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Brain Cancer

Archives for January 2012

2 WEEKS POST OP, feeling very "slow" almost mentally retarted
I had my 2nd resection 2 weeks ago today. Things are totally different from the 1st time. They went in to remove the radiation nercosis (sp) and found more cancer,they removed it and added 8 glio wafers. Put me on decadron whuch caused me steroid psychosis. I never have felt so horrible in my life. They lowered the…
GBM Cancer Stage 4
Submitted by barbn on January 30, 2012 - 4:56am January 28, 2012 - 7:40am My husband was diagnosed with GBM STAGE 4 on Nov.1st, 2011. he was told 12-14 months prognosis. He had surgery on Nov. 7th. The surgeon went an inch into his brain and removed 90-100% of tumor. The tumor had affected his left side. They call it "left…
Behreavement Center
I had mentioned in another post that I was going to visit The Behreavement Center, in our town, a service offered by our county Hospice. I was happy to learn that David doesn't have to qualify for Hospice Services in order for us to go there. I'm so glad my husband and I went. In searching for a counselor to talk to, to…
Just wanted to share
Just wanted to share.I get these "Thoughts for the Day" and this one I wanted to share with my friends here.....Cindy, It may look familiar to you. :) The Whisper of God Thought for the Day: “We all go through difficult times. How we deal with the tough times when they come and how we make it through is all part of a…
GBM 4 POSTED JAN 26TH, 2012
My husband was diagnosed with GBM STAGE 4 on Nov.1st, 2011. he was told 12-14 months prognosis. He had surgery on Nov. 7th. The surgeon went an inch into his brain and removed 90-100% of tumor. The tumor had affected his left side. They call it "left neglect". He has trouble seeing things to his left. His left hand had…
Back in the hospital
Man, we just can't catch a break here. David started having a really bad pain in his butt cheek. Weird, huh? The nurse (yes, you guessed it--the non-dog one) wanted me to pick up a prescription for a topical hemorrhoid cream but I didn't think it was hemorrhoids and neither did David. I was pretty insistent on having David…
Confused, Do any of you understand this?
Feeling very confused since Tuesday. Let me start from Friday, the results from our first follow up MRI since surgery in August. We walk into the cancer clinic and sit to wait for our appointment. I notice people stare at us when we walk in. It is mostly people over the age of 50 every time we are in there. It’s almost as…
Getting copy of MRI and medical records
How does one get a copy of a patient's MRI? I see that Cindysuetoyou got a copy of her son's. Also, a copy of the radiologist report? For all the MRIs our son has had, we have never gotten a copy that we could take home with us. Or the actual written radiologist report. Being the parent of an adult patient, we really have…
Seizures/MRI/Postponed Treatment/No Avastin/ROLLERCOASTER!!!
Okay, I guess you all know that we had plans for David to do intra arterial chemo on Wed (today) He was supped to be admitted on Tuesday for an MRI and a battery of tests, treated Wed., home Thursday, back on Friday for out-patient Avastin. We also had an appointment with the care management team/pallative care place on…
My husband
My husband was 31 years old when he was diagnosed with his first brain tumor it was a stage 2 oligodendroglioma. I was three months pregrant and I was so scared but they were able to take the size of lemon tumor out and they did chemotherapy and radiation. After a year he was clear and we thought it would never come back…
Astrocytoma inoperable
Hello my boyfriend is 23 years old and just got diagnosed with a brain tumor astrocytoma. It is to big to operate on and also on top of his thalamus so its basically impossible to take out. We are waiting on his pathology results to see what grade it is. He was having mild seizures and is now taking 500 mg of keppra to…
Question for Beckymarie
Beckymarie: Can you tell me how many cycles your husband had with the Temodar before it failed? Then, after that, he was put on Avastin alone, right? You had said that he tolerated the Avastin well, but eventually, the treatment failed. How many quality months did it give him?
AA3 Recurrance
I am interested to see how many people on the boards here are AA3 survivors or know someone directly who is. Being that I am nearing 5 years with no recurrance, I am interested to see where others are in relation to me. If you don't mind, I am looking for the following info. 1. How long since the your initial diagnosis 2.…
Avastin alone, no chemotherapy with it?!
My husband, Jacob received the first infusion of Avastin yesterday ( failed temodar).It was Avastin alone , no chemotharapy added. When I asked the NO, he said there is no proven benefit of using chemo ( and there is a risk of platelets go down!). However, I read everywhere some type of chemo is always give along with…
A question for Astrocytoma grade 3 survivors
I go to my appointments with my boyfriends mom or my dad so I dont feel comfortable asking my dr.s this in front of them. Has anyone else lost completely lost their sex drive?
