said that what I am suffering from is Cancer Fatigue that is…
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GBM metastasizes to Spine (drop metastasis) anyone experience with it?
Hi, My husband has a GBM that is currently stable however his symptoms were getting worse very quickly all of a sudden and he started having problems with his leg. Yesterday he had an MRI on his spine and today we found out that he has a tumor in his spinal fluid and cancer cells on his spine. I know this is rare but does…
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Anaplastic oliodendroglioma grade 3
Looking for information.......is there anyone on this site with an anaplastic oliodendroglioma grade 3 with either no deletions or 1 deletion that has not had a reoccurrence after 3 years of being diagnosed? Seems like 3 years is when this occurs from what I have been reading.
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dexamethasone withdrawal?
Hi Everyone, My mom was diagnosed with stage IV glioblastoma multiforme in May, has now had two surgeries, radiation and chemo.She is only 56 and was very healthy before all this happened. She had a moderate stroke during the second surgery so now has a very difficult time communicating....along with vision loss and other…
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Breast Cancer Treatment
Breast cancer is one of the most common malignant tumor, whose disease rate makes up 10% of various malignant tumor, threatening female’s health severely. The attack of breast cancer leads to females’ losing confidence for life and work, and bringing a challenge for a family. How to conquer breast cancer becomes the main…
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My mom had a Glioblastoma Grade 4
My beautiful amazingly strong mom, 48, had a seizure July 2 2012 and was rushed to emergency where they found her brain tumor. She had surgery on July 14 where they removed most of the tumor and was diagnosed with a Glioblastoma stage 4 Aug 15. Started chemo/radiation aug 22 and completed one out of six weeks of treatment…
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Avastin being used for Brain Tumor
Does anyone have any experience with the drug Avastin being used for shrinking brain tumors? What about all the side effect?
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Trying to reach Superbird528
Superbird528 ...I just happened to check my personal messages on this site, something I rarely remember to do and Imsee that you have been trying to reach me. I wish this site would send some kind of notice when someone tries to send a private message. I am so sorry that I haven't responded. I hope all is going well with…
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Update on my sister grade 3 AA- 1 year out
Dear all, It has been a hard few months on this board. A lot of people I have formed relationships with had their love one take a turn for the worse. Some died and some are dying. But through all of it, I am always amazed of the unconditional love that I witnessed. I though some of the survivors out there needed some…
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Diet fasting etc...
http://www.ted.com/talks/william_li.html http://www.ibridgenetwork.org/uab/starving-cancer http://www.sciencedaily.com/releases/2012/09/120904121438.htm http://www.healingcancernaturally.com/detoxification-master-cleanser.html Many Drs are now asking patients to fast for 48 prior to treatments... but doing a cleanse is so…
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Anaplastic Astrocytoma diagnosed this past year
One Sunday morning, my dad had a seizure after a shower in our bathroom. He was unconscious (later found out it was a seizure) for an hour before he awoke and realized that his leg was stuck to our heater in the bathroom. My mom and him went to the doctor and he was diagnosed with what they thought was a low grade glioma…
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glioblastoma level 4 brain tumor survivors
Hello Everyone, I'm interested in talking with anyone long term survivor of a glioblastoma level 4 brain tumor. My son-in-law was diagnosed in June of 2012 and had the operation and about 3 weeks ago completed his 6 weeks of radiation. Tomorrow we is going to have his M.R.I done and then speak with the doctor. I'm very…
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glioblastoma level 4 brain tumor survivors
Hello Everyone, I'm interested in talking with anyone long term survivor of a glioblastoma level 4 brain tumor. My son-in-law was diagnosed in June of 2012 and had the operation and about 3 weeks ago completed his 6 weeks of chemotherapy. Tomorrow we is going to have his M.R.I done and then speak with the doctor. I'm very…
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I've been on the breast cancer board for 14 years now my daughter having MRI for Brain
My daughter had a seizure the other night. She is 19 and never had one before. she sat down head hung down eyes open and could not hear me. It only lasted a few minutes but scared me to death. The ER did a CT SCAN and said the results said A 3MM and adjacent 2MM low attenuation midline suprasellar densities. The Hu is…
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I've been on the breast cancer board for 14 years now my daughter having MRI for Brain
My daughter had a seizure the other night. She is 19 and never had one before. she sat down head hung down eyes open and could not hear me. It only lasted a few minutes but scared me to death. The ER did a CT SCAN and said the results said A 3MM and adjacent 2MM low attenuation midline suprasellar densities. The Hu is…
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Just Dxd yesterday- FIL IV GBM primary tumour in thalamus
This set in so quickly, just days, and he has already lost control of his left side now, just now is being rushed via ambulance to the hospital for major seizure... does anyone know if this could already be end stage? It came out of nowhere, no symptoms to paralysis and now seizures.
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Astrocytoma please help ?
Hi I wonder if anyone can help me? I had my second operation 3 weeks ago on the 21st August. My first one was in 2009. I was in the Walton for 2 weeks and eventually I was allowed to come out as my mother was passing away from cancer. My brain has water in my head still and I am on a lot if medications and had problems…
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Natural cures?
Has anyone ever witnessed natural cures healing someone? This seems to be a huge topic in many circles and also a huge topic for naysayers that are putting out this definition post that just negates centuries of ancient healing forms. Medical men have been around for ? hundreds if not thousands of years. Why would going to…
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Newly diagnosed, wanted to introduce myself
Hello! My nickname's Skid, but my first name's Brian and I'm just over a week away from my 38th birthday. On Aug 8, 2012 I was originally diagnosed with a Glioblastoma grade IV tumor on my right frontal lobe. On the 10th I had surgery, which they were only able to remove 90% of the tumor. A biopsy was performed and just…
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Glioblastoma Grade IV - Right Temporal Lobe - 64 year old Male - March 22nd, 2012
I am the caregiver to the love of my life. And looking for other caregivers or people with GBM IV - right temporal lobe diagnosis that has information and first hand knowledge of this journey. We have been through: Phase One March 26th, 2012: surgery Phase Two (May through June 2012): 6 weeks of radiation (TrueBeam) &…
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Recently Diagnosed Diffuse Astrocytoma patient age 20 (kinda scared)
Hi I just recently started taking Temozolomide and doing radiation for the brain tumor. Its a grade 2 and I don't know much about it. Its on my optical pathways and its a very rare type. does anyone have any information that can help me on how to deal with this. I don't know much about it but what the doctors told me, I…