-
A A grade 3
I have an astrocytoma in the left frontal lobe again for the 3rd time. Has anyone gone through this and survived?
-
My mother- Anaplastic astrocytoma
Hello to anyone who reads this. This may end up being long, so i apologize in advance. Around this same time in 2004, my mother found out she had a brain tumor. Of all the ways to find out, it all started during an eye exam. She was having severe headaches and made an appointment to hae her eyes checked to see if that…
-
Back in the hospital
We are back in the hospital---Salem Hospital this time, not OHSU. I'm breaking in a new set of nurses and doctors haha. David had an MRI on Thursday. He's not doing very good..... It takes everything I have to get him in and out of a car and to and from an appointment. I have a wheelchair but the problem is the car.…
-
Cyber Knife robotic therapy
Has anyone experienced the cyber-knife robotic radiation? I have GBM 4 and I was taking Avastin and Temodar. Despite the treatments, my tumor continued to grow. It has doubled in size of a small marble to a large marble. So all treatments have been stopped. I am not able to have another surgery due to complications that I…
-
GBM NON EXTRACTION.
MORNING : I was diagnosed with stage 4 GBM last aug , was told that extraction was my best chance ,, but i would loose a good part of my eyesight , as a carpenter i need to see my tools and hands , so i opted for a biopsy , then full brain radiation in case there were small tumors that couldn't be seen yet then gamma knife…
-
Medulloblastoma-PostOp
I'm new to this so here it goes...In 1985 I was diagnosed with a malignant brain tumor (Medulloblastoma) at 15yoa. Surgery (@ Shands Hospital Gainesville) was successful in removing 99% of the the tumor and radiation therapy took care of the rest. In addition to brain radiation, my spine was radiated as well as this type…
-
How are all the Oligodendroglioma Survivors doing on this site?
I get frustrated on this site, and just want to know how all brain tumor survivors or fighters are doing today. I have been on this site since February, and following a few individuals - but wanted to start a new tread to make it easier to follow what is the latest news, treatments, and how everyone is doing? We are all…
-
Brain edema
After 10 months , 30 days full brain radiation ,as well as, Gama knife , i still have swelling on the brain ,, steroids help ( Dexamethasone ) but i just had a severe seizure in the last couple days , had another MRI and the tumor is still there ,, im kinda freaking bout the edema , it don't seem to be going away , any…
-
At peace...
I didn't post very much on this board but I did come here often to gain insight. My sister-in-law passed away yesterday - she is finally at peace. Thank you all for your support and I will keep you in my thoughts as you and your family continue your journey. Debra
-
Pleomorphic Xanthoastrocytoma with Anaplastic Features
Hello all! I am new to these boards and was trying to find anyone who has been diagnosed with PXA w/ anaplastic features? My surgery was 6 months ago, I had a gross total resection and no other treatments. I was diagnosed initially with a difficult to classify, unusual grade 2 astrocytoma. Second and third opinions…
-
My 6 year old was DX with a Pilomyxoid Astrocytoma...
Hi, My Name is Tracie and I have a 6 year old little girl that was recently diagnosed with a pilomyxoid astrocytoma. They are saying its spread to her spine and she is now doing chemo and will have another surgery after her first cycle. I know that medical advances to this point are amazing, does anyone have any experience…
-
letting apartment go
I couldn't do it. I wimped out and asked my husband to talk to David about giving his apartment up. I suggested that he approach it like man to man, in a practical way. Saying that it didn't make good financial sense to keep paying rent when we were getting no use out of the apartment. My husband said to David that down…
-
Cindy & David
Hello, Just read on another post, my heart is breaking for you at this moment. I can not even image what you are going through. Your love and devotion to David is remarkable, which makes it so hard to watch our love ones suffer. I am so glad that David has been able to join in family get togethers, those will be the smiles…
-
Son's/Mother's/Caregiver's
This was sent to me by a friend- For all of us who have a wonderful son that you love with all your heart! :o ) I'll always need my son no matter what age I am. My son has made me laugh...made me proud...made me cry...hugged me tight...seen me fall...cheered me up...kept me going strong...and driven me crazy at times! But,…
-
Just got Diagnosis, GBM - Holding On.
Hello all, This past week, my father who is 56 years old was diagnosed with Glioblastoma Multiforme (GBM). He went in on Tuesday and had his brain surgery Wednesday to removed two tumors in the frontal lobe. They were able to get most of one and none of the second because it was inoperable. By the next day, he was up and…
-
UCLA allo CTL clinical trial
Has anyone out there been on this trial? Did you have good results? I think there are only about five of you out there in the world that have been on this trial... The trial involves intratumoral adoptive transfer of alloreactive CTL that are directed against patient HLA antigens present on brain tumor cells but not normal…
-
Frustrations -update on my sister dx anaplastic astrocytoma
Dear all, I did take a break from posting just because I though I could tame my addiction regarding this website. But I follow your posts closely. each one of you is dear to my heart. I think of you every day whether or not your love one is still alive or not. I have been desperately searching for a decent immunotherapy…