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to the nurse who replied to me under my other post
please write to me again, I wrote to you under my other post, you will see it. thanks Linda
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whole brain radiation
my husband is starting whole brain radiation next week because he does not meet the criteria for stereotatic radiation, actually the doctor suggested surgery then radiation but my husband does not want surgery. He has one tumor approx. 1 1/2" long in the back on his celebellum. Does whole head radiation work and what are…
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stereotactic radiation
Has anyone been treatment for brain cancer using this type of treatment, my husband is stage four esphogeal with a new met to his cerebellum area of his brain. I am trying to find out more about this treatment option vs whole head radiation. thanks for your help. Linda
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Grade 3 astrocytoma in 28 year old
My son was diagnosed in March after having a seizure. He has had surgery which removed 95 percent of the tumour from his left frontal lobe. No bad effects from the surgery. Has had 6 weeks of radiation along with chemo (temodar). He will be starting 6 months of chemo in July-5 days on then 21 days off. He has a lot of…
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Need advise on whole brain radiation. Please help
Hi, I had lung cancer and lobe was removed 2 months ago. I just had a mri that shows i have 5 small c cels in the brain. Doctor recommends whole brain surgery since there are 5 tumors, but i know there are other options but am confused which way to go. the tumors are small.I have heard of gamma knife but dont now if its…
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june 2010 Anaplastic astrocytoma in thalamus
My mom (64 yrs young)was just recently diag. with grade 3 anaplastic astrocytoma & they say it's inoperable. Does anyone know anyone who had a tumor in the thalamus location. It's devastating to our family & I think we are all still in shock. First they spoke about doing cyberknife treatments now it's changed. Now they say…
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my husband was told he has stage 4 brain cancer 5 weeks ago
I am having a hard time dealing with this and I do not know what to expect. I am hoping he will survive for a while. He has had 10 treatments of radiation and he is going to have another scan in july to see if the treatments helped. he is at home but he has to use a walker. will he be able to walk normally. This all came…
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husband has stage four esphogeal cancer now met to his brain
My husband was having balancing issues and heaches, ct scan and mri showed l 1/2" tumor to his cerebellum area of his brain. he has to wait two weeks until chemo is out of him then they are suggesting radiation. Does anyone know anything about cancer to this part of the brain and also about radiation, what to expect, side…
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Exposure to computer video terminals and monitors - possible link to Brain C?
I know that the current rage is the link between cell phones and brain cancer, but I have a more personal linkage I am curious to investigate. Because my original tumor was never linked to any known cause by any of my specialists at the time, and in view of many recurrences, I have my own pet theory which may or may not be…
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Cancer spread to Brain Lining and Spinal Fluid?
Hello, I am usually on LC site, mom has SCLC w/mets to brain and spine. Brain and spine tumors have been treated with radiation very successfully. She has become weak and unable to stand, walk, roll over etc.....they have scanned entire body, all clean. They are wanting to do MRI of brain lining as well as a spinal tap to…
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Incontinence
My mom has GBM. She finished radiation therapy/temodar on April 22. She had an episode of brain swelling on May 24, when the doctors took her off dexamethasone. An MRI done at that point showed what appeared to be tumor regrowth, although the brain swelling made the findings unclear. She was put back and dexamethasone and…
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HE JUST HAD ANOTHER SEIZURE
I woke up today morning, took a shower and when I was putting my clothes on. Rafael told me: "I think I'm having a seizure again". So I ran in towell to help him lay down in the sofa and then I remembered doctor told me if a seizure happens again. Put a pill of Lorazepan under his tongue and that will help to stop the…
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Recurrent GBMTumor- any experience w/ Avastin and CPT 11
Hello. My mom was diagnosed w/ a GBM and had surgery in October of 09. They were able to remove the whole tumor. She did the 6 weeks of radiation w/ 125 mg of Temodar and is currently finishing her 5th round of Temodar 250 mg, 5 day per month, 23 days off. She's been taking decadron off and on since the surgery, but more…
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Proton Therapy
I recently completed 29 treatments of proton therapy in Oklahoma City. The facility opened last August. I have a low grade, brain stem glioma and the primary symptom is double vision. My first MRI after treatment of 2 1/2 weeks showed a 20% reduction in the tumor size. I have another MRI in one week. I am interested in…
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Procarbazine experiences please
After 3 years of Temodar as follow-up treatment for a resected II/III oligo tumor, I was diagnosed with a recurrence (same type and class). My neurosurgeon declared it inoperable; my oncologist has changed my chemo to the PVC "cocktail". I'm toward the end of the first cycle (no more pills, one more vincristine shot), and…
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Meningioma Front Tempural Lobe - Newly diagnosed
Last September I was referred to a Neurologist for problems I was experiencing after taking the drug Reglan for nausea from chemo for breast cancer. A brain MRI was done, and a meningioma was found. The Neuro felt it was not anything to worry about. I have since changed Neurologists, and three months after seeing the new…
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anaplastic astrocytoma grade 3
Hi, My daughter was diagnosed with AA3 in March 2010. She has had 2 brain surgeries to remove the tumor. The Dr's feel that they removed it all. Is there anyone out there who has been or is going through this with a family member or themselves? I've read alot of grim stories and I'm looking for something positive to help…
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Avastin and Cumodin?
My husbands oncologist and neurosurgeon have decided that our next step is Avastin and CPT-11. I was wondering if anyone has been on Avastin and Cumodin? My husband had a pulmonary embolism last month and has been on Cumodin since then. He's already had some issues with bleeding and his INR being too high (had a nose bleed…
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Gliomatosis Cerebri
Does anyone out there have gliomatosis cerebri or know of someone who does?
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GBM of the spine, anyone else?
My husband had a spinal tumor found February 28th, we got the pathology back from Brigham & Womens and John Hopkins saying GBM mid March. His brain is clear, no tumors there. They removed about 80% of the tumor surgically and he's done Radiation and Temodar for treatment. The first MRI after treatment has shown no new…
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Your Location,type of Brain Cancer?
Just curious, but it seems there is an epidemic of Brain Tumor's in young people in the United Stated. My 15 year old daughter was diagnosed in 2005 with Oligodendroglioma stage 2. It has returned and she is scheduled for surgury this month. I'm intrested how many people have brain tumors and where they live. Her…
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Your Location,type of Brain Cancer?
Just curious, but it seems there is an epidemic of Brain Tumor's in young people in the United Stated. My 15 year old daughter was diagnosed in 2005 with Oligodendroglioma stage 2. It has returned and she is scheduled for surgury this month. I'm intrested how many people have brain tumors and where they live. Her…
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Its been 6 years, when does it get better?
When I was 8 my mom was diagnosed with brain cancer. For 10 years she faught it, having several major surgeries and going through some of the worst pain a person could go through. Growing up the focus of our family went directly to our mom because of how sick she was. We never did family trips, did family game night. Our…