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decadron and moon face
Was wondering how long after the decardron is stopped that the moon face goes away? Cant wait for this drug to go away, I dont like what it has done to my sisters personality. If dealing with the GBM isnt so over the top. Talk about walking on egg shells,Im walking on glass barefoot...Im BLEEDING....
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Anaplastic Astiocytoma Stage 3: keeping hope alive- A mothers perspective
My son Gregorsen Eugene was diagnosed with Anaplastic Astiocytoma in February 2004 when he was just 23 years old. He had surgery to remove the canserous tumor in his brain. He then received aggresive rediation treatment for a month and a half. the radiation made him feel realy ill. at times he would experience intence…
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Anaplastic Olio Grade 3
Could anyone please tell me what the long term effects are fromt demodar and radiation? My husband's doctor didnt' give us a choice as to not to do one or the other. We did get 2 opinions about the results and surgery but not about the treatment. We just assumed it was what any doc would have told us to do since they said…
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GBM and independence issues
My son (GBM dx 4/18/11 at age 34) just finished his 5 week Temodar/radiation regimen. Because he had radiation to that same part of the brain when he was 8 for a medulloblastoma, the doc felt that his brain tissue couldn't tolerate the full standard radiation dose, so he just had 2/3 of the standard dose. While I wish he…
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When do headaches (post-surgery/radiation) become a problem?
Some background: I was diagnosed with GBM last October, had a 99+% resection, had standard radiation/Temador, and just finished my 6th round of 5/23 Temador and had a clean MRI last month. Unfortunately, I had my first seizure a few weeks ago and I am now on Keppra (1000 mg/day). I am still going to work, though I am…
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ribbon color
Good morning all, I was just wondering if there is a color ribbon for brain cancer and lung cancer. My sister-in-law just passed away and I would like to honor her by wearing a ribbon for her. I wear one for myself--I'm a breast cancer survivor, going on 3 1/2 years now... Angie
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Help
CSN helped me a lot in understanding my dad's situation.Thank you very much all the members who shared their journey in coping with the this decease. My dad(70 years) has been diagnosed with left temporal GBM 4 on June7, 2011. He had undergone Craniotomy and excision of tumor on June 15, 2011 in India. He is soon to start…
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i would like to know if anyone else had the same feels like i had
good evening to all i would to know is anyone had the same things like ihave a searies of feeling i wasnt important to anyone .and also a series of depression and i wounder was it it besause i was recovering cancer ? also i get uptight easy . ialso got a good report from one of the doctors i go to it is liveable and…
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Vale Grace English
My wife has lost her battle with her GBM at 4:30am, Australian EST Sunday 19th June 2011. May she rest in peace. Fortunately the cancer has not disfigured her or reduced her looks for that I am truly grateful. For all your support and encouragement and online help I than you. She is to be buried in Innisfail, FNQ her home…
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Germinoma
I have an almost 8 year old daughter that was diagnosed with Suprasellar Germinoma and Panhypopituitarasim in August 2010. Is there anyone in North Carolina that has a child diagnosed with the same Cancer. I would like to meet other parents. Thank you!
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5 days of temador
Can anyone share with me how you or your loved one was feeling on the 5 days of temador.
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Brain tumor diagnosis and Social Security Disability
Our son was diagnosed with several inoperable brain tumors in April. He has one week to go with the radiation and first round of Temodar. The docs say that any treatment will not make them go away, just "slow things down." The radiation has taken a heavy toll (mainly because this is the second time to be treated with…
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Visual Field Disturbance Linked to Heart Beat.