Just wanted you to know you and David are in my thoughts!
Cindysuetoyou, Just wanted you to know that you and David are in my thoughts and I said a prayer for him for his appointment tomorrow. God Bless!
oligoastrocytoma Grade II survivor 12 years
Hello everyone I'm new to this site but I wish I found it sooner. My name is Scott I was diagnosed with a brain tumor in fall on 1998 it was a cancerous oligoastrocytoma grade 2 I only warning was a grand mall seizure in my sleep and I had waken up with blood on my shirt. At the time I was only 23 so I didn't have a clue…
My MRI was clear!
I went for my 3 month follow up at UAB Wednesday the 18th, and the Dr. said that everything looked better on the MRI than it did the last time. There was a small cyst on the MRI that showed up a few months after my surgery in 2009 that they have just been watching, and he states that it even looks smaller. There is no sign…
Not sure what is going on?
I don't know what exactly is happening with David. He's not answering my questions in a normal manner. When I ask a question or talk to him, his response time is slow. It's only a matter of seconds but it's not normal. If I ask more than one question, he doesn't even answer. Like if I say, "Why is the puppy scratching on…
living independently?
Well, here's where we are at......David is going back to OHSU next Tuesday. He will be admitted and get a bunch of tests...an MRI, bloodwork, etc. Then Wed. he will have intra-arterial chemos--two via the femoral artery up to his carotid, and one chemo thru his port. Then he will be discharged on Thursday, and come back as…
Speech Deficit
Antiquiimom and Surviormannc have both posted about speech deficits. Our son (age 34, dx AA3, 4-13-11, inoperable) also is dealing with this, among other deficits (gross and fine motor). His tumors are located in the cerebellum. I think that the speech impairment is the hardest to deal with as it is very isolating for him.…
Ogliodendroglioma
Hey, my name is Stewart. I had a stage II ogliodendroglioma that was about 4 cm diameter. During surgery, the neuro believes to have removed all of the tumor. The CT scans have come back clean. I'm still waiting on second and third opinions from other pathology reports to know if radiation will be needed. I've heard many…
Amazing Doctor
Hi Everyone, I am not sure if all of you know about my brother. He has a grade 3 glioma and in Canada doctor could not operate on him as they said he will be paralized. They recommended that he has to do radiation immediately on a tumor larger than an orange. He is 23 now. His Radio oncologist told him if he doesn't do…
Bureaucracy
The lovely world of insurance company denied my sister's second chemo agent Xeloda. My sister has an anaplastic astrocytoma with no mgmt mutation that would make it sensitive to Temodar. (well 25% of it is according to the pathology stain). The tumor analysis showed that it could be sensitive to Xeloda. Could is the word.…
Urgent: 6 cm deep brain cancer with Stage 4 lung cancer, anyone ever had this?
Greetings all! I really need your comments and suggestions, please. My father-in-law is near 70 years old. He got diagnosed deep brain cancer with Stage 4 lung cancer. The brain tumor is 6 cm and near the central of the brain. The Stage 4 lung cancer is about 3 cm near the heart. The brain tumor needs to be treated ASAP.…
spinal astrocytoma
has anyone had experience with a Grade 3 astrocytoma in the spine? I was dx'd a year and a half ago, had 30 radiation treatments, was on temodar for a year, took a short break and am back on it now. I would appreciate hearing about anyone else's experience.
Need help to understand so i can be supportive.
Hello everyone, i don't have cancer but someone very dear to me does. So if im misusing this website i apologize upfront. I started dating this girl a couple weeks ago, and i really like her a lot cause she is smart and funny and a really nice person, really honest and decent person. but then a few days ago she told me she…
momsworld?
I was wondering if anyone has heard anything from momsworld. I miss posts on here occasionally, and I'm afraid that she may have posted and I may have missed it. I think about momsworld and her daughter a lot, and I'm hoping and praying that they are both doing okay. Momsworld, sending prayers for peace, comfort, and…
day by day, I guess
We are just plodding along here, taking it day by day, one day at a time. I think that David may have hit a plateau. He seems like he is holding his own now, not improving a whole bunch, but not going downhill either. David went to a movie with a friend earlier this week...his old college roommate. I'm always so very, very…
Can Anyone help me understand these findings?
My husband had his MRI in December and they told us everything was the same as the last MRI. The report wasn't ready so we had to return later to pick it up. When I read the MRI it said some pretty disturbing things, to me anyway. Although it says findings reflect post operative and or post therapy changes, it also said…

Brain Cancer

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