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Brain Cancer

Archives for October 2011

Grade II Oligodenroglimas Bengin or Malignant
I am a 26-year-old female running on very little sleep and concentration so I apologize for any typos in this. I was diagnosed this grade II oligodendroglima this past spring because of sudden severe migraines lasting 4 to 5 weeks. An MRI was found which showed the tumor as an incidentaly finding. I had it resected one…
Our ordeal...sorry it's so long....
I don't know where to start. We've had a long, horrible rough spell and I haven''t had the heart to write about it.…..well, here's what's been going on… Tuesday 9/27 David had a second craniotomy. They removed a lot of tumor, some radiation necrosis, and a large cyst. They didn't get all of the tumor, but they felt they…
child oligodendroglioma survivors
Hi everyone, I am trying to connect with others who were either diagnosed with an oligodendroglioma when they were a child or are a parent of a child dx with an Oligo. My son was dx at 8yrs old with an Oligodendroglioma BT and was operated on to remove it. I hear so many stories of reoccurence in adults with this but would…
Don't tell me
It is the middle of the night and I am at John Hopkins. It is dark and I am typing on my apple computer. My beautiful sister is resting in her bed from the surgery. It went well: the cyst is drained the reservoir is in place and she is neurologically intact. Emotionally, well that is another story. This whole ordeal makes…
lack no muscle/leg control to use bathroom
I'm on dexa (decatron) since my lung cancer met'd to mybrain in 6 places, causing problems with standing on my right leg. It is hard for kevin my boyfriend and my sistr karen to stand me to help me toilet at night. even in conjunction with using wheeled push walker. i got call into main hospice whom i now call first about…
lack no muscle/leg control to use bathroom
I'm on dexa (decatron) since my lung cancer met'd to mybrain in 6 places, causing problems with standing on my right leg. It is hard for kevin my boyfriend and my sistr karen to stand me to help me toilet at night. even in conjunction with using wheeled push walker. i got call into main hospice whom i now call first about…
lack no muscle/leg control to use bathroom
I'm on dexa (decatron) since my lung cancer met'd to mybrain in 6 places, causing problems with standing on my right leg. It is hard for kevin my boyfriend and my sistr karen to stand me to help me toilet at night. even in conjunction with using wheeled push walker. i got call into main hospice whom i now call first about…
Gene deletions?
I've been trying to find older posts that included the term "gene deletions" and how it works with Temodar. Our son's doc has never mentioned that to us (son age 34, dx 4-13-11 AA3, inoperable) but I don't know enough about it to even ask the question. Does the test to determine this deletion have to be done at time of…
Feeling a little weird after feeling better for a while
Haven't been on here in a little while...My last surgery was at the end of January this year - I have had two surgeries and radiation - I have a grade II Astrocytoma that can't be completely removed. I have actually felt better for many months....no seizures, not any really weird feelings, just speak a little funny…
"Fluid collection" in Brain after Radiation
Hi, My sister was having progressive weakness of her left side and some balance issues. She just completed her 6 weeks radiation. The docs were debating steroids but because we heard so many negative things about them we were reluctant. My sister is such a strong person. She is willing to endure a lot and never complains.…
Anaplastic Astrocytoma Grade 3 Survivor
Hello all, my name is Thomas and I am an AA3 survivor and just recently found this site and have chosen to post my story for encouragement and inspiration to others that have been diagnosed with this or other cancers. I will give you a brief history so you can somewhat see WHO I am. I was born December 29, 1970, this is…
Clinical Trail for Brain Cancer
I have a daughter who was recently diagnosed with a brain tumor. She has had surgery, radiation and chemo. I was wondering if anyone has any advice for clinical trails that has helped them. The doctor make things seem so gloom, but I see that their are surviors out there and there is HOPE.
Grade 3 Anaplastic Oligo - OHSU BBBD Trial
Has anybody tried this after disease progression despite radiation and Temodar?
gmb 4 gone all ready
My sister is gone, less that 8 months from this worst nightmare to the darkest of dark...
Biopsy on Thalamus Tumor (Grade II or III based on multiple MRI reviews)
My 60 year old father was diagnosed with a suspected Grade II or III astrocytoma on his left thalamus yesterday. Needless to say this is a nightmare situation for me and my family. His only symptom at this point is mild numbness in his left hand and left side of his face. A couple of questions: -With the location being the…
Grade 3 Anaplastic Oligodendroglioma