Last August I was successfully treated with radiation for cancer of a vocal cord. I am still cancer-free, and have my fingers crossed. However, I've developed a visual disturbance linked to my heart beat. My visual fields "jump" with each beat. An Ophthalmologist says my eyes are fine, and I have an appointment to see a…
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Grace is dying
Sorry to announce to everyone Grace is in a coma and expected to last 2 days. This is a complete shock. Thanks for your support. I will now be absent for a good while with mourning and grief and funeral etc. GBM from start to finish, a mere 4 weeks. It sucks totally. I had to get home to clean out the bank accounts and…
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Our Loving 12 yr old son
It breaks my heart to hear so many people going through similar situations with their loved ones as I am going through with my noldest son. My handsome, strong boy has had a brain tumor in the center of his brain since he was 9 yrs old. At that time that they discovered he had it, he just needed a third ventricular shunt…
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Radiation induced deficets: permanent or temporary?
Our son, who is 34, has GBM. He had surgery on April 18, and only enough tissue was removed to get a biopsy. He is currently midway through radiation and Temodar treatment. However, since he started radiation, he has really declined, especially re: gait, fine motor, and speech. Last week, the docs were concerned that maybe…
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had a siezure friday P.M.
Late afternoon Friday after being on DECADRON for the first week, (starting radiation/chemo in a few days)I had a seizure. Of course the wife called 911 when she heard me in screaming pain; I have no recollection of the event. This morning just as I about to take my Decadron and Pepsid she's reading about the side affects…
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Our 19 yr old has GBM IV
We're seeking contact with other parents of young adults dealing with this disease. Our 19 year old son came home from first semester at college with odd symptoms. Biopsy in January: Inoperable GBM in left temporal lobe extending into the insular capsule and downward toward the brain stem that "appears aggressive." He had…
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GBM IV Just got the doctors orders
After one more MRI, finally the doctor has given me a course of treatment: six weeks straight radiation and chemo( temodar) ... The chemo drug seven days a week, and radiation Monday through Friday for six weeks. I am 56 YO male in good health otherwise, and am not prone to any nausea like symptoms. What has been…
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Primary CNS Lymphoma
I am a healthy 32 year old male recently diagnosed with Primary CNS Lymphoma. I have been through 3 cycles of high-dose methotrexate with doses of procarbazine every other treatment and so far my progress has been great. I am writing because - from what I know about CNS Lymphoma of the brain - I am a very unique case.…
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revisiting alternative therapy
I'm interested in this product, and I would like to know if anybody here in this forum has heard of it or used it? The product is called HAELEN here is a link to their website: http://www.haelan951.com/
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homeopathic/ Mrs panormitis
Can you tell me a little more about the homeopathic things you used and how you think they helped. With thw symtons or the tumor it self.
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my first seizure was yesterday
Since my GBM 99+% resection in October 2010, I have been going into work on a regular basis and overall have been amazingly functional (no sign of tumor at a recent MRI). Yesterday what was normal changed. I had a seizure at my desk. A coworker found me on the floor shaking for a minute and called 911. After I arrived at…
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Grace Micgraces wife
Hi The last thread was getting a bit cluttered. My wife Grace is scheduled for radiation in early July at full strength. I am trying to organise chemo at the same time as it greatly sensitises the cancer cells for destruction but they seem less keen on that approach although willing to concede it is a rather good idea. Her…
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first MRI
Well that first MRI is done. The tumor was 2.2cm x1.8 x1.9 now its 2.5x 1.7 cm. Dont even know what to think. The first MRI was in Feb treatment didnt start to the end of March like 6 weeks later. Could it of grow in those six weeks? Then we started treatment. Last radiation was May 6. Last temador and avastin the end of…
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GBM - new symptom severe blistering rash
Wanted to know if anyone else out there with a loved one with GBM has experienced a severe blistering rash with yellowish pus on upper torso and back. Dad has been through his first round of treatments with chemo and radiation, and is about to begin the next phase of chemo Temodor, 5 days on, 23 days off. Still waiting for…
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hair post radiation/temador
Wondering what people are using on the remaining hair. They said to use baby shampoo during what about after radiation?
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My father nearing death.. please help
I have been looking all over for some sort of comfort and understanding. I am 23 years old and I have a father that is dying of lymphoma in the brain. He has had it since 2007, but has recently had a new tumor that is inoperable and that is doing an extreme amount of damage. It has grown tremendously in the past 3 weeks,…