I was diagnosed on 10/3/11 after undergoing left frontal resection on 9/27/11. Very crazy set of events... I had a tonic-clonic seizure on 9/2/11 out of the blue during hot yoga. After a visit to the ER, a normal neuro exam, and a clean CAT Scan (the tumor couldn't be seen), I received a referral to a neurologist. I saw…
coming close to the end of GMB
In 6 days it will be 8 months from Dx of GMB. My sisters resperations are five a minute. I came home but am going back soon. Just dont know how to do this. She is calling for our Mom and Grandma. My heart is heavy...Not looking forward to what the next few hours hold... Just telling her how much I love her...and everything…
Son resistive to necessary resection surgery for Oligodendroglioma
My son 36 years of age was diagnosed with a Oligodendroglioma - Grade "2-ish", in 2006. Was asymptomatic, except for a Grand Mal Seizure, which brought him home to Strong Memorial Hospital for surgery. (He resides in Florida) Surgery went well and John recovered here for a couple of months, as he couldn't fly til…
antiplastic astrocytoma grade 3
I was told I have a Cancer called - antiplastic astrocytoma Grade 3. Just what is it?
Looking for similar stories. Experience.
My boyfriend was diagnosed with grade 2 Oligodendroglioma. He had surgery a month and a half ago. Location is Parietal Lobe, more centered. He is Left handed. After surgery we found out he was only partially removed, as a smaller part of this tumour has branched into the center, a place in his brain used to communicate…
Good MRI six months from dx
Our son (partial resection on 4-13-11, dx AA3, age 34) had an MRI yesterday. I was so glad that we got the results right away. At Ohio State, Dr. Caveliere always schedules the MRI the same day, previous to appointment time. He wants to look at the scans himself, then discuss the results with patients that day. I like…
mesenchymal glioblastoma
I recently was given the results of a biomarker analysis of my GBM tumor. It was determined to be a "mesenchymal glioblastoma" subtype. I did not press my NO on the meaning of this, preferring to do some research on my own before asking questions. Overall I feel fortunate - other than a recent seizure I am doing well: I…
feeling discouraged
Well, for those of you who are following David's progress.... David seemed to be recovering amazingly well from his brain surgery on 9/27. That was on a Tuesday...he was back attending college on Monday. He had a pretty good week...he was tired but SO happy to be back at school, and he was thinking that he could get on…
GBM IV Caregiver quits...
Another horrible aspect of GBM is the pressure, exhuastion and emotional drain experienced by caregivers.....I take my dad to his treatments every morning....stay with him on weekends and pay his bills, take care of his house and mediate with doctors and make all decisions for him regarding his care, which obviously…
Brain Stem Glioma
I am a 43 year old mother of 3 boys ages 12, 10 and 6. During my first pregnancy in 1999, I experienced pin & needle sensations in my hands and down my legs. The sensation lasted in my legs for approximately 6 months after delivery, and periodically resurfaced in my hands throughout the years. In 1999 I was sent for an…
GBM GRADE 4!
My mother-in-law has just been diagnosed with GBM grade 4. They say she has a butterfly glioma and that it is inoperable. They have given her 4 months to a year. She is 59 y/o.I hate timelines and we are not giving up HOPE! I would love to hear what treaments have worked for others with this diagnosis. We are also…
GBM 2 month update
Hoping to hear from some of my friends....this page is soooo hard to navigate, when I want to see posts of friends I cannot figure how to pull them up.....anyhow It's been 2 months since my dad was hospitalized. He is in the hopspital today with his first bloodclot. It's large and they are starting thinners. He has 2 weeks…
Stage 4 Metistatic Melanoma
in June 2008 the VA removed stage 3C Melenoma from my back leaving me with a large scar but after that the only follow up was to see dermitology for somthing else to show up. Nothing else was done,not even scans. • On Sunday night, 29 March 11, while at the top of the stairs, my left leg that is in a permanent brace from…
I don't know if my sister should take Temodar anymore
Hi everyone, My sister has anaplastic astrocytoma. I am terrified of course. I learned last week that she does not carry the mutation that would make temodar effective. So my question is: does she continue taking Temodar? I know, I know... I will talk to the neuro-oncologist. But the NO are themselves divided on the issue…
Anaplastic Astrocytoma, Grade 3
I am wondering if someone besides my sister is living with primary brain cancer and has suffered from other cancers as well. She is surviving anaplastic astrocytoma and has been since 1999. In her twenties, per-cancerous polyps were removed from her colon (mom diagnosed with colon cancer at age 46) and at each regularly…

Brain Cancer

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